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Global Genes Project Announces 'Wear That You Care™' Denim Awareness Campaign for Rare Disease Day 2011
Date:1/26/2011

th rare diseases and to educate the public on how genetics can influence their health or lead to chronic or life threatening diseases."

Since the launch of the Global Genes Project and Hope – It's In Our Genes™ awareness campaign in February 2010, more than 150 leading corporations, organizations, hospitals and nonprofits have signed up to support rare disease awareness and educational efforts. Organizations that recently joined the effort include: Angelman Syndrome Foundation, Batten Disease Support and Research Association (BDSRA), Biotechnology Industry Organization (BIO), Children's Hospital Research Center Oakland, Healthline, Illumina, Medpedia, MLD Foundation, National Society of Genetic Counselors, Pfizer, Progeria Research Foundation and RemedyMD. The Global Genes Project has also added new supporters from China, Serbia and Turkey.  

"Many rare disease foundations are starting to understand our core message -- we're all in the same boat when it comes to drug development for our individual rare diseases and there are few options in sight for millions of people," added Boice. "It's time to band together to make our voices heard and to push for major legislative initiatives that provide novel incentives to researchers and industry so they will invest the time and capital needed to develop new treatments."

A number of "Wear That You Care" denim awareness events are currently being organized around the world and hundreds of volunteers, coordinated by the Global Genes Project, are working on a multitude of outreach activities leading up to Rare Disease Day 2011.  Some of the events and activities in progress for Rare Disease Day 2011 are as follows:

  • The National Institutes of Health Office of Rare Diseases Research (ORDR), in association with the Global Genes Project, is encouraging all attendees to wear their favorite pair of jeans to their day-long Rare Disease Day 2011 celebra
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SOURCE The Global Genes Project
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