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NORD to Honor Rare Disease Innovators
Date:5/11/2010

the NIH, there are nearly 7,000 such diseases.  Many are serious, life-threatening and chronic.  Most rare diseases have no treatment.  

The 2010 NORD honorees are:

PARTNERS IN PROGRESS AWARD

Sami I. Said, MD

Distinguished Professor, State University of New York

Dr. Said is being honored for distinction as a dedicated researcher, caring physician, distinguished professor, and supportive partner to the patient community.

LIFETIME ACHIEVEMENT AWARD

Roscoe O. Brady, MD

Scientist Emeritus, National Institutes of Health

Dr. Brady is being honored for his pioneering research on lipid storage diseases and particularly for establishing the first effective treatment — enzyme replacement therapy — for Gaucher disease, followed by breakthrough work in related areas.

ABBEY S. MEYERS LEADERSHIP AWARD

EURORDIS (European Organization for Rare Diseases)

This award is presented each year to a patient organization for outstanding achievement in encouraging collaboration within the rare disease community.  EURORDIS is being honored for establishing World Rare Disease Day.

CORPORATE AWARDS

NORD will honor the following companies for new treatments brought to market within the past 12 months:

Acorda Therapeutics for development of the drug Ampyra™ (dalfampridine) to improve walking ability in people with m
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SOURCE National Organization for Rare Disorders (NORD)
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