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"AWAKEN" Survey Finds Only 50 Percent of Americans Understand Significant Health Impact of Narcolepsy, and Many Physicians Not Comfortable Diagnosing the Sleep Disorder
Date:6/11/2012

tone), sleep paralysis, hypnagogic hallucinations and disruptive nocturnal sleep.
  • Additionally, 22% of sleep specialists report they are "not very or not at all comfortable" diagnosing narcolepsy.
  • Among PCPs and sleep specialists who see three or more narcolepsy patients a month, narcolepsy is still one of the least discussed topics compared to other sleep-related disorders – higher only than sleep paralysis.  Other sleep-related conditions surveyed include insomnia, obstructive sleep apnea, excessive daytime sleepiness, restless leg syndrome/periodic limb movement disorders and hypersomnia.
  • "The AWAKEN findings show just how in the dark many Americans still are about the severity of narcolepsy and will certainly inform our organization's ongoing disease education initiatives," said Kevin Cosgrove, president of Wake Up Narcolepsy. "We're constantly striving to advance narcolepsy awareness to help ensure patients receive accurate diagnosis and access to effective treatment and support systems."  

    Narcolepsy is a chronic neurologic brain disorder caused by the brain's inability to regulate sleep-wake cycles normally, and can affect all aspects of a person's life, emotionally, physically, socially and academically. Contrary to common belief, people with narcolepsy do not spend more of their time asleep during a 24-hour period. In addition to suffering from excessive daytime sleepiness (EDS) and uncontrollable sleep episodes, many individuals also experience poor sleep quality that can involve frequent awakenings during nighttime sleep and other sleep disorders.(4)   

    Leadership in the Narcolepsy Community
    Jazz Pharmaceuticals is dedicated to working with patients, providers and advocacy organizations to further the understanding of narcolepsy and help the community navigate the complexities associated with the disorder.

    "As part of our enduring commitment to patients w
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    SOURCE Jazz Pharmaceuticals
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