Navigation Links
Global Genes Project Announces 'Wear That You Care™' Denim Awareness Campaign for Rare Disease Day 2011
Date:1/26/2011

th rare diseases and to educate the public on how genetics can influence their health or lead to chronic or life threatening diseases."

Since the launch of the Global Genes Project and Hope – It's In Our Genes™ awareness campaign in February 2010, more than 150 leading corporations, organizations, hospitals and nonprofits have signed up to support rare disease awareness and educational efforts. Organizations that recently joined the effort include: Angelman Syndrome Foundation, Batten Disease Support and Research Association (BDSRA), Biotechnology Industry Organization (BIO), Children's Hospital Research Center Oakland, Healthline, Illumina, Medpedia, MLD Foundation, National Society of Genetic Counselors, Pfizer, Progeria Research Foundation and RemedyMD. The Global Genes Project has also added new supporters from China, Serbia and Turkey.  

"Many rare disease foundations are starting to understand our core message -- we're all in the same boat when it comes to drug development for our individual rare diseases and there are few options in sight for millions of people," added Boice. "It's time to band together to make our voices heard and to push for major legislative initiatives that provide novel incentives to researchers and industry so they will invest the time and capital needed to develop new treatments."

A number of "Wear That You Care" denim awareness events are currently being organized around the world and hundreds of volunteers, coordinated by the Global Genes Project, are working on a multitude of outreach activities leading up to Rare Disease Day 2011.  Some of the events and activities in progress for Rare Disease Day 2011 are as follows:

  • The National Institutes of Health Office of Rare Diseases Research (ORDR), in association with the Global Genes Project, is encouraging all attendees to wear their favorite pair of jeans to their day-long Rare Disease Day 2011 celebra
    '/>"/>

SOURCE The Global Genes Project
Copyright©2010 PR Newswire.
All rights reserved

Page: 1 2 3 4

Related medicine technology :

1. Reportlinker Adds Dental Implants and Biomaterials - Global Pipeline Analysis, Opportunity Assessment and Market Forecasts to 2016
2. Reportlinker Adds Cardiac Rhythm Management (CRM) Devices - Global Pipeline Analysis, Opportunity Assessment and Market Forecasts to 2016
3. Reportlinker Adds Glucose Monitoring Systems - Global Pipeline Analysis, Opportunity Assessment and Market Forecasts to 2016
4. Reportlinker Adds Magnetic Resonance Imaging (MRI) Systems - Global Pipeline Analysis, Opportunity Assessment and Market Forecasts to 2016
5. Reportlinker Adds OTC Pharmaceuticals: Global Industry Almanac
6. Intrasphere Technologies to Help Develop and Deliver Global Partner Training for the Oracle(R) Argus Safety Suite Through Oracle PartnerNetwork
7. Accuray Elevated to NASDAQ Global Select Market
8. Sinovacs Stock Exchange Listing Moves to NASDAQ Global Select Market
9. Stereotaxis Announces Global Initial Training Site at University of Chicago
10. Generex Announces Extension of Global Medical Direct Acquisition Closing Date
11. WomanCare Global Highlights the Unmet Need of 215 Million Women on Famous CBS Super Screen in Times Square
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/4/2015)... -- Xencor, Inc. (NASDAQ: XNCR ), a clinical-stage ... treatment of autoimmune diseases, asthma and allergic diseases, ... first quarter ended March 31, 2015 and provided a ... equity offering in February, which raised net proceeds ... strong financial position to advance our lead pipeline ...
(Date:5/4/2015)... 4, 2015  AcelRx Pharmaceuticals, Inc. (Nasdaq: ... the development and commercialization of innovative therapies for ... provided a regulatory update on Zalviso and reported ... 31, 2015. Zalviso Regulatory UpdateOn April ... Division of Anesthesia, Analgesia, and Addiction Products (DAAAP ...
(Date:5/4/2015)... 2015 Transportation Insight, a leading global ... client, DSI Systems Inc., are featured in the ... in the cover story emphasizing technology as the ... editorial illustrates how Transportation Insight implemented its ... growth and success of DSI,s complex supply chain. ...
Breaking Medicine Technology:Xencor Reports First Quarter 2015 Financial and Operating Results 2Xencor Reports First Quarter 2015 Financial and Operating Results 3Xencor Reports First Quarter 2015 Financial and Operating Results 4Xencor Reports First Quarter 2015 Financial and Operating Results 5Xencor Reports First Quarter 2015 Financial and Operating Results 6Xencor Reports First Quarter 2015 Financial and Operating Results 7Xencor Reports First Quarter 2015 Financial and Operating Results 8AcelRx Pharmaceuticals Provides Zalviso Regulatory Update and Reports First Quarter 2015 Financial Results 2AcelRx Pharmaceuticals Provides Zalviso Regulatory Update and Reports First Quarter 2015 Financial Results 3AcelRx Pharmaceuticals Provides Zalviso Regulatory Update and Reports First Quarter 2015 Financial Results 4AcelRx Pharmaceuticals Provides Zalviso Regulatory Update and Reports First Quarter 2015 Financial Results 5AcelRx Pharmaceuticals Provides Zalviso Regulatory Update and Reports First Quarter 2015 Financial Results 6AcelRx Pharmaceuticals Provides Zalviso Regulatory Update and Reports First Quarter 2015 Financial Results 7AcelRx Pharmaceuticals Provides Zalviso Regulatory Update and Reports First Quarter 2015 Financial Results 8Transportation Insight's Latest Enterprise Logistics Technology Highlighted in Inbound Logistics Magazine 2Transportation Insight's Latest Enterprise Logistics Technology Highlighted in Inbound Logistics Magazine 3
... is pleased to announce the addition of Suzie Williams , CP as ... Regional Clinical Manager.   , , ... http://www.newscom.com/cgi-bin/prnh/20100427/DA94114 ) , , , ... Suzie will be joining us as we were not only impressed by her ...
... & Reed Global Executive Search, a growing recruiting firm with offices worldwide, ... of Managing Director, Biopharmaceutical Life Sciences, effective April 15, 2010 . ... "Dave has outstanding ... recognize how important it is for our clients to work with a ...
Cached Medicine Technology:Suzie Williams, CP Joins Orthocare Innovations as Clinical Services Manager 2Kincannon & Reed Names David G. Jensen as Managing Director, Biopharma Life Sciences 2
(Date:5/4/2015)... City, MO (PRWEB) May 04, 2015 ... vice president and chief physician executive, and William C. ... have received and accepted personal invitations from the Secretary ... National Security Forum (NSF) at the Air War College, ... is to expose influential citizens to senior U.S. and ...
(Date:5/4/2015)... (PRWEB) May 04, 2015 The ... Group today launched a new initiative at UC ... next generation of physicians committed to advancing Latino ... Ser Medicos, or Preparing Students to Be Physicians, ... that will provide scholarships, mentorship and internship opportunities, ...
(Date:5/4/2015)... (PRWEB) May 04, 2015 Takeda Pharmaceuticals ... billion to settle thousands of Actos lawsuits ( http://www.theactoslawsuitcenter.com/ ... increases the risk that a patient will develop bladder ... 28th, if 95% of those eligible for the Actos ... 9,000 bladder cancer cases currently pending in courts around ...
(Date:5/4/2015)... (PRWEB) May 04, 2015 McNeil ... programs, announces the expansion of coverage for its ... leading provider of industry-tailored insurance and proactive risk management ... Company, we are dedicated to providing our customers with ... their many evolving needs. We are excited to launch ...
(Date:5/4/2015)... 04, 2015 Johnson & Wales University (JWU) ... and science academic center on Wednesday, April 22. , Johnson ... land made available by the re-alignment of Interstate-195. JWU’s new ... Friendship and Chestnut streets in Providence, is scheduled to be ... parcel of land the university purchased in 2012. , “It ...
Breaking Medicine News(10 mins):Health News:Saint Luke’s Health System Leadership Selected to Attend National Security Forum 2Health News:New UC Davis Program Targets Next Generation of Physicians to Advance Latino Health 2Health News:New UC Davis Program Targets Next Generation of Physicians to Advance Latino Health 3Health News:New UC Davis Program Targets Next Generation of Physicians to Advance Latino Health 4Health News:New UC Davis Program Targets Next Generation of Physicians to Advance Latino Health 5Health News:Actos Lawsuit Settlement: Takeda Pharmaceutical Co. to Pay As Much As $2.4 Billion to Resolve Claims Alleging Actos Causes Bladder Cancer 2Health News:Actos Lawsuit Settlement: Takeda Pharmaceutical Co. to Pay As Much As $2.4 Billion to Resolve Claims Alleging Actos Causes Bladder Cancer 3Health News:Insurance Leader McNeil & Company Expands Coverage for Emergency Services Insurance Program (ESIP), Launches Enhancements to Property and Casualty Insurance Package 2Health News:Insurance Leader McNeil & Company Expands Coverage for Emergency Services Insurance Program (ESIP), Launches Enhancements to Property and Casualty Insurance Package 3Health News:Johnson & Wales University “Breaks Ground” On New $40 Million Engineering and Science Academic Center 2Health News:Johnson & Wales University “Breaks Ground” On New $40 Million Engineering and Science Academic Center 3
... Ph.D. shares pioneering research with counselors June 6; ... Thanks to a Ph.D. with the,last name ... counseling,sessions including a horse can be more beneficial ... ground-breaking research with other,mental health professionals during her ...
... for the skull projected to climb at double-digit rates, ... according to Millennium Research Group, ... (MRG) US Markets for Craniomaxillofacial (CMF) Devices 2008 report,the plate ... million,in 2007 to nearly $300 million in 2012, driven in ...
... 22 Menstrual migraine, a condition,that affects ... a new supplement to OBG,Management. "Integrating menstrual ... between hormone fluctuation and,migraine, as well as ... Biologic and genetic factors in the pathogenesis ...
... and BREASTCANCER.ORG founder, in,open letter to Congress today about ,Breast Cancer ... ... H.R. 758, WASHINGTON, May 22 "Mandatory drive-through,mastectomies is ... complications," says Dr. Marisa Weiss, a,leading breast oncologist and Founder and ...
... of Rochester Reports SPY Accurately Detects Renal Tumors in the ... ... 22 /PRNewswire-FirstCall/ - Novadaq(R) Technologies Inc.,(TSX: NDQ), a developer of real-time imaging ... results of a clinical study,of the SPY(R) Intra-operative Imaging System in urology ...
... With the ... Internet Users, PARIS, May 22 Publicis ... full-service digital marketing,agency, EmporioAsia. Effective immediately, the agency ... Vincent Kobler heading the renamed,agency. Operating alongside Arc ...
Cached Medicine News:Health News:Equine Partners in Counseling (EPIC) Training Is Changing the Face of Mental Health 2Health News:Craniomaxillofacial Plate & Screw Market To Grow to Almost $300 Million by 2012 2Health News:CME Publication Tackles a Problem that is a Real Headache for Women 2Health News:Drive-Through Mastectomies Threaten Patients' Lives 2Health News:Novadaq's SPY System was Topic of Best Poster in Scientific Session at AUA 2Health News:Novadaq's SPY System was Topic of Best Poster in Scientific Session at AUA 3Health News:Publicis Groupe Acquires EmporioAsia, Leading Digital Agency in China 2Health News:Publicis Groupe Acquires EmporioAsia, Leading Digital Agency in China 3
... is a national reference laboratory and a ... development. ARUP offers an extensive test menu ... in clinical and anatomic pathology. Owned by ... include more than half of the nation's ...
... a national reference laboratory and a worldwide ... ARUP offers an extensive test menu of ... clinical and anatomic pathology. Owned by the ... more than half of the nation's university ...
... is a national reference laboratory and a ... development. ARUP offers an extensive test menu ... in clinical and anatomic pathology. Owned by ... include more than half of the nation's ...
... Laboratories is a national reference laboratory and ... and development. ARUP offers an extensive test ... tests in clinical and anatomic pathology. Owned ... clients include more than half of the ...
Medicine Products: