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ViroPharma Launches 'HAE and Me,' A New Online Community to Unite People Living With Hereditary Angioedema
Date:3/21/2011

a pediatrician who specializes in adolescents with chronic conditions like HAE, has authored a number of books including "Easy For You To Say: Q and A's for Teens Living With Chronic Illness or Disability," focused on topics that matter the most to teens, including family relationships, friends and dating, school and work, and sexuality.

"Being young can be hard enough, but having something that makes you feel different can be truly alienating," said Dr. David Hurewitz, an allergist/immunologist at the Allergy Clinic of Tulsa in Tulsa, Okla.  "Symptoms of HAE often show up for the first time, or get more frequent and severe, during adolescence, leaving young people searching for answers about how to cope.  'Gen HAE' is the only resource of its kind, and I believe can be quite helpful for young people to navigate important issues they may face growing up with HAE."  

"HAE and Me" also links to www.LetsTalkHAE.com, the hub for a physician education program that unites disparate specialist organizations to work together to help advance the standard of care for HAE patients, as well as a new documentary film called 'Swell', which showcases the lives of people living with HAE, providing a first-hand look at what it is like to suffer from the disease and how it affects family, friends and loved ones.

About "HAE and Me"

"HAE and Me" is a comprehensive online community that unites people with HAE of all ages through shared experiences to help them better manage their disease.  

The unbranded website, www.HAEandMe.com, and the "Gen HAE" section for teens and young adults living with HAE, provide targeted information to people with HAE, including:

  • HAE disease background information, including facts about symptoms, causes, pathophysiology, diagnosing, and managing HAE
  • Video and w
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SOURCE ViroPharma Incorporated
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