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Parent Project Muscular Dystrophy and Expert Advisory Committee Releases Putting Patients First
Date:4/23/2013

tical sectors. Members include Richard Finkel , MD, Chief, Division of Neurology, Nemours Children's Hospital; Marlene E. Haffner , MD, MPH, CEO of Haffner Associates, LLC; Emil Kakkis, MD, PhD, President, EveryLife Foundation for Rare Diseases; Laurie Letvak , MD, Senior Vice President, Novartis Pharmaceuticals Corporation; H. Lee Sweeney , PhD, Chairman of Physiology, University of Pennsylvania; and Susan L. Weiner , PhD, Founder and Board President, Children's Cause for Cancer Advocacy.

About Parent Project Muscular Dystrophy
Duchenne is a fatal genetic disorder that slowly robs young men of their muscle strength. Parent Project Muscular Dystrophy (PPMD) is the largest most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne muscular dystrophy—our  mission is to end Duchenne.

We invest deeply in treatments for this generation of young men affected by Duchenne and in research that will benefit future generations. We advocate in Washington, DC, and have secured hundreds of millions of dollars in funding. We demand optimal care, and we strengthen, unite, and educate the global Duchenne community.

Everything we do—and everything we have done since our founding in 1994—helps boys with Duchenne live longer, stronger lives. We will not rest until every young man has a treatment to end Duchenne. Go to www.ParentProjectMD.org for more information or to learn how you can support our efforts and help families affected by Duchenne.


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SOURCE Parent Project Muscular Dystrophy
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