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Idiopathic pulmonary fibrosis (IPF) community emphasizes the power of united support for patients during IPF World Week 2013
Date:9/19/2013

BRISBANE, Calif., Sept. 20, 2013 /PRNewswire/ -- This year's IPF World Week (September 21-29) sees healthcare professionals, patient advocacy groups, people living with idiopathic pulmonary fibrosis (IPF), who have an estimated median survival time of two to five years,i and their families calling for an integrated approach to further strengthen the national and international network of people working to support patients with this fatal orphan lung disease.  The fundamental aim is to lessen patients' isolation and fear by demonstrating that there is a growing community of support.

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This year's campaign theme of the awareness week, which was founded only two years ago in order to address the issue that people with the disease felt overlooked, is 'Breath of Hope'.  In Europe, around one hundred initiatives will take place in IPF centers of excellence, which will involve IPF experts, patients and wider communities.  In the United States many initiatives are taking place during IPF World Week, some of which have extended throughout the month of September, driven by two leading patient associations, the Coalition for Pulmonary Fibrosis (CPF) and the Pulmonary Fibrosis Foundation (PFF).

"IPF is a serious and rare illness and by being a rare and poorly understood disease, patients often feel secluded and alone.  There is a European network of IPF patient advocacy groups working to support patients and their families. We must bring hope to those who live with IPF and show that their needs are now being better recognized. This year, images representing the 'Breath of Hope' campaign were selected by European, American and Canadian IPF associations through an international public photo and video competition. The two winning images represent support across generat
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