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New Book From Siren Interactive Reveals How Parents of Children With Rare Diseases Play Major Roles in Diagnosis and Treatment
Date:2/22/2011

but must realize that conventional ways of building relationships are ineffective with this group.

"This community is dominated by mothers who are fighting for their children's lives, in an environment offering scarce information and resources. They are unusually driven, and the Internet has made them unusually empowered. They are avid researchers who become experts in their children's diseases. They are critical analysts and ardent advocates who explore all treatments and fight for their children's right to access them. Pharma marketers must re-think how they approach this community and explore new ways of meeting their needs."

"Uncommon Challenges; Shared Journeys" is available through Amazon.com for $16.00 per copy or through Siren Interactive for bulk orders. All profits will be distributed among the rare disease groups represented in the book. In recognition of Rare Disease Day, an annual observance that falls on the last day of February, Siren Interactive will provide complimentary copies of the anthology to each of the company's business partners.  

For review purposes, media may access a pdf of the book here. Additionally, a hard copy is available on request.

About Siren InteractiveSiren Interactive is a relationship marketing agency focused on understanding the behaviors of patients and physicians dealing with chronic rare diseases. Because of this expertise, the agency can drive new patient starts and life-long adherence to therapies for its clients. For more information about the company or "Uncommon Challenges; Shared Journeys," visit www.sireninteractive.com.CONTACT:Julie Laitin (212) 286-2424

Cynthia Amorese (908) 665-8072Email: jlaitin@julielaitin.com

Email: camorese@com
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SOURCE Siren Interactive
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