Navigation Links
Children With Chronic Illness Die in Hospitals

A majority of chronically ill children still die in hospitals, with African American and Hispanic patients continuing to be less likely than white patients to die at home. Children who die of a chronic illness are more likely to spend their final days at home compared to children who died two decades ago.

However, the shifting trend in place of death raises questions for families, medical caregivers and policy-makers about how to best provide care and resources for very sick children.

There has been a quiet transformation in care for children with severe chronic conditions, said pediatrician Chris Feudtner, M.D., Ph.D., M.P.H., lead author of the study in the June 27 Journal of the American Medical Association. Advances in medicine and technology are extending survival, as well as allowing medically fragile children to live at home.

In addition, shifts in attitudes about palliative and end-of-life care may also be affecting both how these children live and whether they may die at home. Palliative care focuses on relieving symptoms, improving comfort and enhancing quality of life when a cure is not possible.

Feudtners study team analyzed national health records for 198,000 U.S. children whose deaths were attributed to a complex chronic condition between 1989 and 2003. Those conditions include heart disease, cancer, neuromuscular diseases that worsen over time, and genetic illnesses, among others.

Over 15 years, the proportion of chronically ill children dying at home increased significantly for each age group, from 4.9 percent to 7.3 percent among infants, from 17.9 percent to 30.7 percent for ages one to nine, and from 18.4 percent to 32.2 percent among 10- to 19-year-olds. This was the first time the sites of death were studied for a national population of children with chronic diseases.

Although there is a clear trend toward higher proportions of medically fragile children dying at home, our research does not support a value judgment that dying at home is preferable to dying in a hospital, said Feudtner, a prominent advocate for improving quality of care for children with life-limiting conditions.

We want each family to be able to make care decisions based on their own values, wishes and preferences, and medical professionals should collaborate with patients and families in helping them make decisions in an atmosphere of mutual understanding, trust and respect.

Over the 15-year period covered by the study, significant racial and ethnic disparities persisted, with the odds of dying at home remaining significantly lower among black and Hispanic children compared to white children. This study cannot tell us why these racial and ethnic disparities exist, said Feudtner.

If they reflect different preferences among these groups, then the differences would be much less worrisome than if the disparities are linked to poorer economic or social resources, or to reduced access to health care services and medical technology.

Feudtner concludes that the findings of the study underscore that much remains to be learned and accomplished in the field: We clearly need more research to better understand family and patient needs, and to improve the quality of care for chronically ill children, whether they are at home or in the hospital.


'"/>




Related medicine news :

1. Antibiotics Dangerous for Diarrhoea in Children Caused by E.Coli
2. Inhaled Steroids Safe & Effective for Children with Asthma
3. General Anesthesia Safe For Children On Ketogenic Diet Suffering From Epilepsy
4. Children suffer the most when parents divorce
5. Childrens snoring may indicate a serious problem
6. Children exposed to smoke show decreased levels of Vitamin C
7. Children! Protecting them from medical mistakes
8. Children who used anaesthesia drugs could suffer brain damage
9. Children’s Cholesterol Matter
10. Race Affects Sleep in Children
11. Vaccine Reduces antibiotic-resistant infections in Children
Post Your Comments:
*Name:
*Comment:
*Email:


(Date:10/13/2017)... ... October 13, 2017 , ... ProVest ... the greater Dallas, Miami, and Raleigh regions, is organizing an extended charity drive ... rare and deadly chromosome abnormality. , After struggling since birth with several health ...
(Date:10/13/2017)... ... October 13, 2017 , ... As health professionals work to ... “patient engagement.” The patient is doing more than filling out a survey; in many ... is an increasing emphasis in health care and research on the importance of active ...
(Date:10/13/2017)... ... October 13, 2017 , ... The American Board of ... its next President and Chief Executive Officer, succeeding Dr. James C. Puffer upon his ... July 1, 2018 until Dr. Puffer’s retirement at the end of 2018. Upon assuming ...
(Date:10/13/2017)... (PRWEB) , ... October 13, 2017 , ... PurhealthRX ... CBD Oil utilizing Purzorb™ technology. Applying the Purzorb™process to full spectrum CBD oil will ... and providing a CBD form that can be easily incorporated into liquid products, while ...
(Date:10/13/2017)... , ... October 13, 2017 , ... Lori R. Somekh, ... member of ElderCounsel, a national organization of elder law and special needs planning attorneys. ... and rules. It also provides a forum to network with elder law attorneys nationwide,” ...
Breaking Medicine News(10 mins):
(Date:10/2/2017)... , Oct. 2, 2017  Eli Lilly and Company ... results for the third quarter of 2017 on Tuesday, ... call on that day with the investment community and ... The conference call will begin at 9 a.m. ... access a live webcast of the conference call through ...
(Date:9/28/2017)... WASHINGTON , Sept. 28, 2017 Cohen ... to advance the use of wearable and home sensors ... brain disorders. Early Signal Foundation, a nonprofit organization focused ... populations, will provide an affordable analytical system to record ... ...
(Date:9/23/2017)... 2017 Janssen Biotech, Inc. (Janssen) announced today ... the U.S. Food and Drug Administration (FDA) for the ... the treatment of moderately to severely active rheumatoid arthritis ... are needed to further evaluate the safety of sirukumab ... "We are ...
Breaking Medicine Technology: