Navigation Links
Child Neurology Foundation Announces the Launch of Infantilespasmsinfo.org
Date:10/12/2009

BLOOMINGTON, Minn., Oct. 12 /PRNewswire/ -- The Child Neurology Foundation (CNF) today announced the launch of a new educational website centered on infantile spasms (IS). The website, www.infantilespasmsinfo.org, is an educational resource developed by the CNF as one of the key components of Infantile Spasms Awareness Week.

Earlier this year, the CNF announced that the first annual IS Awareness Week will place this week in conjunction with the Child Neurology Society (CNS) Annual Meeting in Louisville, Kentucky, October 14-17, 2009. The goal of IS Awareness Week is to provide pediatricians, child neurologists, parents and caregivers with objective educational tools which will increase awareness and understanding of infantile spasms. It is widely recognized that early and aggressive treatment of IS can impact the prognosis of infants diagnosed with IS.

In addition to the launch of www.infantilespasmsinfo.org, the CNF is making available a new educational brochure and DVD intended to help parents, caregivers and physicians to better understand IS. The brochure includes an overview of IS, the challenges of diagnosis and a discussion of available treatment options; the DVD emphasizes the emotional impact of IS. The DVD includes stories of real IS patients and commentary from some of the nation's leading experts in the treatment of IS. All of these valuable resources help to paint the picture of a rare disease whose prognosis can be impacted when diagnosed and treated early and aggressively.

"We are very excited about all of the important activities surrounding IS Awareness Week," said John Stone, executive director of the Child Neurology Foundation. "Furthermore, we believe that our new website, brochure and DVD will serve as important, objective educational resources that will last well beyond the duration of IS Awareness Week."

"Due to the rare nature of infantile spasms, physicians have not had ready access to unbiased educational materials for parents and caregivers of infants with IS," said Lawrence Brown, M.D., Associate Professor of Neurology and Pediatrics at Children's Hospital of Philadelphia. "This is an important step that we are taking this week to shed light on a condition that needs to be better understood by the child neurology community, pediatricians and caregivers."

Funding for Infantile Spasms Awareness Week and the educational materials created by CNF was provided by Questcor Pharmaceuticals via an unrestricted educational grant. Questcor did not have any involvement regarding the content of the information in the brochure, DVD or the website.

About Infantile Spasms

Infantile spasms (a.k.a. West Syndrome) is a severe, ultra-rare form of epilepsy that typically begins in infancy. It is estimated that there are fewer than 2,000 new cases of IS in the United States each year, giving IS orphan disease designation. Infantile spasms typically occur in the first year of life, often beginning between three to six months of age. Infantile spasms is characterized by head drops with associated outstretched arms. (These spasms have also been described as nodding, salaam seizures, and jackknife seizures.) Often, in the beginning, the attacks are brief, infrequent and not typical, so it is quite common for the diagnosis to be delayed. Frequently, due to the pattern of the attacks and the cry that a child gives during or after an attack, the attacks are initially thought to be due to colic or gastric distress.

About the Child Neurology Foundation

Founded in October 2000, the Child Neurology Foundation was created as the outreach and philanthropic arm of the Child Neurology Society. Members of the CNS include more than 1,300 child neurologists from the United States, Canada, as well as more than 30 other countries around the world.

The Foundation's mission is to advocate for children and adolescents with neurologic and developmental disorders; fund neurologic research of young investigators; promote awareness of career opportunities in child neurology; provide public, professional, and patient education programs; and support the activities and mission of the CNS.

For more information on the CNF, please visit www.childneurologyfoundation.org.

    For More Information:
    Alanna Peer
    952-641-4466
    apeer@childneurologyfoundation.org

SOURCE Child Neurology Foundation


'/>"/>
SOURCE Child Neurology Foundation
Copyright©2009 PR Newswire.
All rights reserved

Related medicine technology :

1. Study Suggests High-Dose Fish Oil May Significantly Improve Behavior in Children with ADHD
2. DEFLUX(R) Significantly Reduces Urinary Tract Infections in Children With Vesicoureteral Reflux
3. Quest Diagnostics Introduces ClariSure(TM) Test for Identifying Chromosome Abnormalities Associated With 85 Developmental Disorders in Children
4. Norditropin(R) Approved for Treatment of Children with Short Stature Associated with Turner Syndrome
5. Norditropin(R) Approved for Treatment of Children with Short Stature Associated with Turner Syndrome
6. Sanofi Pasteur Receives FDA Approval of Meningococcal Vaccine for Children
7. Obesity-Related Hormone is Higher in Children with Down Syndrome
8. Obesity Common in Children with Heart Disease
9. New Risk Factor for Heart Disease Identified in Very Young Children, According to Study at American Heart Association Scientific Sessions
10. Childhood Influenza Immunization Coalition Encourages Vaccination Throughout the Influenza Season
11. Health Experts and Families Encourage Annual Childhood Flu Vaccination to Reduce Flu-Related Illnesses and Deaths in Children
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/8/2016)... Respiratory Devices - Medical Devices Pipeline ... sector report, " Respiratory Devices - Medical Devices ... Respiratory Devices currently in pipeline stage. The ... with comparative analysis of the products at various ... involved in the pipeline product development. It also ...
(Date:2/8/2016)... -- Aesthetic Devices - Medical Devices Pipeline Assessment, 2015 ... Devices - Medical Devices Pipeline Assessment, 2015" provides an ... This report is prepared using data sourced ... team of industry experts. *Note: Certain sections in ... the availability and relevance of data in relation to ...
(Date:2/8/2016)... Ohio , Feb. 8, 2016 ... introduce the PW Series Solvent Recycling Systems, specifically ... offers full integration with new and existing vapor ... integration produces consistently-fresh solvent through continuous recycling and ... --> --> Precision ...
Breaking Medicine Technology:
(Date:2/8/2016)... , ... February 08, 2016 , ... ... IN metro area, has selected the latest beneficiary of their ongoing community enrichment ... to preventing bullying in area schools. Donations are now being accepted at: ...
(Date:2/8/2016)... Pekin, IL (PRWEB) , ... February 08, 2016 ... ... debilitating conditions that co-occur frequently. While a significant number of women and men ... PTSD, not the trauma itself, that best predicts the development of an eating ...
(Date:2/8/2016)... ... 08, 2016 , ... TopConsumerReviews.com recently awarded their highest five-star rating to a ... derived from a cluster of melanin when exposed to sunlight. Although most moles are ... lifetime of embarrassment. Historically, mole removal has involved a painful, often expensive ...
(Date:2/7/2016)... Clarkston, Metamora, Michigan (PRWEB) , ... February 07, ... ... correct pelvic organ prolapse with the latest techniques and the most minimally invasive ... for pelvic organ prolapse, particularly after menopause. Other risk factors include surgery to ...
(Date:2/6/2016)... San Rafael, CA (PRWEB) , ... February 06, 2016 , ... ... 2016 Youth Ultimate Coaching Conference (YUCC) . This event brings together top non-profit leaders, ... is “Gender Equity and Girls Ultimate”. Valerio Iani, Bay Area Disc Program Director of ...
Breaking Medicine News(10 mins):