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Scientists Claim Encouraging Progress On Hereditary Diseases

DNF was administered to mice with Huntington's disease, their lot improved greatly.

Participants were introduced to a new initiative being undertaken by the Hereditary Disease Foundation in collaboration with the European Huntington's Disease Network (EHDN). This initiative involves the development of new guidelines for the care of people with HD, based on the evidence of carefully controlled clinical trials - whenever possible. A follow-up workshop on Monday, August 14, 2006, to develop the guidelines' procedures was hosted by the HDF, EHDN and Sir Michael D. Rawlins, Chair of the United Kingdom's National Institute of Health and Clinical Excellence (NICE).

The Hereditary Disease Foundation's biennial meeting once again brings together an international cadre of junior and senior scientists who comprise the top experts and drivers of the field. It draws both long time HD researchers and investigators just entering the field. The meeting is a magnet for all the key players. Collaborations are formed which catalyse the research of the future.

Researchers from universities and government organizations from around the world attended, including large delegations from Harvard Medical School and Massachusetts General Hospital, Massachusetts Institute of Technology, Johns Hopkins University, the Universities of California at Los Angeles, San Francisco and Irvine and the University of British Columbia as well as smaller groups from nearly 50 other university and research centres around the world. In addition there were participants from biotech and pharmaceutical companies including, Novartis, Merck, Alnylam, Medtronics, Cambridge Laboratories, Trophos, EnVivo, CombinatoRx, Metabolon, Psychogenics, BioFocus, Cambria and Addgene.

The Hereditary Disease Foundation gratefully received support for the meeting from Alnylam Pharmaceuticals, Inc., Cambridge Laboratories Ltd, EnVivo Pharmaceuticals, Inc., Fisher Scientific Internat
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