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Voices of UC Survey Shows Need for Patients with Ulcerative Colitis to Speak Up about Debilitating Digestive Disease
Date:10/8/2010

nessed firsthand the effect UC can have on a loved one. "My mother initially kept her UC diagnosis a secret from most of our family because she was embarrassed and felt uncomfortable talking about it," said Van Der Beek.  "Through my involvement in the Voices of UC program, I hope to raise awareness of UC and encourage those who suffer in silence, like my mom, to speak up about their condition with their families and friends, who may provide support, and most important, their physicians."

In addition to being uncomfortable discussing their condition with friends and family, patients may not be fully communicating the effect of the disease to their physicians.  In fact, nearly half of patients surveyed experience three or more UC flares each year in contrast to physicians who believe less than a quarter do.  

"While the symptoms of UC may be challenging for patients to talk about, it's critical that they share these details with their physician to get a timely and accurate diagnosis and make sure their condition is treated appropriately," said James DeGerome, MD, president of the DDNC.  "The results of the Voices of UC surveys illustrate the importance of active and open communication, especially between a person with UC and their physician."

The surveys also suggest that patients believe their UC is under control when it may not be.

  • Nearly four out of five patients living with UC believe that their disease is under control.
  • These same patients report having symptoms of UC for an average of 101 days out of the year – almost one day out of every three days.  

In addition to reporting on the physical consequences of the disease, patients also expressed how UC affects them emotionally and personally in social, work and family settings.

  • One in three patients report the threat of UC flares makes i
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SOURCE Centocor Ortho Biotech, Inc.
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