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Patient reports of relatives' cancer history often not accurate
Date:5/11/2011

cy of family cancer history reporting. "Given that the population from which we sampled is similar to primary care populations, the results of this study suggest that family cancer history collected in the primary care setting might be useful as an initial screening tool, and, if positive, confirmation of the reported cancers is needed for the purpose of making cancer screening recommendations or referral to a specialty clinic."

In a related editorial, Rachel A. Freedman, M.D., and Judy E. Garber, M.D., of the Dana Farber Cancer Institute in Boston say that the study highlights the limitations of relying on patient reports of family cancer histories for risk assessment. They add that the current debate on electronic medical records and patient privacy should include this issue. And they note that on-line family history tools, such as the Surgeon General's pedigree tool, genealogy websites, and Facebook pages may contribute to more accurate reporting.

"However," they write, "if we want to be able to appropriately integrate family history into personalized clinical care, studying systematic ways to enhance family history ascertainment should be a research priority."


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Contact: Kristine Crane
jncimedia@oxfordjournals.org
301-841-1287
Journal of the National Cancer Institute
Source:Eurekalert

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