Navigation Links
Hope for Babies Born With Spinal Muscular Atrophy

One in 5,000 babies is born with SMA ( a terminal condition called spinal muscular atrophy ).// Eighty percent of those babies have a severe form of the disease. No treatment has shown effect against this disorder and these babies rarely live until their second birthday . Although children with SMA have many physical disabilities, they do score well on IQ tests.

The pathology of SMA is similar to an adult disease called ALS or Lou Gehrig’s disease. The drug riluzole slows the progression of ALS, and a small study shows it may do the same for babies with SMA.

Of the 10 babies in the trial, three received a placebo. All died in the first year. Seven were given riluzole. Four of those babies died too, but three survived and are still taking the drug. “We have three children still living. One at age 5. One at age 4, and one at age 3,” researchers say.

Emily Gallagher seemed healthy when she was born. Her mother, Nina Kenney, says, “At about 3 months was when we noticed that she wasn’t doing what she was supposed to do as far as gross motor development -- holding her head up, sitting up by herself.”At 9 months, researchers diagnosed Gallagher with severe spinal muscular atrophy, a disease that almost always causes respiratory failure and death by age 2. She is now 5 and has been on a ventilator since she was 10 months. She can’t swallow, so she’s fed through a tube, but she can and loves to talk.

Gallagher was not in the study, but she will start taking riluzole with the hope of extending her life even more say specialists. Her mom says, “Every day’s a miracle, so if it’s going to give us another day, that’s woderful.”
'"/>




Page: 1

Related medicine news :

1. Babies of the deaf communicate
2. Babies Need Vaccination
3. Babies of the deaf communicate
4. Babies Should Get Vitamin D Supplement
5. Secret behind Babies soft skin
6. Babies Brains Are more Fragile
7. Drugs Taken During Pregnancy Found To Affect Unborn Babies
8. The Use Of Viagra for Babies Questioned
9. Vitamin use in Babies Might Lead to Asthma and Allergies
10. Babies Born By C- section At A Greater Risk for Allergies
11. Indian Treatment for Iraqi Babies
Post Your Comments:
*Name:
*Comment:
*Email:


(Date:4/21/2017)... PA (PRWEB) , ... April 21, 2017 , ... ... firm in Allegheny County that offers services to communities throughout the greater Pittsburgh ... in a charity drive to provide adaptive bicycles for differently-abled children. , Variety ...
(Date:4/21/2017)... ... ... The Patient Advocacy Community of The Beryl Institute presented Eve DeVaro, Director, ... Advocacy Award in recognition of her extraordinary contributions to the field of patient ... Beryl Institute’s annual Patient Experience Conference on March 20 in Denver, Colorado. ...
(Date:4/21/2017)... ... 21, 2017 , ... Crossover Symmetry , an evidence ... active lifestyle company that provides Human Performance Training and education to tactical athletes. ... responders, military officers and others in service through the development and conditioning of ...
(Date:4/21/2017)... ... 2017 , ... Airway Management, the medical device manufacturer of ... and well renowned Asian distributor, Discovery Sleep. The agreement involves the ... and will stabilize and strengthen Airway’s presence with a dedicated, reputable medical device ...
(Date:4/21/2017)... ... April 21, 2017 , ... ... candidates to serve on its Accreditation and Standards Committees to support the ... is improving image quality and reducing patient radiation dose,” reports Eliot Siegel, ...
Breaking Medicine News(10 mins):
(Date:4/19/2017)... , April 19, 2017  New research provides evidence that ... Parkinson,s, according to a study released today that will be ... Meeting in Boston , April 22 ... the treatment of Parkinson,s disease, the oral drug levodopa has ... and longevity. But as the disease progresses, the effects of ...
(Date:4/18/2017)... Ohio , April 18, 2017  Cardinal Health ... Non-GAAP 1 fiscal 2017 earnings per share (EPS) ... and 2019.  This is in conjunction with this morning,s ... Deep Vein Thrombosis and Nutritional Insufficiency businesses. ... from continuing operations will be at the bottom of ...
(Date:4/18/2017)... 2017 Research and Markets has announced the ... to their offering. ... arthroscopy devices market to grow at a CAGR of 6.35% during ... Market 2017-2021, has been prepared based on an in-depth market analysis ... and its growth prospects over the coming years. The report also ...
Breaking Medicine Technology: