Navigation Links
Recording Artist Elliott Yamin to Duet With Singer-Songwriter and Rare Disease Patient Gracie Van Brunt at Global Genes | RARE Project Benefit
Date:9/17/2012

DANA POINT, Calif., Sept. 17, 2012 /PRNewswire-USNewswire/ -- Global Genes | RARE Project (www.globalgenes.org) today announced that recording artist and "American Idol" season 5 finalist Elliott Yamin, will share the stage with Gracie Van Brunt, a young girl battling a rare genetic disease called Shwachman-Diamond Syndrome, when they duet together at the 'RARE Tribute to Champions of Hope' benefit on September 27, 2012, at the Balboa Bay Club & Resort in Newport Beach, CA. 

"Gracie, and the millions of other children battling little known rare and genetic diseases, are true heroes of mine," said Elliott Yamin. "I am honored and humbled to sing with Gracie and inspired each day by her bravery and tenacity."

Gracie will also perform a special song of hope that she wrote, which chronicles her journey as a Shwachman-Diamond Syndrome patient. The rare congenital disease affects the bone marrow, pancreas and skeleton and patients are at risk for experiencing serious and sometimes fatal infections, as well as leukemia, osteoporosis and diabetes.

Guests will also enjoy special musical performances by Faircraft Records/Universal Republic recording artist Chris Mann and singer-songwriter Katrina Parker, both fan favorites and stars of the second season of the NBC hit television show "The Voice."  

In addition to musical performances by Elliott Yamin, Gracie Van Brunt, Chris Mann and Katrina Parker, "Grey's Anatomy" star Jason George will join actors Nestor Serrano (Act of Valor, The Negotiator, The Insider, Secretariat) and Meagan Tandy (Jane By Design, 90210, CSI: NY, Dark Blue) to introduce some of the evening's distinguished honorees including Henri Termeer, Former President and CEO of Genzyme. Mr. Termeer will receive a special Lifetime Achievement Award for his groundbreaking work in developing innovative drugs for rare diseases.
'/>"/>

SOURCE The Global Genes Project
Copyright©2012 PR Newswire.
All rights reserved

Page: 1 2

Related medicine technology :

1. Clinical Trial at Evergreen Healthcare Shows Intestinal Gel Reduces Symptoms of Advanced Parkinsons Disease
2. New post-hoc analyses examined Neupro® effects on pain, depressed mood, apathy and fatigue in patients with Parkinsons disease
3. New Clinical Endocrinology Guidelines Support Lp-PLA2 Measurement For Risk Assessment of Coronary Artery Disease
4. Ultragenyx Announces Phase 1 Results of UX001 in Hereditary Inclusion Body Myopathy (HIBM), a Rare Neuromuscular Disease
5. Chef Spike Mendelsohn Dishes on How to Turn Down the Heat on Acid Reflux Disease
6. New Published Guidelines to Help Physicians Diagnose and Treat Lupus Kidney Disease
7. The ALS Therapy Development Institute Partners with Neurotune to Investigate Potential Treatments for Motor Neuron Disease
8. Rigel Advances Asthma Programs: Two Inhaled Drug Candidates Take Aim at Acute and Chronic Lung Disease
9. Ceregene Parkinsons Disease Study Demonstrates Long-term Neurturin Expression and Enhanced Dopamine Activity 4 Years Following Delivery of CERE-120 (AAV2-neurturin)
10. UCB Proudly Reinforces Long-Standing Commitment to Crohns Disease Community at Digestive Disease Week 2012
11. Receptos to Deliver Scientific Presentation at Digestive Disease Week 2012 about the Therapeutic Role of RPC1063 in Inflammatory Bowel Disease
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:7/29/2015)... July 29, 2015 Insulet Corporation (NASDAQ: PODD ... its OmniPod ® Insulin Management System, today announced ... 30, 2015. The Company also announced that it will ... results and conference call from Thursday, July 30, as ... Revenue Highlights: , Preliminary second ...
(Date:7/29/2015)... 2015  Nektar Therapeutics (Nasdaq: NKTR ) will announce ... 2015 on Wednesday, August 5, 2015, after the close of ... executive officer, will host a conference call to review the ... Time (PT). The press release and a ... through a link that is posted on the home page ...
(Date:7/29/2015)... , July 29, 2015  Ascendis Pharma A/S ... that applies its innovative TransCon technology to address significant ... a conference call on July 30, 2015, at 9:00 ... a Phase 2 pediatric study of once-weekly TransCon Growth ... the top-line results before the market opens on July ...
Breaking Medicine Technology:Insulet Reports Preliminary Second Quarter 2015 Revenue Results 2Insulet Reports Preliminary Second Quarter 2015 Revenue Results 3Insulet Reports Preliminary Second Quarter 2015 Revenue Results 4Insulet Reports Preliminary Second Quarter 2015 Revenue Results 5Nektar to Announce Financial Results for the Second Quarter 2015 on Wednesday, August 5, 2015, After Close of U.S.-Based Financial Markets 2Nektar to Announce Financial Results for the Second Quarter 2015 on Wednesday, August 5, 2015, After Close of U.S.-Based Financial Markets 3Ascendis Pharma A/S to Report Top-line Results from a Phase 2 Pediatric Study of Once-Weekly TransCon Growth Hormone and Host Conference Call on Thursday, July 30, 2015 at 9:00 a.m. Eastern Time 2
... 11, 2012   OTC Markets Group Inc. (OTCQX: ... provides the world,s largest electronic marketplace for broker-dealers to ... (OTCQX: DIAGF; TSX: SDI), a Phase III company ... severe sepsis and septic shock, is now trading on ...
... PRINCETON, N.J., Jan. 11, 2012 NewCardio, Inc., ... announced today that a biotechnology pharmaceutical company, which ... therapeutics for disorders of the central nervous system ... solution, for an upcoming Thorough QT trial. Fully ...
Cached Medicine Technology:Spectral Diagnostics, Inc. Joins OTCQX 2Biotechnology Pharmaceutical Company Selects NewCardio's QTinno for Thorough QT Trial 2Biotechnology Pharmaceutical Company Selects NewCardio's QTinno for Thorough QT Trial 3
(Date:7/30/2015)... ... July 30, 2015 , ... Women's ... Lovetraction Lines ." It's for women interested in improving their love lives using ... course, which officially launched to the public early this morning, has drawn praise ...
(Date:7/30/2015)... NY (PRWEB) , ... July 30, 2015 , ... ... and Sustamine® L-Alanyl-L-Glutamine for people on the go. With no water needed, the ... Chewable as a simple way to get the natural ingredients that may help ...
(Date:7/30/2015)... ... ... In a meaningful ritual intended to symbolize a final farewell to the ... an addiction graveyard. Sharing this with the public comes at a unique time, as ... Hudson (1945-2015) fell in love with the desert when he moved from Redondo Beach ...
(Date:7/30/2015)... FL (PRWEB) , ... July 30, 2015 , ... ... software, TikiLIVE, has worked to protect victims in San Diego, California’s Gaslamp Quarter ... used by Gaslamp Quarter Plaza actively monitor the area for any suspicious ...
(Date:7/30/2015)... ... July 30, 2015 , ... Mullin/Ashley ... recipient of three awards in the Service Industry Advertising Awards 12th annual national ... Transport, KRM Development Corporation and University of Maryland Shore Regional Health. , A ...
Breaking Medicine News(10 mins):Health News:Lovetraction Lines - Review Examining Simone Myers' New Online Course Released 2Health News:Zaca Life Introduces Recovery Chewable Packets with Setria® Glutathione and Sustamine® L-Alanyl-L-Glutamine 2Health News:Zaca Life Introduces Recovery Chewable Packets with Setria® Glutathione and Sustamine® L-Alanyl-L-Glutamine 3Health News:Zaca Life Introduces Recovery Chewable Packets with Setria® Glutathione and Sustamine® L-Alanyl-L-Glutamine 4Health News:Serenity Palms Honors Rocky Hudson, an Advocate of AA and a Beloved Resident of Palm Springs 2Health News:Serenity Palms Honors Rocky Hudson, an Advocate of AA and a Beloved Resident of Palm Springs 3Health News:Eyepartner Software Helps Victims in Gaslamp Quarter Plaza 2Health News:Eyepartner Software Helps Victims in Gaslamp Quarter Plaza 3Health News:Mullin/Ashley Associates Takes Home Wins for Three Clients in the Service Industry Advertising Awards Annual Competition 2Health News:Mullin/Ashley Associates Takes Home Wins for Three Clients in the Service Industry Advertising Awards Annual Competition 3
... employed in dentistry, this method of accelerated tissue healing is showing its ... ... April 14, 2009 -- It was first used by dental surgeons about ... reconstructive surgery. Platelet Rich Plasma (PRP) therapy is today being ...
... Distress (FMD), defined as having 14 or more days in ... not good , is not evenly distributed across the United ... consistently low FMD incidence, as shown in a study published ... of Preventive Medicine . , Combining data from annual large-scale ...
... Angeles Lakers Star Luke Walton Rallies Students to Get Fit ... GrantLOS ANGELES, April 13 Los Angeles Lakers star Luke ... fitness game as part of a new national campaign called ... of a new partnership between the "got milk?" Body By ...
... Community members join The Help Group,s Statewide efforts to ... Help Group, the nation,s largest and most comprehensive ... other special needs , recently launched its annual California ... Autism Awareness Month. Today it is estimated that one ...
... MILWAUKEE, April 13 (Logo: http://www.newscom.com/cgi-bin/prnh/20090303/CG78204LOGO-b ) WHAT: ... will be the first hospital system in ... knee replacement surgery on the Internet. Through the ... running commentary, updates of activities and photos of the ...
... of the drug used to treat chronic myeloid leukemia ... first treated with a drug known as imatinib mesylate. ... becomes resistant to the drug. However, a team of ... Thomas Jefferson University, Philadelphia, has identified a class of ...
Cached Medicine News:Health News:Singapore First in Southeast Asia to Use Novel Treatment for Sports and Musculoskeletal Injuries 2Health News:Singapore First in Southeast Asia to Use Novel Treatment for Sports and Musculoskeletal Injuries 3Health News:Singapore First in Southeast Asia to Use Novel Treatment for Sports and Musculoskeletal Injuries 4Health News:Where you live may affect your state of mind 2Health News:got milk?(R) and the NBA Showcase New National Teen Health and Fitness Initiative at Marina Del Rey Middle School in Los Angeles 2Health News:got milk?(R) and the NBA Showcase New National Teen Health and Fitness Initiative at Marina Del Rey Middle School in Los Angeles 3Health News:got milk?(R) and the NBA Showcase New National Teen Health and Fitness Initiative at Marina Del Rey Middle School in Los Angeles 4Health News:got milk?(R) and the NBA Showcase New National Teen Health and Fitness Initiative at Marina Del Rey Middle School in Los Angeles 5Health News:The Help Group Launches Multifaceted Autism Awareness Campaign 2Health News:Aurora St. Luke's Medical Center to Broadcast First Live Surgery Via Twitter in Wisconsin 2Health News:JCI online early table of contents: April 13, 2009 2Health News:JCI online early table of contents: April 13, 2009 3Health News:JCI online early table of contents: April 13, 2009 4Health News:JCI online early table of contents: April 13, 2009 5Health News:JCI online early table of contents: April 13, 2009 6
The clear choice for surgery, foreign body removal,and other delicate work.,Oculus binocular loupes come in 1.8x magnification with a 30 cm working distance--or 2.5x magnification with a choice ...
Eyeglass Loupe 3x-5x made with precision optical glass. Ideal for any detail work....
... designed for computer operators who require ... placed at different heights and distanced ... Card is printed two sided- black ... and uses two type sizes to ...
Near PT test card/child recog/ playing cards 5 1/2" X 8"....
Medicine Products: