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Shire Leads New Initiative to Reveal Challenges Facing Rare Disease Community
Date:11/19/2012

s include Nicole Boice, founder and CEO, Global Genes | R.A.R.E Project; Dr. Priya S. Kishnani, Division Chief, Medical Genetics, Duke University Medical Center; Tomas Philipson, Daniel Levin professor of public policy studies, The University of Chicago; Alastair Kent, director, Genetic Alliance UK; Dr. Christian J. Hendriksz, Clinical Lead, Adult Inherited Metabolic Disorders, Salford Royal NHS Foundation Trust; and Mike Drummond, professor of health economics, University of York.

Shire Human Genetic Therapies (HGT), the rare disease business of Shire, has over twenty years of experience discovering, developing, manufacturing, and commercializing novel therapies and solutions for rare diseases. The Company has built and invested in a pipeline of innovative products and solutions to treat rare diseases.  The Rare Disease Impact Report will be the first research to go beyond identifying unmet medical needs within the rare disease community.

"At Shire, patients are at the heart of everything we do and we continually strive to provide support for those touched by rare diseases," said Sylvie Gregoire, president, Shire HGT. "We hope the findings from this Rare Disease Impact Report will provide the rare disease community at large with new, unique insights on how best to address the holistic needs of the rare disease community and drive important conversations and innovation.  Shire is delighted to take the lead in bringing this to the attention of all those who can transform the lives of rare disease patients for the better."   

For further information please contact:

Media

Jessica Cotrone (Human Genetic Therapies)

jcotrone@shire.com

+1 781 482 9538

Notes to editors

SHIRE PLC

Shire's strategic goal is to become the leading specialty biopharmaceutical compan
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