"If it was not for Dr. Chugani and his willingness to listen to us and help our son so quickly, Ben might not be flourishing the way he is today," Emily Kather said. "Today, Ben is a typical – although we say exceptional in our eyes – two-year-old boy. He is a joy and I am grateful every day that we found a knowledgeable and devoted pediatric neurologist when we did."
Dr. Chugani said, in accepting the award, "I am very humbled and honored to receive the IS Hero Award. Infantile Spasms is such a devastating, but treatable disorder that we (physicians) have to go that extra mile to make these children better. What drives me is the emotional despair of the parents once they have read up on the disorder."
"I ask myself what I would do if I were in their situation. We know that we don't always make the children better, but still, the parents know that we have tried, particularly if we make ourselves easily available to them and they know we are there for them. I'd like to thank the Child Neurology Foundation for all of their efforts to increase awareness and understanding of infantile spasms. I'd also like to thank Questcor Pharmaceuticals for the company's support for these initiatives and for their support of research into the underlying causes of IS."
Dr. Chugani will be honored at a special ceremony on Thursday, October 27, at the CNS Annual Meeting. Emily Kather will be in attendance to introduce Dr. Chugani.
Infantile Spasms is a severe, ultra-rare form of epilepsy that affects infants, with onset typically occurring during the first year of life in about 90 percent of cases. IS incidence is estimated at approximately 2,000 new cases in the U.S. per year, which can be classified as an ultra-orphan disease. For comparison, orphan disease designation pertains to diseases that affect fewer than 200,000 people. IS patients experience
|SOURCE Questcor Pharmaceuticals, Inc.|
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