Navigation Links
New Guidelines Released for Diagnosis, Surveillance and Management of Rare Genetic Disease Called Tuberous Sclerosis Complex
Date:9/23/2013

SILVER SPRING, Md., Sept. 23, 2013 /PRNewswire-USNewswire/ -- Today, the Tuberous Sclerosis Alliance (TS Alliance) formally announced newly updated clinical consensus guidelines for the diagnosis, surveillance and management of tuberous sclerosis complex (TSC). To communicate the recommendations to healthcare professionals, the October issue of Pediatric Neurology includes two peer-reviewed papers detailing the new guidelines – one entitled "Tuberous Sclerosis Complex Diagnostic Criteria Update: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference" and the other, "Tuberous Sclerosis Complex Surveillance and Management: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference." 

(Logo: http://photos.prnewswire.com/prnh/20130923/DC79410LOGO )

Darcy A. Krueger, MD, PhD, of Cincinnati Children's Hospital Medical Center, and Hope Northrup, MD, of The University of Texas Medical School at Houston, wrote both papers in Pediatric Neurology.  Drs. Krueger and Northrup served as co-chairs of the TS Alliance's 2012 International TSC Consensus Conference, which involved 79 TSC experts from 14 countries to develop the new guidelines. 

Because TSC involves multiple systems in the body, the conference included specialists in genetics, neurology, epilepsy, cardiology, neurodevelopment and behavior, dermatology, dentistry, nephrology, pulmonology, ophthalmology, gastroenterology, endocrinology and others.  Steven L. Roberds, PhD, Chief Scientific Officer of the TS Alliance, led the conference's implementation and said, "It was truly impressive to witness all these compassionate experts from varying fields work together so effectively toward the
'/>"/>

SOURCE Tuberous Sclerosis Alliance
Copyright©2012 PR Newswire.
All rights reserved

Page: 1 2 3

Related medicine technology :

1. Alliance for Rational Use of NSAIDs Calls for Appropriate Use of NSAIDs in Wake of New FDA Guidelines on Opioid Use
2. Multiple International Breast Cancer Guidelines Confirm Use of Agendia Tests for Prognostic, Predictive Information in Cancer Treatment Decisions
3. EECP Therapy Receives Class lla Recommendation in European Society of Cardiology Guidelines for the Management of Stable Coronary Artery Disease
4. EAACI Publishes the First European Guidelines for food-Allergy Sufferers
5. Sinovac Beijing Obtains China GMP Certificate Under the New GMP Guidelines
6. Quest Diagnostics Launches Dementia Diagnostic Panel, First in Industry for Treatable Forms of Cognitive Impairment Based on Medical Guidelines
7. AVMA updates euthanasia guidelines
8. Nelson Laboratories to Present Cleaning Validation Guidelines at BIOMEDevice San Jose
9. Colorcon, Inc. Quality by Design (QbD) Expertise Beneficial in Compliance with New FDA Guidelines
10. Denmarks National Telemedicine Action Plan To Be Built On Continua Health Alliance Design Guidelines For Personal Connected Health Devices
11. The American Society of Interventional Pain Physicians Announces Guidelines for Responsible Prescribing of Pain-Killers for Chronic Non-Cancer Pain
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/19/2014)... , Deutschland, October 19, 2014 ... gefragt. Das Problem dabei ist, dass ... mit der Kompetenz zu teilen. Es ... deshalb freuen wir uns umso mehr, dass es ... ihre Gepflogenheiten bei Kühlketten aufzuschreiben - mit einem ...
(Date:10/17/2014)... THOUSAND OAKS, Calif. , Oct. 17, 2014 /PRNewswire/ ... appointment of R. Sanders Williams , M.D., president ... L. Mahley Distinguished Professor.  "We are ... the Amgen Board," said Robert A. Bradway , ... deep and distinguished experience in academic medicine and his ...
(Date:10/17/2014)... 2014 ... has announced the addition of the  ... Automated External Defibrillators (AED) Market"  report ... ,The report North American Automated External ... of devices based upon following sub-segments ...
Breaking Medicine Technology:Vergleichsbericht zu Pharma-Kühlketten und CRT 2Amgen Announces Appointment Of R. Sanders Williams To Board Of Directors 2Amgen Announces Appointment Of R. Sanders Williams To Board Of Directors 3Micro Market Monitor : North American Automated External Defibrillators (AED) Market 2
... Symmetry Medical Inc. (NYSE: SMA ), a leading ... and other medical markets, announced today that it will release ... 3, 2009 before the market opens on Thursday, November 5, ... 8:00 a.m. ET on Thursday, November 5, 2009. , ...
... Ikaria Holdings, Inc. today announced that it has been ... by the New Jersey Business & Industry Association (NJBIA), ... Ikaria earned the award based on criteria including ... creation of new jobs. , "We are delighted that ...
Cached Medicine Technology:Symmetry Medical to Report Third Quarter 2009 Financial Results on November 5, 2009 2Ikaria Receives Award for Excellence by New Jersey Business & Industry Association 2
(Date:10/20/2014)... It’s hard to imagine what it’s like to live without ... world, it’s a reality. And while new shoes are considered ... walk barefoot on rocky terrain or sewage-lined streets just to ... , Buckner International's Shoes for Orphan Souls ... to encourage support for Air1 and while also providing new ...
(Date:10/19/2014)... 20, 2014 Hastings and Hastings, a ... of service throughout the greater Phoenix area and across ... with regard to catastrophic automobile accidents. Statistics have indicated ... and throughout Arizona. As such, Hastings and Hastings has ... representation for those who have been injured through no ...
(Date:10/19/2014)... Texas (PRWEB) October 20, 2014 ... development for Partial Seizure, complete with comparative analysis ... mechanism of action (MoA), route of administration (RoA) ... featured news and press releases. It also reviews ... Partial Seizure and special features on late-stage and ...
(Date:10/19/2014)... SweetDressy.com, a professional company of women’s ... for long evening dresses . All the company’s ... the current discount is up to 66 percent off. ... in the fashion field. Its dress specialists are striving ... various parts of the world. All the company’s items ...
(Date:10/19/2014)... that causes inflammation in the spinal joints and ... ancient Egyptian royal families. Now a new study ... journal of the American College of Rheumatology (ACR), ... condition called diffuse idiopathic skeletal hyperostosis (DISH) in ... 20th Dynasties. , Ankylosing spondylitis is a ...
Breaking Medicine News(10 mins):Health News:Buckner Shoes for Orphan Souls® Garners Support from Air1 Radio 2Health News:Buckner Shoes for Orphan Souls® Garners Support from Air1 Radio 3Health News:Hastings And Hastings Reports Record Demand In 2014 For Legal Representation With Regard To Catastrophic Automobile Accidents 2Health News:Hastings And Hastings Reports Record Demand In 2014 For Legal Representation With Regard To Catastrophic Automobile Accidents 3Health News:Partial Seizure Therapeutic Pipeline Market Review H2 2014 in a New Report Available at RnRMarketResearch.com 2Health News:Partial Seizure Therapeutic Pipeline Market Review H2 2014 in a New Report Available at RnRMarketResearch.com 3Health News:Partial Seizure Therapeutic Pipeline Market Review H2 2014 in a New Report Available at RnRMarketResearch.com 4Health News:Promotion For Beautiful Long Evening Dresses Launched By SweetDressy.com 2Health News:Mummy remains refute antiquity of ankylosing spondylitis 2
... March 17 CUREXO Technology Corporation, pioneer in ... products for orthopaedic applications, which is focused on ... they received the NSAI (National Standards of Ireland) ... I.S. EN ISO 13485:2003.CUREXO Technology Company has been ...
... 17 FRIED LICE: "You don,t have to be such a ... manufacturing company, is set to introduce the latest in delousing technology. ... Disease Control "CDC" website. The guidelines are clear in stating: "to ... of 130 degrees." Lice Safe was able to adapt a ...
... finds, , , TUESDAY, March 17 (HealthDay News) -- ... that black male children may have a greater risk ... survey included 8,203 people, from infants to seniors who ... issues with eggs, milk, peanuts and shrimp. The ...
... awarded a project to provide interactive, high-quality medical video for 28 ... will be demonstrating the solutions being implemented at WFUBMC at the ... West Building, Chicago, Illinois. Rivulet is in Booth #2428. , ... ...
... - New $2.1 Million SBIR Grant Extends NHGRI ... Whole Genome Imaging and Analysis Platform -PHILADELPHIA, March ... nanoscale platforms for biomedical research, molecular diagnostics and ... II grant from the National Human Genome Research ...
... Germgard Lighting LLC, a New Jersey-based, early-phase ... revolutionary, ultra-fast, bare-hand sanitation capability. Germgard,s technology will ... by curtailing infections resulting from stays in hospitals.Hospital ... their families, and undermines the financial well-being of ...
Cached Medicine News:Health News:CUREXO Technology Corporation Receives Quality Certificate 2Health News:Lice Safe Introduces Licen Tool 2Health News:Wake Forest Baptist and Rivulet Connect New Operating Rooms with Interactive Video 2Health News:Wake Forest Baptist and Rivulet Connect New Operating Rooms with Interactive Video 3Health News:BioNanomatrix Awarded Phase II NIH Grant to Support Development of Its Single-Molecule Nanoscale Whole Genome Analyzer 2Health News:Disruptive Hand Sanitation Product to Save Healthcare Industry Billions 2
... Para 5X is a whole blood hematology ... 60C+, 80 and 120, and the Coulter ... offers a unique white cell differential, positioning ... algorithms on the systems. The product offers ...
... blood assayed hematology control, offers complete assay ... available with the Coulter GENS, STKS, MAXM ... open-vial stability, 105-day closed-vial stability and is ... The 4.0ml pierceable cap vial is compatible ...
Abiomed introduces its new intra-aortic balloon (IAB); an easy-to-insert, minimally invasive technology designed to enhance blood flow to the heart and other organs for patients with diminished heart...
Diagnosoft HARP is designed for rapid analysis of tagged cardiac MR images using the HARP technology, which is packaged into an intuitive, easy-to-use graphic user interface....
Medicine Products: