Genetic Breakthrough Spells Hope for Lung Fibrosis Patients

Might help those with advanced disease buy time until transplant, study shows WEDNESDAY, July 8 (HealthDay News) -- Genes that can help doctors predict when patients with idiopathic pulmonary fibrosis are becoming seriously ill have been identified by U.S. researchers, who said the fin...

All Fifty States to Screen Newborns for Cystic Fibrosis by 2010

BETHESDA, Md., July 7 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that all 50 states plus the District of Columbia have passed legislation requiring that all newborns be screened for cystic fibrosis (CF) by the year 2010. Early diagnosis of cystic fibrosis, a li...

Cystic Fibrosis Treatment May Cause Hearing Loss

Ear evaluation urged for youngsters taking common antibacterial medication THURSDAY, July 2 (HealthDay News) -- A common antibacterial treatment for cystic fibrosis can cause sensorineural hearing loss, finds a new study. Researchers reviewed the medical records of 50 cystic fibrosi...

Women with cystic fibrosis can have safe and successful fertility treatment

Amsterdam, The Netherlands: Women with cystic fibrosis can have fertility treatment to help them have babies without any long-term adverse effects on either themselves or their children, according to new research presented at the 25th annual meeting of the European Society of Human Reproduction an...

CPF Announces Dates for Seventh Annual National Pulmonary Fibrosis Awareness Week

2009 Awareness Efforts Set for August and September, PF Week Sept. 14 - 21 SAN JOSE, Calif., June 25 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) announced today it has scheduled its 2009 National Pulmonary Fibrosis (PF) Awareness Week for September 14-21, 2009. Th...

CPF, Pulmonary Fibrosis Experts Guests on Sirius and XM Satellite Radio Show June 16th

"Doctor Radio" Host Interviews CPF Co-Founder, PF Advocate, and Top PF Researcher and Clinician NEW YORK, June 15 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) today announced its co-founder and other Pulmonary Fibrosis (PF) experts will be guests on the Sirius and XM ...

iUniverse Hosts Canadian Storytellers, Cystic Fibrosis Awareness Advocate for BookExpo America 2009 Book Signings

NEW YORK, May 28 /PRNewswire/ -- iUniverse , the leading provider of self-publishing and marketing services for authors around the globe, is hosting Canadian storytellers Elisabeth Richards and Bruce Lord, and cystic fibrosis awareness advocate Margarete Cassalina, at a pair of free book si...

State Fair Meadowlands Teams Up & Goes Trucking For Cystic Fibrosis Foundation

State Fair Meadowlands Helps Raise Awareness & Funds for Cystic Fibrosis EAST RUTHERFORD, N.J., May 21 /PRNewswire/ -- Did you know that on average Cystic Fibrosis affects over 500 individuals in NJ alone, 30,000 in the U.S. and 70,000 worldwide? While progress is being made to better...

Coalition for Pulmonary Fibrosis Announces Awards and Activities at ATS International Conference

CPF Recognized for Advancing Research and Patient Advocacy Efforts SAN DIEGO, May 18 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) today announced awards received at the American Thoracic Society's (ATS) International conference in San Diego, Calif. being held this wee...

New Spray Could Benefit Cystic Fibrosis Patients

Airways remained clear and moist in studies, researcher says MONDAY, May 18 (HealthDay News) -- A new aerosol spray may help keep the airways of cystic fibrosis patients moist and clear, researchers say. Using a special agent called GS-9411, the spray prevents sodium from being abso...

Cystic Fibrosis Foundation Rings Bell to Close New York Stock Exchange

BETHESDA, Md., May 13 /PRNewswire-USNewswire/ -- In recognition of National Cystic Fibrosis Awareness Month, the Cystic Fibrosis Foundation has been invited to ring the closing bell of the New York Stock Exchange today. The Cystic Fibrosis Foundation is the leading organization in the United ...

Co-Sponsorship of Pulmonary Fibrosis Research Enhancement Act 2009 Increases to 27 Members

SAN JOSE, Calif., May 7 /PRNewswire-USNewswire/ -- The CPF today announced that the Pulmonary Fibrosis Research Enhancement Act (PFREA) (H.R. 1079) - which would authorize $16 million in new federal funding for pulmonary fibrosis (PF) research - has now gained the support of 27 Members of t...

Cystic Fibrosis Foundation Launches GREAT STRIDES Walks Nationwide at 600 Locations

Tens of Thousands of Volunteers Seek to Raise $40 Million for Life-threatening Disease BETHESDA, Md., May 7 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today the launch of GREAT STRIDES, a national walk that generates critical funds for life-saving cystic fibrosis (CF)...

CW's 7th Heaven Actress Mackenzie Rosman to Visit Birmingham Area High School to Honor Cystic Fibrosis Foundation Fundraising

Vestavia Hills High School Raises More than $17,000 and Beats Schools Nationwide BETHESDA, Md., May 5 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that CW's 7th Heaven actress Mackenzie Rosman will visit Vestavia Hills High School in Birmingham, Al...

Quest Diagnostics Discovers New Genetic Mutations Affecting Cystic Fibrosis Screening

Company's Scientists also Enhance Industry Standards for Quality Screening in Three Articles Published in The Journal of Molecular Diagnostics MADISON, N.J., April 27 /PRNewswire-FirstCall/ -- Quest Diagnostics scientists provide new insights into genetic factors affecting the accuracy an...

Cleveland Trials Set In Nephrogenic Systemic Fibrosis (NSF) Gadolinium MRI Side Effects Cases

Two attorneys from Spangenberg, Shibley & Liber LLP are serving as Liaison Counsel and taking active roles in the Federal Court litigation involving gadolinium MRI contrast agent side effects and nephrogenic systemic fibrosis . The Federal Judge presiding over these cases has set four gado...

Cystic Fibrosis Foundation to Receive Prestigious Health Care Award

Foundation Honored by NCQA for Leadership in Improving Care BETHESDA, Md., March 18 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation will be honored today in Washington, D.C., for remarkable leadership in improving the quality of care for people living with cystic fibrosis, by the Na...

Scientists find gene that modifies severity of cystic fibrosis lung disease

WINSTON-SALEM, N.C. Researchers at Wake Forest University Baptist Medical Center, and colleagues, have identified a gene that modifies the severity of lung disease in people with cystic fibrosis, a lethal genetic condition. The findings open the door to possible new targets for treatment, researc...

JackpotCity.com Online Bingo Raises Over 10,000 for Cystic Fibrosis Trust

JackpotCity.com Online Bingo has sold over 100,000 Bingo tickets for the Cystic Fibrosis Trust and raised over £10,000 for the charity in the process. Gibraltar (PRWEB) March 3, 2009 -- JackpotCity.com Online Bingo has ensured that both the Cystic Fibrosis Trust (...

Pulmonary Fibrosis Research Enhancement Act of 2009 Introduced in 111th U.S. Congress

Landmark Bill Would Create National Patient Registry, Increase Public Awareness of Deadly Lung Disease WASHINGTON, Feb. 19 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) is excited to announce a pivotal time in our national pulmonary fibrosis (PF) advocacy program -...

Hope for preventative treatment for cystic fibrosis lung disease

Heidelberg researchers have succeeded in preventing cystic fibrosis lung disease in an animal model by spraying amiloride into the lungs of young mice. This is the first therapy to successfully attack the root cause of the widespread hereditary disease in a living organism. When mice are given ...

Coalition for Pulmonary Fibrosis and American Thoracic Society Announce Recipients of 2009-10 Research Awards

CPF and ATS to Jointly Award $200,000 to Advance Understanding and Treatment of Pulmonary Fibrosis (PF) SAN JOSE, Calif., Feb. 4 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) and the American Thoracic Society (ATS), the world's leading professional organization for pul...

Cystic Fibrosis Foundation Web Site Rated 'Best of the Web'

CFF.org called 'outstanding' and a 'must book-mark site' BETHESDA, Md., Jan. 14 /PRNewswire-USNewswire/ -- The American Thoracic Society (ATS) has rated the Cystic Fibrosis Foundation's Web site -- www.cff.org -- the top online source of information about cystic fibrosis. In its "Bes...

Coalition for Pulmonary Fibrosis Celebrates Landmark Year for Awareness, Advocacy, Research

SAN JOSE, Calif. Dec. 31 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) calls 2008 a year of substantial progress in advocacy, research support and awareness of a fatal disease that has no known cause, no FDA-approved treatment, and no cure - Pulmonary Fibrosis (PF). Th...

Cystic fibrosis patients' self-assessment of health can predict prognosis

Adult Cystic Fibrosis patients can provide important information that helps to predict their prognosis, according to research that asked 223 adult CF patients to assess their own health and well-being. "We wished to see whether patients themselves had clinically relevant insight to their disea...

Cystic Fibrosis Services Pharmacy Celebrates 20th Anniversary

Organization Has Filled More Than 1 Million Prescriptions BETHESDA, Md., Dec. 17 /PRNewswire-USNewswire/ -- Cystic Fibrosis Services, Inc., a wholly owned subsidiary of the Cystic Fibrosis Foundation, today announced its 20th anniversary of providing quality pharmacy services to the cysti...

Scientists Spot Key to Cystic Fibrosis Infections

Targeting pigments in mucus could fight deadly,,bacteria in lungs TUESDAY, Dec. 16 (HealthDay News) -- Blue-green pigments called phenazines that stain the mucus in the lungs of cystic fibrosis patients are signaling molecules that could spur dangerous infections, researchers say. T...

Intervention in infants with cystic fibrosis key to slowing progression

Early detection of lung disease in cystic fibrosis (CF), combined with aggressive treatment in infants, may be the key to controlling the progression of the disease, according to a recent study. New research shows that contrary to previous scientific opinion, progressive lung damage in CF patients...

Pulmonary Fibrosis Contributes to Beloved Civil Rights Writer and Folk Singer Odetta's Death

SAN JOSE, Calif., Dec. 4 /PRNewswire-USNewswire/ -- Music and civil rights icon Odetta succumbed December 2 as a result of multiple illnesses. One of them was pulmonary fibrosis (PF), an illness that relentlessly fills the lungs with scar tissue and suffocates its victims, and is one of the deadl...

CPF Updates Patient Education Materials to Meet Growing Demand for Pulmonary Fibrosis Information

SAN JOSE, Calif., Dec. 3 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) today announced the launch of its newly designed patient guide offered to patients and families fighting pulmonary fibrosis (PF), a devastating and ultimately fatal disorder characterized by progressive ...

Estrogen May Explain Why Women With Cystic Fibrosis Suffer More

Study found high levels of hormone worsened respiratory disease THURSDAY, Nov. 20 (HealthDay News) -- Higher levels of estrogen during ovulation may explain why women with cystic fibrosis tend to fare worse than men with the respiratory disease, researchers at the University of North C...

Cystic Fibrosis Foundation Establishes Landmark Patient Assistance Foundation

Organization offsets rising drug costs with funding from pharmaceutical manufacturers BETHESDA, Md., Nov. 13 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation today announced the launch of a Cystic Fibrosis Patient Assistance Foundation, a nonprofit subsidiary that will help patients...

Co-Sponsorship of Pulmonary Fibrosis Research Enhancement Act Increases to 27 Members

SAN JOSE, Calif., Nov. 11 /PRNewswire-USNewswire/ -- The CPF today announced that the Pulmonary Fibrosis Research Enhancement Act (PFREA) (H.R. 6567) - which would authorize $16 million in new federal funding for pulmonary fibrosis (PF) research - has now gained the support of 27 Members of th...

Vitamin D Guidelines Too Low for Cystic Fibrosis Kids

Study says deficiency persists even after weekly doses up to 3 times recommended amount MONDAY, Oct. 13 (HealthDay News) -- Existing guidelines for treating vitamin D deficiency in children with cystic fibrosis are too low and put patients at high risk for bone loss and rickets, a new ...

Children with cystic fibrosis not well covered by guidelines for vitamin D needs

Existing recommendations for treating vitamin D deficiency in children with cystic fibrosis (CF) are too low to cover the serious need, leaving most at high risk for bone loss and rickets, according to researchers at Johns Hopkins Children's Center. In results of their investigation, publishe...

Cystic Fibrosis Foundation Hosts Quality Improvement Summit - Caregivers from 15 States and Canada Gather in Hartford for Intensive Learning

Central Connecticut Cystic Fibrosis Center Becomes National Model after Significant Gains in Health Outcomes for CF BETHESDA, Md., May 30 /PRNewswire-USNewswire/ -- Physicians, nurses, dieticians, social workers and respiratory therapists from 15 states and Canada who treat cystic fibrosis wi...

New treatment gives hope for pulmonary fibrosis patients

ATS 2008, TORONTOPatients with idiopathic pulmonary fibrosis (IPF) may have a new treatment option, according to researchers in Japan. In a Phase III, double-blind, placebo-controlled clinical trial, the investigators discovered that a daily dose of pirfenidone could slow the progression of IPF...

GREAT STRIDES Walks for Cystic Fibrosis Slated for 47 States This Weekend

Nationwide Fundraiser Seeks to Raise $38 Million for Life-threatening Disease BETHESDA, Md., May 16 /PRNewswire-USNewswire/ -- Walkers in nearly every state will raise funds for cystic fibrosis this weekend -- May 17 and 18 -- by participating in GREAT STRIDES, the largest national CF fund-r...

Cystic Fibrosis Foundation President Rings Bell to Close New York Stock Exchange

Federal Realty Investment Trust invites Foundation to celebrate scientific advancements that have fueled longer life for people with CF BETHESDA, Md., May 13 /PRNewswire-USNewswire/ -- To celebrate remarkable progress in treating cystic fibrosis -- a fatal genetic disease -- Federal Real...

Pulmonary Fibrosis Patients Meet With Top Lung Doctors at Beth Israel Deaconess Medical Center

Idiopathic pulmonary fibrosis (IPF) patients learn from specialists, seek answers about incurable disease BOSTON, April 30 /PRNewswire-USNewswire/ -- The following announcement was released by The Coalition for Pulmonary Fibrosis: WHAT: "Living with IPF" Free Educational Seminar for Pa...