At the same time, the Harlem town hall will delve into the persistent mistrust of clinical trials and research institutions among African Americans and other minority populations due to the Tuskegee Trial and other past situations of abuse. Forum participants will also focus on improving how information about clinical trials is provided to participants, such as revising overly complicated consent forms, many of which can be in excess of eight pages in length and require a 10th grade reading level.
To address these issues, the Harlem town hall is expected to attract 150-200 community leaders, politicians, disease advocates, patients, and members of the research community as well as many of the foremost medical experts in health disparities from New York and across the country. Among the participants will be: John M. Palmer, Ph.D., Executive Director of the Harlem Hospital Center; Glendon C. Henry, MD, Medical Director of the Harlem Hospital Center; Linda Fleischer, MPH, Senior Director of the Health Communication and Public Health Program at the Fox Chase Cancer Center; Patricia K. Bradley, Ph.D., RN, Assistant Professor at the Villanova University College of Nursing; Angelina Esparza, BA, BSN, RN, Director of Survivorship, Information and Quality of Life for American Cancer Society; Hildy Dillon, Senior Vice President of Patient Services at the Leukemia & Lymphoma Society; Margo Michaels, Executive Director and President of the Education Network to Advance Cancer Clinical Trials (ENACCT); Robert L. Comis, MD, President and Chairman of the Coalition of National Cancer Cooperative Groups; Gayla B. Herschler, MSN, RNC, CCRP, Past President of the Society of Clinical Research Associates; and Venus Gines, M.A., Founder of Dia de la Mujer Latina(TM) Inc.
Also invited to participate are: New York State Health Commissioner
|SOURCE Eliminating Disparities in Clinical Trials|
Copyright©2008 PR Newswire.
All rights reserved