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National Marrowthon Campaign Aims to Bring Nearly 50,000 to the Be The Match Registry(SM) in Two Weeks
Date:6/8/2009

e officer of the National Marrow Donor Program. "One person truly can make a difference and we want to thank everyone who joins the Be The Match Registry or who gives funds or time to the cause. Every donor added to the registry and every dollar given helps save a life."

As part of the Be The Match Marrowthon, dozens of patients in need of a bone marrow transplant are sharing their stories. For example:

  • Matthew Nguyen is a pharmacy graduate student, distance cyclist and all-around overachiever who was diagnosed with acute myelogenous leukemia (AML) in June 2007. Since then, his life has been put on hold - graduate school, his wedding and his plans for the future. Matthew is currently searching for a matching marrow donor to come forward who can help save his life.
  • Andrew (age 2) and Matthew (age 4) Akin have a rare immune system disorder, hemophagocytic lymphohistiocytosis (HLH), which affects one out of every million children and can only be cured with a marrow transplant. Andrew is doing well after receiving his third transplant last winter. Matthew, who appears perfectly healthy, will go through transplant this summer to prevent his HLH from presenting later. Each brother has relied on the gift of a perfect stranger to join the registry and donate when called.
  • Kenna Emmons (age 6) was born with a rare condition called combined immune deficiency syndrome. She dreams of returning to school, visiting Disney World and growing up to become a nurse. These dreams can be possible if a matching donor is found.

Joining the registry is as easy as filling out a health questionnaire and swabbing the inside of your cheek with a cotton swab. Anyone between the ages of 18 and 60, in good health and willing to
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SOURCE National Marrow Donor Program
Copyright©2009 PR Newswire.
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