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Coalition for Pulmonary Fibrosis Responds to News of Further Review of Pirfenidone By FDA
Date:5/4/2010

ulmonary Fibrosis (PF), but the deadly lung disease characterized by progressive and massive scarring in the lungs affects 128,000 Americans and there are no proven causes and no cure.  
  • The average life expectancy from diagnosis to death is just three years.  About 48,000 people will be diagnosed this year.  
  • PF Prevalence is increasing – 156% in the past seven years.  The need has never been greater for increased awareness, education, advocacy and research.
  • The Coalition for Pulmonary Fibrosis (CPF) is the preeminent patient and physician resource for Pulmonary Fibrosis.  [www.coalitionforpf.org, 888-222-8541]

  • The CPF has long advocated on behalf of researchers and patients for accelerated research efforts to treat and cure PF, both in terms of drug development efforts by the pharmaceutical industry and research funded by the National Institutes of Health (NIH). With more than 23,000 members nationwide, the CPF is the largest nonprofit organization in the U.S. dedicated to advocating for those with PF.

    The CPF is available to help members of the media with background information on PF, to provide comment on the delay of the drug and to provide interviews with CPF leaders and with patients affected by the disease.  Additional information and background on the CPF and the disease is available on the CPF website at www.coalitionforpf.org.  The CPF funds research prima
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    SOURCE Coalition for Pulmonary Fibrosis
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