Navigation Links
World Hemophilia Day -- April 17
Date:4/16/2012

MONTREAL, April 16, 2012 /PRNewswire/ -- An estimated one in 1,000 women and men has a bleeding disorder. However, 75 percent still receive very inadequate treatment or no treatment at all. What will it take to Close the Gap?

On World Hemophilia Day 2012, the global bleeding disorders community will spread the message to "Close the Gap" in care around the world. Together, we can work toward a day when treatment will be available for all globally.

Many are unaware that if untreated, people with severe hemophilia will face pain, stigma, disability, and might not survive to adulthood. It is also fairly unknown that postpartum hemorrhage is the main cause of maternal death and long-term disability for women around the world.

"The reality is that most people with hemophilia or other bleeding disorders do not receive adequate diagnosis, treatment and management for their conditions," said Mark Skinner, World Federation of Hemophilia (WFH) president. "This is important whether good treatment is already established but needs to be protected, or where treatment needs to be improved."

The WFH launched an awareness campaign this year, through social media, that aims to inform the global community about bleeding disorders and the need for better access to treatment. On World Hemophilia Day, April 17, hemophilia organizations and hemophilia treatment centres around the world are participating by organizing local events, wearing red, and going online to increase awareness of hemophilia and other bleeding disorders.

To learn more about what the global community is doing to "Close the Gap," visit www.wfh.org/facebook or follow WFH on Twitter or YouTube.

World Hemophilia Day is supported with funding by Baxter, Bayer, Biogen Idec Hemophilia, CSL Behring, Inspiration Biopharmaceuticals and Novo Nordisk.

Join the international bleeding disorders community on April 17 to mark World Hemophilia Day. Help us "Close the Gap."

About hemophilia and other bleeding disorders
Hemophilia, von Willebrand disease, inherited platelet disorders, and other factor deficiencies are lifelong bleeding disorders that prevent blood from clotting properly. People with bleeding disorders do not have enough of a particular clotting factor, a protein in blood that controls bleeding, or else it does not work properly. The severity of a person's bleeding disorder usually depends on the amount of clotting factor that is missing or not functioning. People with hemophilia can experience uncontrolled internal bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles causes severe pain and disability while bleeding into major organs, such as the brain, can cause death.

About the World Federation of Hemophilia (WFH)
For 50 years, the World Federation of Hemophilia, an international not-for-profit organization has worked to improve the lives of people with hemophilia and other inherited bleeding disorders. Established in 1963, it is a global network of patient organizations in 118 countries and has official recognition from the World Health Organization. Visit WFH online at www.wfh.org.

For more information please contact:
Sarah Ford
1 514 394 2822
sford@wfh.org
www.wfh.org


'/>"/>
SOURCE World Federation of Hemophilia
Copyright©2010 PR Newswire.
All rights reserved

Related medicine technology :

1. 8th Annual World Health Care Congress Set for Amsterdam, Spring 2012
2. Olympus Introduces the Worlds Only Integrated Bipolar and Ultrasonic Energy Platform
3. Leading Pharma Events CPhI Worldwide, ICSE, P-MEC Europe & InnoPack to Return to Frankfurt in 2013 after Record Breaking Year
4. Philips and the World Association of Sleep Medicine Join Together to Raise Global Awareness of the Importance of Sleep
5. Everist Genomics Develops Worlds First Comprehensive Companion Diagnostics and Prognostics Portfolio for Early Diagnosis and Improved Treatment of Colorectal Cancer
6. HRID Launches Plan to Expand Into World-Wide Market
7. Accuray Recognized for Delivering World-Class Customer Service
8. Organovo Named to MIT Technology Reviews 2012 TR50 List of the Worlds Most Innovative Companies
9. 1,000th Implant of the Worlds Only Approved Total Artificial Heart Performed
10. The Wisconsin Heart Hospital Becomes the Worlds First to Use the Leonardo 3D Vision™ System
11. Medicomp Systems Hosts Quipstar, Worlds Favorite HIT Quiz Show, at HIMSS12
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/18/2017)... Jan. 18, 2017  Kratom leaves, from a ... are often used to prepare tea-like beverages and ... million Americans annually to increase alertness, enhance well-being ... for minor aches and pains. PinneyAssociates, review of ... to assist FDA and DEA in determining the ...
(Date:1/18/2017)... , Jan. 18, 2017  Dermata Therapeutics, LLC, ... to treat a variety of dermatological diseases, announces ... DMT210, in a Phase 2 acne rosacea study. ... downregulate the proinflammatory cytokines in the skin responsible ... rosacea. This clinical trial, DMT210-003, ...
(Date:1/18/2017)... , Suiza, 18 de enero de 2017  Hoy, ... lanzaron Access Accelerated, una iniciativa global para avanzar el ... y atención en países de renta baja y baja-media ... alcanzado un punto de crisis, particularmente en países de ... 80 por ciento de las muertes relacionadas con NCD. ...
Breaking Medicine Technology:
(Date:1/19/2017)... ... 2017 , ... Attorney Robert “RC” Pate , founder of The Law ... Triumph Over Kid Cancer foundation. Each year, 175,000 children are diagnosed with pediatric cancers. ... the effect of the critical funding gap for research into pediatric cancer research. From ...
(Date:1/19/2017)... ... 2017 , ... The CHP suggests that California drivers can avoid hydroplaning as ... and increasing the space between themselves and other vehicles, according to a January 3 ... R. Hassanlou notes that, rain or shine, drivers should always incorporate safe driving practices ...
(Date:1/19/2017)... ... January 19, 2017 , ... The 21st Century Cures Act’s Impact ... Webinar**, Jan. 26, 2016 — 1:30 p.m. – 3:00 p.m. ET, http://www.fdanews.com/21stcenturycures          ... Act in order to thrive this year? , The passage of the act means ...
(Date:1/19/2017)... ... January 19, 2017 , ... Infinity® Massage Chairs announced today ... implement new sales and marketing strategies. Grover comes with a total of 15 years ... a half years as Executive Vice President of Direct Sales at Traeger® Wood Pellet ...
(Date:1/19/2017)... ... January 19, 2017 , ... Fillers are known for ... people know that popular cosmetic fillers can enhance earlobes and rejuvenate ... director of the MilfordMD Cosmetic Dermatology Surgery & Laser Center, in Milford, Penn. ...
Breaking Medicine News(10 mins):