The National Marrow Donor Program's Office of Patient Advocacy receives
$1.5 million award to help cancer survivors like Ryan
MINNEAPOLIS, Sept. 25 /PRNewswire/ -- Ryan Jacobs of Shakopee, Minn., has been a cancer survivor most of his life. Diagnosed with acute myelogenous leukemia at just 5 months old, Ryan's family was told he needed a bone marrow or cord blood transplant to survive.
Ryan received a successful cord blood transplant after his doctor searched the National Marrow Donor Program's(R) (NMDP) Registry and found a matching donor. Transplant recovery is a slow process, but this tenacious young boy pulled through and has been a cancer survivor now for five years.
FINDING SUPPORT FOR LIFE AFTER CANCER
After a bone marrow or cord blood transplant, most survivors have some long-term side effects or complications. Some of these disappear over time; others are permanent. While some complications are fairly easy to manage, other long-term effects can be serious or painful.
"As a growing number of transplant patients like Ryan live longer, there is a vital need for comprehensive advocacy and resources for the survivor community," said Beth Murphy, director of the NMDP's Office of Patient Advocacy.
The NMDP's Office of Patient Advocacy recently received an esteemed $1.5 million award from the Centers for Disease Control (CDC) to further provide support, educate and promote the importance and issues surrounding long-term cancer survivorship. With this five-year award, the NMDP's Office of Patient Advocacy plans to:
-- expand the NMDP's existing survivorship programs;
-- develop partnerships with other national, patient-focused organizations
-- focus on providing resources for patients from medically under-served
-- increase access to programs and resources to promote and protect
Today, 5-year-old Ryan feels great and just started kindergarten this fall. His family currently volunteers their time to help recruit more donors to the NMDP Registry and to raise awareness and support for cancer survivors like Ryan.
About the National Marrow Donor Program
The NMDP facilitates unrelated marrow and blood cell transplants as a single point of access for a long-standing collaborative network of national and international leading medical facilities in marrow and cord blood transplantation. The NMDP connects patients, doctors, donors and researchers to the resources they need to help more people live longer and healthier lives. For more information call 1 (800) MARROW-2 or visit http://www.marrow.org. Join online at marrow.org/join.
|SOURCE National Marrow Donor Program|
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