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NORD and DIA to Host Conference on Rare Diseases and Orphan Products
Date:9/14/2011

Dunoyer, Global Head, Rare Diseases, GlaxoSmithKline
  • Lynne Fahey McGrath, MPH, PhD, Vice President, North American Head Drug Regulatory Affairs, Novartis Oncology Corporation
  • Dennis Jackman, Senior VP, Public Affairs, CSL Behring
  • Margaret Anderson, Executive Director, FasterCures
  • Jonathan S. Leff, AB, MBA, Managing Director, Warburg Pincus
  • Jeff Allen, PhD, Executive Director, Friends of Cancer Research

  • While the conference is co-hosted by NORD and DIA, collaborators also include Duke University School of Medicine, the European Rare Diseases Organization (EURORDIS), FDA and NIH.  Topics will include:

    • How federal policies affect patients with rare diseases
    • NIH grant and FDA approval requirements
    • How health care reform will impact rare disease patients
    • Venture philanthropy
    • Clinical trial designs and case examples
    • The economics of investing in orphan products

    Information about the conference is available on the NORD website (www.rarediseases.org) and on a special site for online registration hosted by DIA: (http://www.diahome.org/DIAHOME/FlagshipMeetings/Home.aspx?meetingid=26189.

    The conference will take place at the Omni Shoreham Hotel in Washington, D.C.   For additional information, contact NORD or DIA.


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    SOURCE National Organization for Rare Disorder (NORD)
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