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Global Genes Project Announces 'Wear That You Care™' Denim Awareness Campaign for Rare Disease Day 2011
Date:1/26/2011

DANA POINT, Calif., Jan. 26, 2011 /PRNewswire/ -- Monday, February 28, 2011, is the 4th annual Rare Disease Day — a day when people worldwide will show their support for the millions of people suffering from rare diseases and disorders.  According to statistics from the National Institutes of Health (NIH), there are approximately 7000 different rare diseases that together affect over 25 million Americans and about 250 million people globally.  It is estimated that 80% of rare diseases are caused by gene defects, and according to the Kakkis EveryLife Foundation, 95% of rare diseases do not have any FDA approved drug treatments.  Since the Orphan Drug Act was enacted 28 years ago in January 1983, only 352 new drugs have been approved by the FDA for all rare diseases combined despite incentives by the federal government.

The Global Genes Project (www.globalgenesproject.org), a leading nonprofit rare disease advocacy organization, today announced the "Wear That You Care™" Denim Campaign in support of Rare Disease Day 2011 and to call attention to the global drug development crisis facing millions of people afflicted with rare diseases.  The "Wear That You Care™" Denim campaign is simple — all across the world people can participate in supporting the rare disease movement on Rare Disease Day 2011 by wearing a Denim Jeans Ribbon™ and their favorite pair of jeans — also known as vaqueros, cowboybuksers, niuzaiku, farmernadrag and dungarees in other countries.

"Spurring development of new treatments for thousands of rare diseases is one of the most pressing health care challenges we face in the world today," said Nicole Boice, Founder, Global Genes Project.  "The goal of our effort is to create synergy among all constituents committed to finding treatments for the millions of people living wi
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SOURCE The Global Genes Project
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