Navigation Links
7,000 Bracelets For Hope™ - A Rare Disease Awareness Campaign
Date:11/1/2010

DANA POINT, Calif., Nov. 1, 2010 /PRNewswire-USNewswire/ -- The Global Genes Project (www.globalgenesproject.org), a non-profit advocacy organization that aims to raise awareness about the prevalence of rare diseases worldwide, today launched the 7,000 Bracelets for Hope™ campaign. The 7,000 Bracelets for Hope™ campaign is designed to draw attention to an estimated 7,000 different chronic, life-threatening and fatal rare diseases and disorders affecting approximately 30 million Americans and millions more globally.

The 7,000 Bracelets for Hope™ awareness campaign is designed around a denim blue jeans theme and the color blue which is associated with health, healing and faith. The vast majority of the 7,000 rare diseases identified by the National Institutes of Health (NIH) are caused by gene defects.

"Cause bracelets are widely available for breast cancer and heart disease but there has never been a unifying symbol, color or bracelet that represents the rare disease community worldwide," said Nicole Boice, founder, Global Genes Project. "Since launching the 7,000 Bracelets for Hope™ campaign a few weeks ago, we have already received unique bracelet designs made from cut strips of recycled blue jeans as well as vintage blue glass and crystal beads. The creativity from volunteers is truly inspiring!"

A Global Crisis - Only 352 Rare Disease Drugs Developed Over Past 27 Years

In January 1983, Congress passed the Orphan Drug Act to encourage pharmaceutical and biotechnology companies to develop drugs for rare diseases that have small patient populations. In the United States, rare diseases are defined as affecting fewer than 200,000 individuals per rare disease and prevalence varies greatly, from as few as 300 for a rare enzyme deficiency to just under 200,000 for cancer of the thyroid gland.

Despite market incentives put in place to induce companies to
'/>"/>

SOURCE Children's Rare Disease Network; The Global Genes Project
Copyright©2010 PR Newswire.
All rights reserved

Page: 1 2 3

Related medicine technology :

1. Smart Sense(TM) From RF Technologies Upgrades Safe Place(R) Bracelets Using Industry-Leading Infant Security Technology, Fit and Comfort
2. Sixty-One Percent of Newly Diagnosed Parkinsons Disease Patients Do Not Receive Any Drug Treatment in the First Year of Diagnosis
3. Kosans Motilin Receptor Agonist, Licensed to Pfizer, Enters Phase 1 Clinical Trial in Gastroesophageal Reflux Disease
4. Avicena Scientific Collaborator Advances Program for Using Energy Enhancing Molecules to Treat Neuromuscular Diseases
5. ImmuneRegen BioSciences, Inc. Demonstrates Radilex(TM) Increases Disease-Fighting White Blood Cells
6. Upstream Biosciences Acquires Innovative Platform Technology and Drug Candidates for Tropical Parasitic Diseases
7. Baxter and The Alzheimers Disease Cooperative Study Group to Pursue a Phase III Study of Gammagard Liquid in Patients With Alzheimers Disease
8. Four Analyses of Three-Year Clinical Data Suggest CYPHER(R) Sirolimus-Eluting Coronary Stent May Provide Alternative to Surgery for Patients with Multivessel Disease
9. Peregrine Researchers Report Data Showing Bavituximabs Potential to Shrink Human Prostate Tumors in Model of Relapsed Disease
10. Public Forum to Discuss Addiction as a Treatable Disease and Highlight National Alcohol and Drug Addiction Recovery Month
11. K-State Researchers Bringing Expertise to Kansas City Symposium on Disease and National Security
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:9/18/2014)...   3D Systems   (NYSE: DDD ) ... , a new robotic surgery skills and procedural training simulator, ... ERUS exhibition in Amsterdam, The Netherlands ... minimally invasive surgery represents a growing portion of overall surgical ... for robotic surgery has increased, and it is expected that ...
(Date:9/18/2014)...  Neurotrope, Inc. (OTCQB: NTRP) today announced the appointment ... the Company,s Board of Directors, effective September 12, 2014. ... the Board of seven members. Dr. Altstiel will also ... and a member of the Audit and Compensation Committees ... Scientific Advisory Board, a position he has held since ...
(Date:9/18/2014)... , Sept. 18, 2014 Australian biomarker discovery ... US trial of its MiStat™ prostate cancer screening test, ... regulatory approval upon completion. Minomic,s proprietary MiStat™ ... presence of a proprietary biomarker known as the MIL-38 ... prostate cancer cells. Researchers at 11 ...
Breaking Medicine Technology:3D Systems Introduces New Simbionix Robotics Training Platform 23D Systems Introduces New Simbionix Robotics Training Platform 3Larry D. Altstiel, M.D., Ph.D. Joins Neurotrope Board of Directors 2Larry D. Altstiel, M.D., Ph.D. Joins Neurotrope Board of Directors 3Larry D. Altstiel, M.D., Ph.D. Joins Neurotrope Board of Directors 4Minomic Launches US Pilot Study of MiStat(TM) Novel Prostate Cancer Screening Technology 2
... EATONTOWN, N.J. , Jan. 14 Osteotech, Inc. (Nasdaq: ... products for regenerative healing, today reported preliminary unaudited revenue for the ... $24.6 million for the same period in 2008.  During ... revenue from sales of its new innovative products all currently in ...
... and NORTH BRUNSWICK, N.J. , Jan. 14 ... that they have achieved the initial milestone of a research ... vitro test for potential allergic reactions to substances that could ... "Allergy Test on a Chip™," is intended to comprise a ...
Cached Medicine Technology:Osteotech Announces Preliminary Fourth Quarter 2009 Revenue 2Osteotech Announces Preliminary Fourth Quarter 2009 Revenue 3Osteotech Announces Preliminary Fourth Quarter 2009 Revenue 4L'OREAL and Hurel Corporation Announce R&D Collaboration to Develop a Non-Animal Alternative, Microfluidic Biochip 2L'OREAL and Hurel Corporation Announce R&D Collaboration to Develop a Non-Animal Alternative, Microfluidic Biochip 3
(Date:9/18/2014)... September 18, 2014 Companies in the ... carbon dioxide, selling it to downstream industries in either ... carbon dioxide are food and beverage manufacturers. Food producers ... fruits, vegetables or pizzas. The gas is also used ... the compound to carbonate soft drinks, beer and other ...
(Date:9/18/2014)... supplements of selenium or vitamin E don,t seem ... men, a new study indicates. Previous animal research ... cataracts. To investigate this further, William Christen, from Brigham ... and his colleagues examined data from a randomized, placebo-controlled ... initially designed to study prevention of prostate cancer. ...
(Date:9/18/2014)... TayganPoint Consulting Group, a leading ... and co-founder John Cassimatis was named as one ... 2014, recognizing the region’s top healthcare and life ... of the year. , The Innovation Awards celebrate ... continue to shape the medical industry in Greater ...
(Date:9/18/2014)... (PRWEB) September 18, 2014 Stealth ... and wellness advocate, and Frank Davis, founder of ... Whole-food Nutrition, are pleased to announce the new ... to make delicious, nutrition-packed meals using Activz whole-food ... the next step in the Stealth Health ...
(Date:9/18/2014)... expect to pay higher employee contributions for their health ... officers about the impact of the Patient Protection and ... conducted by the Darla Moore School of Business at ... Patrick Wright, a professor in strategic human resource management, ... Officers. The survey is distributed to more than 560 ...
Breaking Medicine News(10 mins):Health News:Carbon Dioxide Production in the US Industry Market Research Report Now Available from IBISWorld 2Health News:Carbon Dioxide Production in the US Industry Market Research Report Now Available from IBISWorld 3Health News:Vitamin E, Selenium Supplements Don't Seem to Prevent Cataracts 2Health News:TayganPoint Executive Receives Prestigious Award from Philadelphia Business Journal 2Health News:Montel Williams and Frank Davis Announce New Whole-Food Nutrition Recipe Book, The Simple Scoop, at Natural Products Expo East In Baltimore 2Health News:Montel Williams and Frank Davis Announce New Whole-Food Nutrition Recipe Book, The Simple Scoop, at Natural Products Expo East In Baltimore 3Health News:Survey: Fortune 500 employees can expect to pay more for health insurance 2Health News:Survey: Fortune 500 employees can expect to pay more for health insurance 3
... director of chemical and food safety programs with Pew Health ... response to the introduction of the Food Safety Modernization Act ... , "In the midst of an ongoing peanut product recall, ... not be more timely. The FSMA contains key improvements that ...
... The Greater Baltimore Committee is seeking nominations for ... Thursday, March 12, 2009. Those interested in nominating a ... . The four award categories are: Entrepreneurial, Best New ... Nominators will be asked to submit documentation and narratives ...
... Feb. 4 Speaker Nancy Pelosi and parents and children ... a photo opportunity this morning before the final House vote ... this afternoon. Below are the Speaker,s remarks and answer to ... in the House of Representatives and in the Congress of ...
... architect of BurrellesLuce 2.0, will be the featured speaker at the ... of America. , ... Livingston, NJ (PRWEB) February 4, 2009 -- Jeffrey ... , will be the featured speaker at the Feb. 11th luncheon ...
... Compuware Corporation (Nasdaq:, CPWR ) today announced ... Health,Initiative with a collaborative network for the secure ... The VIP Health,Initiative was formed by Scripps Mercy ... to enhance the quality of care,delivered while also ...
... Saturday, February 7 -- 8 a.m. - 3 p.m.DETROIT, Feb. ... more to smile about.With the help of dentists, dental hygienists, ... School of Dentistry will provide free oral health care ... Saturday, Feb. 7 from 8 a.m. to 3 p.m. on ...
Cached Medicine News:Health News:Statement From Pew Health & Human Services Policy Program on the Introduction of the Delauro Food Safety Modernization Act 2Health News:GBC Seeks Nominations for Fourth Annual Bioscience Awards 2Health News:Pelosi: 'Today is a Very Special Day for Us in the House; We Are Going to Help 11 Million Children' 2Health News:BurrellesLuce IT Expert to Explore Web 3.0's Potential PR Impact At February Luncheon Meeting of Westchester/Fairfield PRSA 2Health News:BurrellesLuce IT Expert to Explore Web 3.0's Potential PR Impact At February Luncheon Meeting of Westchester/Fairfield PRSA 3Health News:Compuware Covisint to Network VIP Health Initiative and Its Physicians, Enabling Improved Collaboration, Better Care 2Health News:Compuware Covisint to Network VIP Health Initiative and Its Physicians, Enabling Improved Collaboration, Better Care 3Health News:UDM School of Dentistry 'Gives Kids A Smile' 2
Used to negotiate tortuous vessels....
BiodivYsio stent with biocompatible coating (phosphorylcholine)...
... The CYPHER Sirolimus-eluting Coronary Stent ... drug, called "sirolimus", a controlled-release ... delivery platform. Upon placement, sirolimus ... and impedes the process of ...
PT wires combine the enhanced durability of a linear elastic nitinol distal core and a highly resilient polymer tip. This provides excellent access in difficult cases involving severe tortuosity, tig...
Medicine Products: