Navigation Links
Medunik Canada is pleased to announce the launch of NORD Founder, Abbey Meyers' memoir "Orphan Drugs: A Global Crusade"
Date:2/16/2016

BLAINVILLE, QC, Feb 16, 2016 /PRNewswire/ - Medunik Canada, a Canadian pharmaceutical company specialized in orphan drugs, is pleased to announce the launch of Orphan Drugs: A Global Crusade, the memoir of Abbey Meyers, founder and past President of the National Organization for Rare Disorders (NORD). In anticipation of Rare Disease Day on February 29th, Medunik Canada would like to bring to light the hard work and commitment of orphan drug crusaders, like Ms. Meyers.

(Photo: http://photos.prnewswire.com/prnh/20160208/330654)

This book of Ms. Meyers' memoirs is her effort to document the issues that led to enactment of the "Orphan Drug Act of 1983" in the United States. The struggle of patient organizations, medical researchers and the American public stood as a model for the rest of the rare disease world. Eventually many industrialized countries enacted their own orphan drug laws which spurred extraordinary scientific and industrial progress that resulted in new treatments and cures for millions of rare disease patients throughout the world.

Ms. Meyers stated that, "One day, I wish everyone dealing with the pain and misery of the 7,000 rare disorders will have access to a treatment that will alleviate their symptoms. The reason I wrote this book was to show that individuals did not have the political power to solve this problem, but working together rare disease patients represent millions of people who can be a formidable political force. And the accomplishments of patient led charities in the USA served as a model for the rest of the industrialized world.  Together we became the "Global Crusade" for people with rare disorders."

Medunik Canada's unique mission to make orphan drugs available to patients living with rare diseases through strategic alliances with international companies, is an interest we share with Ms. Meyers. We are pleased to support in the launch of Ms. Meyers' memoirs.

"Abbey Meyers has inspired change and made an immense impact on the availability of orphan drugs around the world," said Éric Gervais, Executive Vice-President of Medunik Canada. "For the people suffering from rare diseases, bringing these drugs to the market makes a huge difference, not only in the quality of life, but in life or death. Abbey's memoirs elegantly walks readers through her fight to invoke change in this underserved space."

For more information on Orphan Drugs: A Global Crusade, Abbey Meyers and to download the book in its entirety please visit: www.AbbeySMeyers.com.  Alternatively, a paperback version of the book can be ordered from Amazon.com

About Medunik Canada
Medunik Canada's vision is to improve the health and quality of life of Canadians living with rare diseases. Medunik Canada was created in December 2009 with the mission to make orphan drugs available to Canadians through turn-key partnerships with international companies interested in making their products available to Canadian patients in need of otherwise unavailable treatments. Medunik Canada's main therapeutic areas among others is Urea Cycle Disorders (UCD). For more information, visit www.medunikcanada.com.

 


'/>"/>
SOURCE Medunik Inc.
Copyright©2016 PR Newswire.
All rights reserved


Related medicine technology :

1. Medunik Canada announces Health Canada Priority Review of PHEBURANE© indicated for the treatment of Urea Cycle Disorders (UCD)
2. POZEN Inc. Announces Stockholder Approval of its Transaction with Tribute Pharmaceuticals Canada Inc.
3. SomnoMed acquires Strong Dental, further expands operations in Canada
4. MolecuLight announces Health Canada Approval for the MolecuLight i:X, its first diagnostic medical imaging device for wound care.
5. Global Wound Care Markets (Twelve Country Analysis: Germany, France, Italy, United Kingdom, United States, Japan, Canada, China, India, Brazil, Australia, South Korea)
6. NOWDiagnostics Inc. Acquires Canadas ZBx Corporation
7. Imprimis Pharmaceuticals Signs License Agreement to Bring Proprietary Compounded Ophthalmic Formulations to Ophthalmologists in Canada
8. Relmada Therapeutics Announces Filing of Clinical Trial Application in Canada for Multiple Ascending Dose Study with Promising NMDA Receptor Antagonist d-Methadone
9. LabStyle Innovations Dario Diabetes Management Solution Now Reimbursed Through a Majority of Medical Plans in Canada
10. Statement on Supreme Court of Canada Decision in R. v. Smith
11. LabStyle Innovations Dario Diabetes Management Solution Launches in Canada
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/19/2019)... ... June 19, 2019 , ... One is never too old to make dreams ... Home (LAJH). Known as a destination for Los Angeles-area seniors, LAJH has an environment ... and Mildred Moccio, it is also a point of embarkation: a place from which ...
(Date:6/19/2019)... ... June 19, 2019 , ... A new survey by The ... $376 per month on healthcare costs. If that doesn’t sound like enough of ... per month, one-in-five survey participants reported spending $1,000 per month or more. The ...
(Date:6/18/2019)... , ... June 18, 2019 , ... ... emergency medicine and hospital medicine management services, are pleased to announce the acquisition ... in Longview, Texas. , LEMA’s 34 physicians and 9 advanced practice clinicians ...
Breaking Medicine Technology:
(Date:6/24/2019)... ... 2019 , ... Cibo Vita, Inc., makers of Nature’s Garden, NutriPops, Chocolate Orchard ... indulgence snack line at the 65th annual Summer Fancy Food Show, taking place at ... booth #5721. , The company’s expansive product portfolio features a variety of trail ...
(Date:6/20/2019)... ... , ... Access Healthcare, one of the largest providers of ... appointed as Senior Vice President of Client Services. Angel brings more than 20 ... high performing teams, and driving revenue growth for healthcare companies. , In this ...
(Date:6/19/2019)... (PRWEB) , ... June 19, ... ... from non-governmental organizations, academia, faith-based organizations, private institutions, media, and government joined ... DC to make commitments to improve universal access to water, sanitation, and ...
(Date:6/19/2019)... , ... June 19, 2019 , ... A legal-medical ... the United States, has filed class action lawsuits in 34 of the 48 ... in the class actions are an array of pharmaceutical manufacturers, distributors and retailers, all ...
(Date:6/19/2019)... ... June 19, 2019 , ... Ovation® Fertility scientists have been invited ... Reproduction and Embryology (ESHRE) Annual Meeting in Vienna, June 23-26, 2019. , Ovation’s ... consideration for both the Basic Science Award for Oral Presentation and the Fertility Society ...
Breaking Medicine News(10 mins):