Navigation Links
Uterine Fibroid Patient Featured on CBS Evening News Has Become an Advocate for MR-Guided Focused Ultrasound
Date:6/22/2011

CHARLOTTESVILLE, Va., June 22, 2011 /PRNewswire/ -- On June 12, 2011, viewers of the CBS Evening News learned about Stephanie Small's gripping story. Suffering from a large uterine fibroid, the 27-year-old was treated last December as part of a MR-guided focused ultrasound clinical trial at the University of Virginia in Charlottesville.

Small says her focused ultrasound treatment changed her life. She experienced symptom relief within a few days and reports that her quality of life has steadily and significantly improved.  "I think focused ultrasound surgery is amazing, and I believe that fears of incisions, scaring, complications and long painful recovery times are now concerns of the past with this new technology," she says.

Small's journey unfolded over many months, from the time she received her diagnosis and was advised to have a myomectomy. Fearful of the risks associated with that treatment, she began searching for other options. Surfing the web for information, she discovered the websites for the Focused Ultrasound Surgery Foundation and its patient support organization, Fibroid Relief. What she learned there proved to be invaluable and convinced her to opt for MR-guided focused ultrasound treatment. She made arrangements to undergo the noninvasive outpatient procedure at a center near her home in eastern Pennsylvania.

However, a major stumbling block quickly surfaced: Small's health insurer refused to cover her focused ultrasound treatment. Determined to proceed, she downloaded the Reimbursement Resource Toolkit from the Fibroid Relief website. A popular resource that has been downloaded 1350 times since its August 2010 debut, the toolkit contains sample letters and tips for appealing a health plan denial.

Faced with steadily increasing pain and disability, Small opted to participate in the UVA study rather than appeal her insurance company's decision. She received two treatments on consecutive days just before Christmas, the second of which was taped by CBS News.

As an expression of her gratitude, Small has become an advocate for both focused ultrasound and patient empowerment, especially among young women like herself. Six weeks after treatment, she returned to Charlottesville for a follow-up visit at UVA and to participate as a panelist at the Focused ultrasound Surgery Foundation's Fibroid Relief at Last event.

More recently, she posted an account of her illness, treatment and recovery on the Fibroid Relief website, which ends with a powerful personal message to others: "Knowledge is power. Educate yourself so you can play a more active role in your own healthcare."

Click here to read Stephanie Small's personal account of her illness, treatment and recovery.

Click here to watch CBS Evening News report, "Ultrasound replaces scalpel for some tumor ops."

About the Focused Ultrasound Surgery Foundation

Driven by the desire to save lives, alleviate suffering and prevent disability, the Focused Ultrasound Surgery Foundation is devoted to advancing one of modern medicine's most promising and game-changing technologies, noninvasive magnetic resonance-guided focused ultrasound (FUS).

Founded in 2006 and based in Charlottesville, Virginia, the Foundation is a high-performance, not-for-profit organization with global reach and an entrepreneurial spirit. To accelerate the availability and reimbursement of FUS treatments, we host symposia and workshops, fund research and fellowships, support the establishment of FUS Centers of Excellence, promote patient awareness and education, and serve as the nexus of a collaborative research network consisting of sites and investigators around the world. Our work is made possible by contributions from individuals, foundations and corporations.  For complete information, visit www.fusfoundation.org.


'/>"/>
SOURCE Focused Ultrasound Surgery Foundation
Copyright©2010 PR Newswire.
All rights reserved

Related medicine technology :

1. Smith & Nephews TRUCLEAR System: A Gold Standard for Removal of Intrauterine Polyps and Fibroids
2. Elbit Imaging Announces InSightecs First Non-Invasive Technology for Treatment of Uterine Fibroids Awarded MHLW Approval in Japan
3. First Non-Invasive Technology for Treatment of Uterine Fibroids Awarded MHLW Approval in Japan
4. Society of Interventional Radiology Applauds Reports Uterine Fibroid Embolization Recommendations
5. FDA Clears ExAblate Fertility Enhancement Study in Women With Uterine Fibroids
6. BiPar Sciences Expands Clinical Development of BSI-201, A Novel PARP Inhibitor, With Phase 2 Trial in Uterine Cancer
7. CeloNova BioSciences Announces Positive Results from European Study of Embozene(TM) Microspheres for Treatment of Uterine Fibroids
8. Alternative Surgeries for California Women Suffering From Fibroids
9. Minimally Invasive Device Approved to Treat Liver Cancer, Fibroids, Tumors, and Bleeding
10. New International Study Shows Women With Symptomatic Fibroids Delaying Treatment Despite Substantial Burden on Quality of Life
11. New Study Finds That Gastric Banding Pays for Itself In Approximately Two Years for Patients With Diabetes and Four Years for Patients Without Diabetes
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/23/2016)... ANGELES , June 23, 2016 ... CAPR ), a biotechnology company focused ... therapeutics, today announced that patient enrollment in its ... in Duchenne) has exceeded 50% of its 24-patient ... enrollment in the third quarter of 2016, and ...
(Date:6/23/2016)... PARK RIDGE, Ill. and INDIANAPOLIS ... caliber of students receiving a Lilly Diabetes Tomorrow,s Leaders ... hands. The 2016 scholarship winners, announced today online at ... refused to let type 1 diabetes stand in the ... Lilly Diabetes has supported the Foundation,s scholarship program since ...
(Date:6/23/2016)... Pa. , June 23, 2016 The ... in an outpatient dialysis facility.  Treatments are usually 3 ... 6 hours per visit, including travel time, equipment preparation ... a patient, but especially grueling for patients who are ... of a skilled nursing and rehabilitation centers for some ...
Breaking Medicine Technology:
(Date:6/25/2016)... ... June 25, 2016 , ... Experts from the American Institutes ... Research Meeting June 26-28, 2016, at the Hynes Convention Center in Boston. , ... advance care planning, healthcare costs and patient and family engagement. , AIR researchers ...
(Date:6/25/2016)... ... 2016 , ... "With 30 hand-drawn hand gesture animations, FCPX users can easily ... of Pixel Film Studios. , ProHand Cartoon’s package transforms over 1,300 hand-drawn pictures ... . Simply select a ProHand generator and drag it above media or text in ...
(Date:6/25/2016)... ... June 25, 2016 , ... ... non-athletes recover from injury. Recently, he has implemented orthobiologic procedures as a method ... —Johnson is one of the first doctors to perform the treatment. Orthobiologics are ...
(Date:6/24/2016)... ... June 24, 2016 , ... A recent article published June 14 ... The article goes on to state that individuals are now more comfortable seeking to ... operations such as calf and cheek reduction. The Los Angeles area medical group, Beverly ...
(Date:6/24/2016)... ... 2016 , ... Marcy was in a crisis. Her son James, eight, was out of control. ... and physically. , “When something upset him, he couldn’t control his emotions,” remembers Marcy. ... rocks at my other children and say he was going to kill them. If ...
Breaking Medicine News(10 mins):