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Medical Journal Publishes First Large-Scale Survey Revealing,Experiences of IPF Patients

n half of respondents reported they felt well-informed about treatment options, the role of supplemental oxygen, pulmonary rehabilitation and transplantation. These results suggest there remains a substantial need for improved patient education regarding the diagnosis and management of pulmonary fibrosis.

"Representing the viewpoint of the patients we serve, and delivering programs and services to meet their needs, remains central to our mission," said Mark A. Shreve, chief executive officer of the CPF. "This research clearly shows that we can all be doing more to help IPF patients and their families."

Overall, more than 2,000 patients and families have completed the Basic Research Questionnaire. It is managed by Michaels Opinion Research, Inc. ( http://www.michealsresearch.com ), an independent research firm based in New York.

Funding for this program is provided through private gifts from the DuBrul Family Fund and from Helen and Michael Galvin in memory of their family members who have passed away from IPF.

About Idiopathic Pulmonary Fibrosis (IPF)

IPF is a lung disorder characterized by a progressive scarring -- known as fibrosis -- and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from IPF, which is the most prevalent of a classification of lung disorders known as interstitial lung diseases (ILD's). There is currently no known cause or cure for IPF, nor is there an FDA-approved treatment. An estimated 48,000 new cases are diagnosed each year. IPF is difficult to diagnose, and an estimated two- thirds of patients die within five years of diagnosis.

About the Coalition for Pulmonary Fibrosis

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for idiopathic pulmonary fibrosis (IPF
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