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Cystic Fibrosis Foundation Reports Upward Trend for Key Health Outcomes
Date:1/28/2008

ovement in the nutritional status of children, ranked by body mass index (BMI). In fact, median BMI rose from the 38th percentile to the 46th percentile between 1999 and 2006 -- bringing these children to nearly normal growth levels.

-- Enhanced improvement in lung function for adults and children between 1999 and 2006. Improved lung function leads to added years of life.

-- Median predicted age of survival has doubled in the last 25 years. It rose eight years between 1999 and 2006 -- from age 29 to age 37.

"I am delighted, and deeply impressed, by the progress and courage of the CF Foundation. This organization is an important model for many others engaged in quality improvement," said Donald Berwick, M.D., president and CEO of the Institute for Healthcare Improvement, an independent not-for-profit organization helping to lead the improvement of health care throughout the world.

The data provided online comes from the CF Foundation's Patient Registry, a database of health-related information from 24,000 people with CF who have agreed to have their data entered for research and quality improvement purposes.

About the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the leading organization in the United States devoted to curing and controlling cystic fibrosis. Headquartered in Bethesda, Md., the Foundation has more than 80 chapters and branch offices throughout the country and supports and accredits a nationwide network of more than 115 care centers, which provide vital treatments and other CF resources to patients and families. For more information, visit http://www.cff.org.

Contact: Laurie Fink, Director of Media Relations: 301-841-2602


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SOURCE Cystic Fibrosis Foundation
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