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7,000 Bracelets For Hope™ - A Rare Disease Awareness Campaign
Date:11/1/2010

develop drugs for small markets of individuals with rare diseases, statistics from the FDA show that over the past 27 years only 352 new drugs have been brought to market to treat tens of millions of people suffering from approximately 7,000 distinct rare conditions. According to recent data released by pharmaceutical giant GlaxoSmithKline, less than 10% of patients with rare diseases are currently being treated worldwide.

"We expect our blue denim inspired cause bracelets to help create recognition surrounding the immense challenges facing the global rare disease community and the importance of developing new drugs for patients," added Boice. "It's time to 'Care about Rare' and show support for this social concern because the economic impact on society is incalculable. With over 15 million children in the United States afflicted with chronic rare diseases, finding new treatments should be a top national priority."

Volunteers To Make Handcrafted Cause Bracelets for Rare Disease Families

The 7,000 Bracelets for Hope™ awareness campaign will be ongoing through February 2011 and will culminate around World Rare Disease Day, a globally recognized day of support for the approximately 250 million people affected by rare disease.

"There are millions of children and families battling rare diseases that do not have foundations to support their awareness efforts or the funding required to propel research forward to fuel new drug development," added Boice. "The 7,000 Bracelets for Hope™ campaign is a way to let rare disease families know they are not forgotten and is an excellent opportunity for jewelry designers, artists, crafters, church groups and children to donate bracelets and show support for this neglected community."

The Global Genes Project website provides detailed information related to submitting and receiving one of the 7,000 Bracelets for Hope™ designs. Individuals and companies interested in participa
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SOURCE Children's Rare Disease Network; The Global Genes Project
Copyright©2010 PR Newswire.
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