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Medical Journal Publishes First Large-Scale Survey Revealing,Experiences of IPF Patients

CPF-Funded Research Manuscript Appears in Peer-Review Journal Respiratory Medicine

SAN JOSE, Calif., March 21, 2007 /PRNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) today announced a summary manuscript from its Basic Research Questionnaire, considered one of the largest databases of information on patients suffering from idiopathic pulmonary fibrosis (IPF) in the United States, was published in Respiratory Medicine. The publication is an internationally-renowned, peer-reviewed journal devoted to the rapid publication of clinically-relevant respiratory medicine research. This manuscript represents the first large-scale survey of patient experiences and perceptions regarding the diagnosis and treatment of IPF published to date.

The paper, entitled "Patient Experiences with Pulmonary Fibrosis," was authored by Harold Collard, M.D. (University of California, San Francisco), Marvin Schwarz, M.D. (University of Colorado Health Sciences Center), Gregory Tino, M.D. (University of Pennsylvania Medical Center), Paul Noble, M.D. (Duke University Medical Center), Mark Shreve (CPF), and Maureen Michaels and Bruce Carlson (Michaels Opinion Research, Inc.).

The manuscript has been published ahead of print and is available on PubNet, or by visiting the CPF Web page at http://www.coalitionforpf.org/Healthcare/resources.asp . The manuscript is cited as: Collard HR, et al. Patient experiences with pulmonary fibrosis. Respir Med (2006), doi:10.1016/j.rmed.2006.10.002.

The manuscript focuses on the issues of patient education and resources. A survey of 52 defined-choice and open-ended questions regarding the diagnosis and management of pulmonary fibrosis was delivered. Two-thirds of the total 1,448 respondents reported a clear lack of information and resources on pulmonary fibrosis at the time of diagnosis. Less tha
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