Navigation Links
Beware Of A Silent Killer Called Haemophilia

To promote a global effort to establish an appropriate care and treatment for a disease “Haemophilia” that is the oldest known inherited bleeding disorder caused by a defect in the genes the World Haemophilia Day is observed every April 17. // Haemophilia is an incurable genetic disorder that is characterised by a deficiency of the coagulation factor and by mucosal bleeding. It usually affects males.

India has some 1,00,000 patients suffering from Haemophilia, experts say. Even as the country focuses on more glamorous diseases, haemophilia, a little known blood disorder, is turning out to be a silent killer with over 50,000 people affected.

People suffering from haemophilia lack certain proteins in their blood because of which their blood doesn’t clot and their wounds don’t heal. Ditipriya Ghosh, an official with the Haemophilia Federation of India (HFI) explains that the disease might affect anyone irrespective of social group. According to him, nearly 800 to 1,000 people with haemophilia (PWH) are registered with HFI every year.

He explains that haemophilia normally passes on at birth from an affected father to daughter, who then becomes a carrier of the haemophilia gene having every possibility of passing the defective gene on to her children. He further explains that if these children who are affected with haemophilia are not treated it might lead to disability and possible death. He stated that the disease is not curable, but it can be managed with proper knowledge and treatment. Explaining that the best way to reduce the threat of haemophilia is through awareness and provision of a life saving drug AHF (Anti Haemophilic Factor), Ranjit Mukerje, the Executive Director Haemophilia Federation (India), said that at times especially during internal bleeding, it would be necessary to take a minimum of 1,000 units of anti-haemophiliac factor, which is a life-saving drug. And they further explain that the AHF is not manufactured in India and has to be imported thereby making treatment extremely costly and impossible at times for a middle class Indian family.

Haemophiliacs, who cannot afford Rs 6,000-Rs 10,000 a month to buy the clotting factor, would need to have regular blood transfusions. But the greatest risk is that these transfusions can expose them to deadly diseases like HIV/AIDS or Hepatitis A or C. This is sadly the case of one patient, Vineet Oberoi, contracted the HIV/AIDS virus during a routine blood transfusion.

Explaining that both his brother and he were both haemophiliacs. His brother died of AIDS a few years ago, while he was diagnosed with AIDS last year. He explained that he was diagnosed with haemophilia in 1975 and received treatment in an army hospital in Delhi cantonment. Later he was detected HIV positive in 1989, he claims that it was due to the blood transfusion that he and his brother became HIV positive.

Haemophilia may be a rare disorder but as it has such intense health implications it needs for a more than a drastic step to raise awareness by the government and health officials.

'"/>




Related medicine news :

1. Beware of the oral patch! It could be cancer!!!
2. Gardeners, Beware of your back!
3. Beware Smoking During Pregnancy Linked To New Danger
4. Parents Should Beware of Violent Video Games
5. Beware of stroke that trails heart attack
6. Beware Of Bogus Claims by HGH Spray Internet Marketers
7. Beware of Cannabis - Not at all a mild drug
8. Beware of Chikungunya !!
9. Hepatitis C : By No Means Lily-livered! Beware
10. Public Alert: Beware of fake glucose test strips!!
11. Sports Cheats Beware - New Test To Detect Synacthen Found
Post Your Comments:
*Name:
*Comment:
*Email:


(Date:6/25/2016)... ... June 25, 2016 , ... Experts from ... at AcademyHealth’s Annual Research Meeting June 26-28, 2016, at the Hynes Convention Center ... care topics including advance care planning, healthcare costs and patient and family engagement. ...
(Date:6/25/2016)... ... , ... The temporary closing of Bruton Memorial Library on June 21 due to a possible ... often overlooked aspect of head lice: the parasite’s ability to live away from a human ... but a necessary one in the event that lice have simply gotten out of control. ...
(Date:6/25/2016)... ... ... First Choice Emergency Room , the largest network of independent freestanding emergency ... its new Mesquite-Samuell Farm facility. , “We are pleased to announce Dr. Ogunleye ... M. Muzzarelli, Executive Medical Director of First Choice Emergency Room. , Dr. Ogunleye ...
(Date:6/25/2016)... (PRWEB) , ... June 25, 2016 , ... ... athletes and non-athletes recover from injury. Recently, he has implemented orthobiologic procedures as ... City area —Johnson is one of the first doctors to perform the treatment. ...
(Date:6/25/2016)... ... 25, 2016 , ... Conventional wisdom preaches the benefits of moderation, whether it’s ... setting the bar too high can result in disappointment, perhaps even self-loathing. However, those ... goal. , Research from PsychTests.com reveals that behind the tendency to ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... , June 24, 2016  Collagen Matrix, ... design, development and manufacturing of collagen and mineral ... announced today that Bill Messer has ... Marketing to further leverage the growing portfolio of ... devices. Bill joins the Collagen Matrix ...
(Date:6/24/2016)... Dublin - ... " Global Markets for Spectroscopy Equipment" report ... This report focuses on the global market of ... applications in various applications. The report deals with spectroscopy ... industries: pharmaceutical and biotechnology, food and beverage, and environmental ...
(Date:6/24/2016)... BEIJING , June 24, 2016 Dehaier ... or the "Company"), which develops, markets and sells medical ... China , signed a strategic cooperation agreement with ... as "Hongyuan Supply Chain") on June 20, 2016, to ... Under the strategic cooperation agreement, Dehaier will leverage Hongyuan ...
Breaking Medicine Technology: