Navigation Links
Young Onset Parkinson Conferences: A First-Ever Collaboration
Date:3/13/2009

The American Parkinson Disease Association (APDA) and the National Parkinson Foundation (NPF) Announce Plans to Co-Sponsor a Series of Young Onset Parkinson Conferences; First to be held in Dallas, Texas, October 2009

MIAMI, March 13 /PRNewswire-USNewswire/ -- The American Parkinson Disease Association's (APDA) National Young Onset Center and the National Parkinson Foundation's (NPF) Young Onset Parkinson Network announced their first joint collaboration today. APDA and NPF will co-sponsor a series of conferences for those living with young-onset Parkinson's disease and their caregivers. The first conference will be held in Dallas, Texas on October 23-24, 2009, with three additional programs in other parts of the country slated for the following year.

"We are pleased to be partnering with APDA to help people with young-onset Parkinson's disease nationwide. Our goal is to leverage the strong networks of both organizations to offer the high-quality educational and networking experience that is so critical for people who will live decades with the disease," said Joyce Oberdorf, NPF President and CEO. Ms. Oberdorf noted that the regional series builds on the success of NPF's highly regarded national Young Onset Parkinson Network conference, while recognizing that in the current economic environment, travel to a single national event is difficult for many people and their families.

According to researchers, between five and 10 percent of Parkinson's patients are diagnosed under the age of 40; although recent clinical studies show that as many as 12 percent of patients report that their symptoms began in their 40s. Young-onset patients will face a greater range of issues than more typical older idiopathic PD patients, including loss of employment, managing finances and concerns of young families as well as the social isolation many feel is their greatest burden. Since they will live decades with the disease, and may suffer more severe treatment-related motor complications, early and intentional management is crucial to maintaining quality of life.

"APDA has been providing services dedicated to the particular challenges of young people diagnosed with PD for almost two decades through an Information & Referral Center and for the past two years by the country's only national center," said Joel Gerstel, APDA Executive Director. "We have sponsored regional family retreats for young patients on the West and Gulf coasts, and welcome this opportunity to join our expertise with NPF to provide even greater service to a larger number of people."

Entitled, "Choices and Connections," the one-day program also includes a live Webcast to extend its audience reach to as many patients as possible. A full download of the program will also be available after the conference through both the APDA and NPF web sites.

Each program in the series is intended to combine the latest information about the science of the disease and medical updates, with panel discussions of work/disability issues, managing stress and relationships, as well as how to deal with the strains of being a caregiver. In addition, each session will offer networking opportunities as well as optional activities such as massages and exercise classes.

Both APDA and NPF have made the decision to keep registration fees as low as possible, $30 per person, so that price will not be a barrier to attendance.

The fee includes all conference materials as well as a welcome reception, a continental breakfast and lunch. Interested participants will be able to register online at the APDA Young Onset Center's web site www.youngparkinsons.org, or at the NPF web site www.parkinson.org.

About APDA

The American Parkinson Disease Association, founded in 1961 to "ease the burden and find the cure" for Parkinson's disease, is the country's largest grassroots organization serving the Parkinson's community, operating through a national network of 53 chapters, 63 Information and Referral centers and approximately 1,000 support groups. APDA focuses on funding research, patient/caregiver support, education and raising public awareness about the disease. Additional information is available at 800-223-2732 or visit www.apdaparkinson.org.

The APDA National Young Onset Center provides young people with PD, their families and their health care providers with the most relevant and timely education, networking and wellness information. For more information, visit www.youngparkinsons.org, or call 877-223-3801.

About NPF

Founded in 1957 and headquartered in Miami, the National Parkinson Foundation has an extensive grassroots network of centers, chapters and support groups in the U.S., Canada, and internationally. Since 1984, NPF has invested over $140 million in disease-related programs and is committed to increasing the quality of care for Parkinson's patients through research, education and outreach. For more information, visit www.parkinson.org, or call 800-327-4545.

NPF's 2008 Young-Onset Parkinson Network (YOPN) Conference Webcast is available for viewing at www.parkinson.org (Click on "Multimedia").


'/>"/>
SOURCE National Parkinson Foundation
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Rearrangements of multifunctional genes cause cancer in children and young people
2. CPR Can Save Young Lives, Too
3. Older air traffic controllers perform as well as young on job-related tasks
4. AED Receives Gates Foundation Grant to Improve Nutrition and Reduce Deaths Among Young Children in Developing Countries
5. Older Adults Get Drunk Faster Than Younger Drinkers
6. Younger breast cancer patients have greater chance of recurrence
7. Dog bites a particular threat to young children, especially as temperatures rise
8. On the Heels of Court Ruling Denying Autism-Vaccine Link, U.S. Federal Court Declares MMR Vaccine Caused Autism in a Young Boy
9. Work May Not Be Best for Young Kids
10. Study Shows Simple Measures May Help Prevent Sudden Death Event in Young Athletes
11. Young Women Learn to Strike a Balance Between Breast Cancer and Careers
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/29/2017)... (PRWEB) , ... April 29, 2017 , ... ... Grocery Company to the list of fine retailers selling biodegradable, hanging flushable wipes ... H.E.B., a large supermarket chain headquartered in San Antonio, Texas, operates more than ...
(Date:4/28/2017)... ... April 28, 2017 , ... Accreditation Commission for Health Care ... of America (HCAOA). This agreement allows HCAOA members to receive special pricing on ... on Accreditation University (AU) educational resources that help prepare HCAOA members for ACHC ...
(Date:4/28/2017)... ... April 28, 2017 , ... Getting enough sleep affects much more than energy – ... just 19 hours without sleep can compromise motor reaction time, which can increase the risk ... Insurance is sharing the following tips from the NSF to help you sleep better and ...
(Date:4/28/2017)... ... April 28, 2017 , ... Datta Endoscopic Back ... joined the revolutionary endoscopic practice under Dr. Datta. Patel is a Board Certified ... The patented, revolutionary eDiscSculpt Technique created and used by Datta Endoscopic is unlike ...
(Date:4/28/2017)... MA (PRWEB) , ... April 28, 2017 , ... People ... for older people. “Wearing a hearing aid doesn’t have the stigma it had when ... & Hearing Associates of Greater Boston, in a NALA North American Speaker Series ...
Breaking Medicine News(10 mins):
(Date:4/19/2017)... DIEGO , April 19, 2017  Sorrento ... an antibody-centric, clinical-stage biopharmaceutical company developing new treatments ... announced the closing of its previously announced underwritten ... stock at a public offering price of $2.00 ... and estimated offering expenses payable by Sorrento.  The ...
(Date:4/19/2017)... 19, 2017  Novartis today announced the publication ... Lung, and Blood Institute (NHLBI) of the National ... patients with treatment-naïve severe aplastic anemia (SAA) achieved ... eltrombopag at the initiation of and concurrently with ... three sequential treatment groups, or cohorts. Cohort 3 ...
(Date:4/18/2017)... 18, 2017 Cogentix Medical, Inc. (NASDAQ: CGNT), ... Urology, Uro/Gyn and Gynecology markets with innovative and proprietary ... ended March 31, 2017 after the market close on ... will host a conference call and webcast to discuss ... 2, 2017 at 4:30 p.m. Eastern Time (3:30 p.m. ...
Breaking Medicine Technology: