Navigation Links
New White Paper from Tuberous Sclerosis Alliance Assesses Visual Field Risks of Vigabatrin
Date:12/5/2013

SILVER SPRING, Md., Dec. 6, 2013 /PRNewswire-USNewswire/ -- A new white paper from the Tuberous Sclerosis Alliance (TS Alliance), entitled "Vigabatrin-Associated Visual Field Loss (VAVFL): What You Need to Know," was released today at the American Epilepsy Society annual meeting in Washington, DC.  The white paper was written by Darcy A. Krueger, MD, PhD, Associate Professor, Clinical Pediatrics and Neurology, Tuberous Sclerosis Clinic, Cincinnati Children's Hospital. Vigabatrin is approved in the United States by the Food and Drug Administration to treat infantile spasms and medically refractory complex partial seizures that are common in tuberous sclerosis complex (TSC).

(Logo: http://photos.prnewswire.com/prnh/20130923/DC79410LOGO)

"Infantile spasms occur in approximately one-third of children with TSC," says TS Alliance President and CEO Kari Luther Rosbeck. "Because vigabatrin is the first-line medication recommended in the recently released TSC Clinical Consensus Guidelines to treat these types of seizures, it was important to address the medication's side effects, which Dr. Krueger has done in this new white paper." 

"The purpose of this white paper is to provide an authoritative report about vigabatrin-associated visual field loss (VAVFL) based on published clinical reports and studies," Dr. Krueger explains. "This report was written for patients and their families and will help in making an informed decision about the use of vigabatrin to treat infantile spasms and/or complex partial epilepsy." The white paper summarizes and critically evaluates what is known about the prevalence of VAVFL following vigabatrin exposure and possible ways to manage any potential retinal toxicity as reported in published, peer-reviewed publications.  

TSC is a multi-system genetic disorder that causes tumors to form in vital organs, primarily the brain, heart, eyes, kidneys, lungs and skin. It's also the leading genetic cause of both autism and epilepsy.  Approximately 50,000 people in the United States suffer from the disease, and it has an estimated incidence of 1 in 6,000 live births.  More than 1 million people worldwide have TSC.

Formed in 1974, the TS Alliance is the only U.S.-based non-profit organization dedicated to finding a cure for TSC while improving the lives of those affected.  For more information, visit www.tsalliance.org or call 800-225-6872.  The white paper, supported by an unrestricted educational grant from Lundbeck, is available for download at http://www.tsalliance.org/documents/Vigabatrin%20Associated%20Visual%20Field%20Loss%20White%20Paper.pdf.  The new Clinical Consensus Guidelines are available at www.tsalliance.org/consensus.

For more information contact:
Jaye D. Isham, Vice President, Communications Strategy
(301) 562-9890, jisham@tsalliance.org


'/>"/>
SOURCE Tuberous Sclerosis Alliance
Copyright©2012 PR Newswire.
All rights reserved

Related medicine technology :

1. Improving Outcomes in the Treatment and Management of Metastatic Colorectal Cancer - International White Paper Launched at European Cancer Congress 2013
2. Automation is Revolutionizing White Cell Differential Analysis; New Whitepaper Details How
3. RxAlly Releases White Paper on Necessity of Personalized Pharmacist Care
4. New White Paper Details What Compounding Pharmacies Must Know to Prepare for FDA Inspections
5. Scott & White Hospital - Round Rock first in Central Texas, one of few nationally to perform breakthrough procedure for acid reflux
6. Disinfectant Qualification Questions are Answered for Sterile Drug Manufacturers in New White Paper
7. TeamHealth White Paper Examines Telemedicine Risks, Risk Management Strategies
8. Scott & White to Open Emergency Hospital in Cedar Park
9. Heraeus Expands Its Venus White Line of Whitening Maintenance and Oral Care Products
10. MEI Pharma Announces Retirement Of Chairman Bryan Williams From Board Of Directors And Appointment Of Christine White As Lead Director
11. White Paper Details Five Things to Consider Before Buying Spiral Bevel Gear Drives
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/24/2016)... 2016   , Study ... overall bowel cleansing and superiority in , ... of the ascending colon ... Norgine B.V. today announced new positive data from the ... bowel preparation) versus standard 2 litre PEG with ascorbate. The study ...
(Date:5/24/2016)... N.J. , May 24, 2016 ... oncology drug development company, today provided an update ... dose escalating clinical trial combining GEN-1, the Company,s ... the treatment of newly-diagnosed patients with advanced ovarian ... interval debulking surgery.  GEN-1 is an IL-12 DNA ...
(Date:5/24/2016)... , May 24, 2016 ... ™ , la première endoprothèse ... cathéters destinés à l,intervention portant sur les ...   OrbusNeich, entreprise mondiale spécialisée ... de changer la vie, a élargi son ...
Breaking Medicine Technology:
(Date:5/25/2016)... York, NY (PRWEB) , ... May 25, 2016 ... ... Medicine and Florida International University (FIU) Herbert Wertheim College of Medicine announced the ... a Medical Doctor Degree and Global Health Certificate from AUA and a Certificate ...
(Date:5/25/2016)... , ... May 25, 2016 , ... Dr. Travis Schwarz ... Plaza at 8618 Mexico Road, O’Fallon, MO 63366. He serves patients of all ages ... cosmetic treatments . Dr. Schwarz’s success is reflected in the superior patient reviews that ...
(Date:5/25/2016)... (PRWEB) , ... May 25, 2016 , ... Today Omega ... launch of 11 innovative workshops and training opportunities in the growing field ... unique needs of individuals who are dealing with specific health issues—including injuries, illnesses, and ...
(Date:5/25/2016)... ... May 25, 2016 , ... Cheryl Bowker of Bowker Insurance Group ... Dick McKenna Good Hands Legacy Award. McKenna ran one of Allstate’s most successful agencies ... inspire all those who knew him. The award named for him is not given ...
(Date:5/25/2016)... ... 2016 , ... The Global Wellness Summit (GWS) today announced that its 2016 ... Europe, a continent that pioneered the medical/wellness concept for the world. , Delegates to ... wellness, including Henri Chenot, Founder of the Chenot Group, which operates wellness centers around ...
Breaking Medicine News(10 mins):