Navigation Links
Recording Artist Elliott Yamin to Duet With Singer-Songwriter and Rare Disease Patient Gracie Van Brunt at Global Genes | RARE Project Benefit
Date:9/17/2012

DANA POINT, Calif., Sept. 17, 2012 /PRNewswire-USNewswire/ -- Global Genes | RARE Project (www.globalgenes.org) today announced that recording artist and "American Idol" season 5 finalist Elliott Yamin, will share the stage with Gracie Van Brunt, a young girl battling a rare genetic disease called Shwachman-Diamond Syndrome, when they duet together at the 'RARE Tribute to Champions of Hope' benefit on September 27, 2012, at the Balboa Bay Club & Resort in Newport Beach, CA. 

"Gracie, and the millions of other children battling little known rare and genetic diseases, are true heroes of mine," said Elliott Yamin. "I am honored and humbled to sing with Gracie and inspired each day by her bravery and tenacity."

Gracie will also perform a special song of hope that she wrote, which chronicles her journey as a Shwachman-Diamond Syndrome patient. The rare congenital disease affects the bone marrow, pancreas and skeleton and patients are at risk for experiencing serious and sometimes fatal infections, as well as leukemia, osteoporosis and diabetes.

Guests will also enjoy special musical performances by Faircraft Records/Universal Republic recording artist Chris Mann and singer-songwriter Katrina Parker, both fan favorites and stars of the second season of the NBC hit television show "The Voice."  

In addition to musical performances by Elliott Yamin, Gracie Van Brunt, Chris Mann and Katrina Parker, "Grey's Anatomy" star Jason George will join actors Nestor Serrano (Act of Valor, The Negotiator, The Insider, Secretariat) and Meagan Tandy (Jane By Design, 90210, CSI: NY, Dark Blue) to introduce some of the evening's distinguished honorees including Henri Termeer, Former President and CEO of Genzyme. Mr. Termeer will receive a special Lifetime Achievement Award for his groundbreaking work in developing innovative drugs for rare diseases.

To purchase tickets to the "RARE Tribute to Champions of Hope" benefit visit: http://globalgenes.org/2012Tribute. Interviews are available before the event and onsite at the event with Global Genes | RARE Project executives, parent advocates, celebrity hosts and performers. 

About Global Genes | RARE Project

Global Genes | RARE Project is the leading non-profit organization advocating for the roughly 30 million Americans and approximately 350 million people worldwide who are affected by rare and genetic diseases and disorders. The non-profit organization promotes the needs of the rare and genetic disease community under a unifying symbol of hope - the Blue Denim Genes Ribbon(TM). In the United States, a disease is considered rare if it affects fewer than 200,000 Americans per disease. According to the National Institutes of Health (NIH), there are nearly 7,000 such rare diseases and an estimated 95% do not have a single approved drug treatment.  

Web: http://globalgenes.org/
Twitter: @GlobalGenes
Facebook: http://www.facebook.com/globalgenesproject


'/>"/>
SOURCE The Global Genes Project
Copyright©2012 PR Newswire.
All rights reserved

Related medicine technology :

1. Clinical Trial at Evergreen Healthcare Shows Intestinal Gel Reduces Symptoms of Advanced Parkinsons Disease
2. New post-hoc analyses examined Neupro® effects on pain, depressed mood, apathy and fatigue in patients with Parkinsons disease
3. New Clinical Endocrinology Guidelines Support Lp-PLA2 Measurement For Risk Assessment of Coronary Artery Disease
4. Ultragenyx Announces Phase 1 Results of UX001 in Hereditary Inclusion Body Myopathy (HIBM), a Rare Neuromuscular Disease
5. Chef Spike Mendelsohn Dishes on How to Turn Down the Heat on Acid Reflux Disease
6. New Published Guidelines to Help Physicians Diagnose and Treat Lupus Kidney Disease
7. The ALS Therapy Development Institute Partners with Neurotune to Investigate Potential Treatments for Motor Neuron Disease
8. Rigel Advances Asthma Programs: Two Inhaled Drug Candidates Take Aim at Acute and Chronic Lung Disease
9. Ceregene Parkinsons Disease Study Demonstrates Long-term Neurturin Expression and Enhanced Dopamine Activity 4 Years Following Delivery of CERE-120 (AAV2-neurturin)
10. UCB Proudly Reinforces Long-Standing Commitment to Crohns Disease Community at Digestive Disease Week 2012
11. Receptos to Deliver Scientific Presentation at Digestive Disease Week 2012 about the Therapeutic Role of RPC1063 in Inflammatory Bowel Disease
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/23/2016)... 2016 Research and Markets has announced ... Forecast to 2022" report to their offering. ... the patients with kidney failure, it replaces the function of ... patient,s blood and thus the treatment helps to keep the ... balance. Increasing number of ESRD patients & ...
(Date:6/23/2016)...  In a startling report released today, National Safety Council ... a comprehensive, proven plan to eliminate prescription opioid overdoses. ... states are tackling the worst drug crisis in recorded U.S. history, ... Kentucky , New Mexico , ... the 28 failing states, three – Michigan , ...
(Date:6/23/2016)... 23, 2016 Capricor Therapeutics, ... a biotechnology company focused on the discovery, development ... patient enrollment in its ongoing randomized HOPE-Duchenne clinical ... 50% of its 24-patient target. Capricor expects the ... quarter of 2016, and to report top line ...
Breaking Medicine Technology:
(Date:6/25/2016)... ... , ... Austin residents seeking Mohs surgery services, can now turn to Dr. ... Russell Peckham for medical and surgical dermatology. , Dr. Dorsey brings specialization to include ... in Mohs Micrographic Surgery completed by Dr. Dorsey was under the direction of Glenn ...
(Date:6/25/2016)... ... June 25, 2016 , ... First Choice Emergency Room , ... Sesan Ogunleye, as the Medical Director of its new Mesquite-Samuell Farm facility. , ... our new Mesquite location,” said Dr. James M. Muzzarelli, Executive Medical Director of First ...
(Date:6/25/2016)... ... 25, 2016 , ... On Friday, June 10, Van Mitchell, Secretary of the ... to iHire in recognition of their exemplary accomplishments in worksite health promotion. , The ... Health & Wellness Symposium at the BWI Marriott in Linthicum Heights. iHire was one ...
(Date:6/24/2016)... (PRWEB) , ... June 24, 2016 , ... Those who ... with these feelings, many turn to unhealthy avenues, such as drug or alcohol abuse, ... Marne, Michigan, has released tools for healthy coping following a traumatic event. , Trauma ...
(Date:6/24/2016)... ... June 24, 2016 , ... The Pulmonary Hypertension ... that it will receive two significant new grants to support its work to ... its 25th anniversary by recognizing patients, medical professionals and scientists for their work ...
Breaking Medicine News(10 mins):