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Natalie Douglas, CEO von Idis, tritt Vorstand von Global Genes | RARE Project bei
Date:2/11/2013

l mehr Einfluss zu gewinnen", erklärte Nicole Boice , Gründerin/Präsidentin von Global Genes | RARE Project.

„Die Lösung der Versorgungsprobleme bei seltenen Krankheiten ist eine besondere Herausforderung", merkte Douglas an. „Es ist verdienstvoll, dass Global Genes | RARE Project diesen Patienten und ihren Familien eine Stimme verliehen hat. Ich freue mich, dem Vorstand einer Organisation beizutreten, die sich so stark für eine unterversorgte Population einsetzt, und darauf, zu dieser wichtigen Aufgabe beizutragen."

Der Beitritt von Ms. Douglas zum Vorstand von Global Genes | RARE Project steht am Anfang einer ganzen Reihe solcher Ankündigungen in diesem Jahr, da die wachsende Organisation beabsichtigt, weitere Vorstandsmitglieder mit wichtigen Fachkenntnissen zu verpflichten.

„Unsere Organisation steht am Beginn einer wichtigen Wachstumsphase; angesichts der gestiegenen Erwartungen möchte Global Genes | RARE Project auch weiterhin sicherstellen, mit Rat und Tat für Interessenverbände von Patienten mit seltenen Krankheiten zur Verfügung zu stehen", erklärte Boice.

Informationen zu Global Genes | RARE Project
Global Genes | RARE Project ist ein führender globaler Interessenverband für Patienten mit seltenen und genetisch bedingten Krankheiten. Global Genes | RARE Project will eine vereinte globale Gemeinschaft für seltene und genetisch bedingte Krankheiten aufbauen und das Leben der Patienten positiv beeinflussen, indem Programme zur Aufklärung, Stärkung und Unterstützung der Patienten, Interessenverbände, Stiftungen und anderer Organisationen angeboten werden, die sich mit seltenen Krankheiten befassen. www.globalgenes.org 

Informationen zu Idis
Idis verfügt über 25 Jahre Erfahrung in der Zusammenarbeit mit Pharma- und Biote
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