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New study looks at disconnect between medical and lay expertise
Date:6/1/2011

om treatment. Studying hundreds of online postings, the researchers found multiple threads of women declaring themselves to the "the one" in 1,904.

For these women, breast cancer is a personal issue, not a statistical abstraction.

"What is more compelling than your own personal experience?" Barker said. "It is not likely that a scientific study can discredit your own experience."

Barker, an associate professor at OSU, also noted that the controversy around the task force guidelines was heightened because they came out just as the debate over national health care was spiraling through the media. In addition, the women's negative reactions to the new guidelines were intensified by their online connection to so many others who shared their breast cancer experience.

"Coming together online and finding a support network can be empowering, especially for women who sometimes feel shut out of the process," Galardi said. "These women have a form of expertise that they feel should be considered by medical experts."

According to Barker, the take-away message of this research is that because of the Internet, medical information continues to become more democratized and this sort of group dynamic found in online forums will have a lot of credibility.

"The public's ability to challenge medical authority means the balance of power is shifting, and will continue to do so," she said. "Public policy officials would be wise to take lay expertise into consideration."


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Contact: Kristin Barker
kristin.barker@oregonstate.edu
541-737-5375
Oregon State University
Source:Eurekalert

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