Navigation Links
April is National Primary Immunodeficiency Awareness Month

TOWSON, Md., April 1, 2013 /PRNewswire/ -- Approximately 250,000 people are diagnosed with primary immunodeficiency diseases in the United States, but thousands more go undetected and untreated. These diseases are chronic illnesses caused by hereditary or genetic defects in the immune system in which part of the body's immune system is missing or does not function properly.

April is National Primary Immunodeficiency Awareness Month, a time when the Immune Deficiency Foundation (IDF) works to educate the public about the symptoms of these diseases and what resources are available for patients.

Founded in 1980, IDF is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

There are more than 185 different primary immunodeficiency diseases, and they affect people differently. These diseases are not contagious. For some, the body fails to produce any or enough antibodies to fight infection, while for others; the cellular defenses against infection fail to work properly. Throughout their lives, people with primary immunodeficiencies are more susceptible to infections, endure recurrent health problems and often develop serious and debilitating illnesses.

"Our National Awareness Month is an important opportunity for our organization to educate and inform the public about primary immunodeficiency diseases, which hopefully leads to early diagnosis and appropriate treatment for people who are suffering from persistent infections, but have not yet been diagnosed," said Marcia Boyle , IDF President & Founder, who founded the organization more than three decades ago after her then infant son, John, was diagnosed with the disease.

"April is a time when we mobilize our supporters and patients to raise awareness in their own communities through grassroots outreach and by contacting the local media," she added. "It is amazing to see how patients sharing their individual stories each April results in a significant number of new diagnoses of primary immunodeficiency diseases and leads to people getting the help they need."

The month culminates with IDF joining international patient organizations to mark World PI Week (April 22-29, 2013), a global campaign, which aims to raise awareness and improve diagnosis and treatment of primary immunodeficiency diseases.

Is It Just An Infection?
One of the key message points IDF works to communicate during National Primary Immunodeficiency Awareness Month is the importance of evaluating infections to determine if it is something out of the ordinary, a potential sign of a primary immunodeficiency disease.

People should be suspicious of an infection if it is:

Severe – requires hospitalization or intravenous antibiotics 
Persistent – won't completely clear up or clears slowly 
Unusual – caused by an uncommon organism 
Recurrent – keeps coming back 
Runs in the Family – others in your family have a similar susceptibility to infection

If people have infections that match any of these descriptions, they are advised to consult their physician to check for the possibility of a primary immunodeficiency disease.

People with primary immunodeficiencies are more susceptible to infections and health problems that lead to serious and debilitating diseases. Patients can live long, healthy, normal lives, but early diagnosis and proper medical care are an essential first step.

About The Immune Deficiency Foundation

The Immune Deficiency Foundation, founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

There are approximately 250,000 people who have been diagnosed with a primary immunodeficiency disease in the U.S. These individuals often find it difficult to receive specialized healthcare, proper diagnosis and treatment. Individuals affected by primary immunodeficiency diseases also experience difficulties financing their healthcare, finding educational materials on the disease and locating others with whom to share their experiences. IDF helps individuals overcome these difficulties so they can live healthy and productive lives. The constant presence of IDF assures patients, their families and their medical caretakers that there is a place to turn for help. To learn more about IDF, visit or call 800.296.4433.






SOURCE Immune Deficiency Foundation
Copyright©2012 PR Newswire.
All rights reserved

Related medicine technology :

1. MedNet Solutions To Participate In Multiple Clinical Research Conferences In April 2013
2. Vasomedical to Report Fourth Quarter and Year End 2012 Results on April 1, 2013
3. StemCONN 2013 Stem Cell Symposium April 3
4. Medisafe 1 Technologies Announces the Ex-Dividend Date on April 30 2013, Record Date on May 3 2013 and the Payment Date on May 6 2013
5. Registration now open for StemCONN 2013 stem cell symposium April 3, 2013 in New Haven, CT
6. Two Top Notch Cadaver Workshops Offered by joimax® in April
7. Austen BioInnovation Institute in Akron Attracts Nationally Known Speakers For Conference on Value-driven Engineering, April 23-24
8. Cell Therapeutics, Inc. (CTI) to Report First Quarter Financial Results on April 20
9. Cellular Dynamics International Opens Facility in California, Leasing Space from the Buck Institute to Derive and Bank Human Induced Pluripotent Stem Cells
10. International Isotopes Inc. Announces 2012 Year End Financial Results
11. Max Neeman International Adds to Existing Six Sigma, SOP Training
Post Your Comments:
(Date:11/30/2015)... Wash. , Nov. 30, 2015  Precision ... Post-Processing services, is pleased to announce a dramatic ... medical imaging services. Building on its ISO-9001:2008 certification ... and implemented comprehensive Core Lab protocols and procedures. ... variety of research activities.  Their Core Lab services ...
(Date:11/30/2015)... , November 30, 2015 Mexico Healthcare ... and Life Sciences Report 2015 . --> Pharmaboardroom releases ... . Latin America , a country of ... , a country of over 122 million people. --> ... healthcare, pharmaceuticals, or life sciences insights into the second largest pharma ...
(Date:11/30/2015)... TEL AVIV, Israel , November 30, 2015 /PRNewswire/ ... EMITF ) ("Elbit" or the "Company") announced today that it ... Ministry of Food and Drug Safety (MFDS) has approved ... behavioral disorders. --> --> ... presenting a non-invasive treatment alternative that combines two technologies: ...
Breaking Medicine Technology:
(Date:11/30/2015)... ... November 30, 2015 , ... Workstation ... more than 30 HealthPostures’ dealers located throughout the United States, is OneStop Ergonomics. ... of corporate, industrial, manufacturing and government workers and organizational leaders that are introduced ...
(Date:11/30/2015)... ... November 30, 2015 , ... World Patent ... Unstoppable Swappables, a household invention that provides an economical and easy way of ... and is growing at 2.6%," says Scott Cooper, CEO and Creative Director of ...
(Date:11/30/2015)... ... November 30, 2015 , ... CTI Group (Holdings) ... empower organizations through communication analytics, announced today that their Proteus® VoIP QMS solution ... service quality. , Proteus® VoIP QMS (Quality Management System) does this ...
(Date:11/29/2015)... ... November 29, 2015 , ... ... Institute of Ultrasound in Medicine! , AIUM ultrasound practice accreditation is a ... or exceed nationally recognized standards in the performance and interpretation of diagnostic ...
(Date:11/29/2015)... ... November 30, 2015 , ... The Cyber Monday deal is a deep 40% or more ... time to get gifts for the skin care lover in your circle. Each Christmas, ... . This year, the 3 serums are staples: Collagen, Retinol and Hyaluronic Serums. , Stocking ...
Breaking Medicine News(10 mins):