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World's Tallest Man Stretches Out—Over Eight Feet—for Needed Gamma Knife Surgery
Date:8/26/2010

Mr. Kosen's case and many patients with recurrent or residual pituitary adenomas, "there is no better treatment than Gamma Knife surgery for lesions in the pituitary region," Dr. Sheehan notes.

Filming of a TLC (The Learning Channel) documentary on Kosen, The World's Tallest Man: Still Growing (aired August 8, 2010), ultimately brought Dr. Sheehan and Mr. Kosen together.

"Following several tests at UVA, I was presented with Gamma Knife surgery as an option to treat the tumor," Mr. Kosen says. "After returning to Turkey, Dr. Sheehan kindly offered to perform this treatment."

Acromegaly a growing problem in more ways than one

Mr. Kosen's experience with acromegaly has been similar to those of many other sufferers, an ongoing litany of problems, from the practical and mundane to the life threatening. Standard clothing and cars are simply too small for him, among a multitude of other things. More seriously, Mr. Kosen's condition affects his internal organs—requiring monthly injections to control their growth—and joints which have to cope with the stresses of supporting a massive body.

"As I continue to grow, it will have an adverse effect on my internal organs, particularly my heart," he says. "Since I was diagnosed with acromegaly at age 10, I have had five surgeries, three of which were to remove the pituitary tumor. However, the doctors couldn't completely remove the tumor due to the risk of causing blindness, stroke and even death."

"Two years ago, I had radiotherapy, which reduced the tumor's size considerably," Mr. Kosen continues. "My last surgery was on my knee, which dislocated as a result of my height. I was in the hospital for six months and this is why I have to use sticks when I walk. I'm hoping to find a sponsor for physiotherapy to help me build up muscle tone to the point I don't need the sticks anymore."

The 27-year-old's knee problems ultimately precluded him from a r
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SOURCE Elekta
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