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Wisconsin First State in Nation to Screen Newborns for 'Bubble Boy Disease'
Date:1/3/2008

way with accurate screening protocols." Vicki Modell, Modell Foundation co-founder, added, "We are closer to that day when we will bring a family and their newborn baby to Washington and let our lawmakers know how they have directly saved the life of this baby and so many babies in the future. This is very exciting."

The Boy in the Bubble: About SCID

SCID is the most lethal version of all primary immunodeficiency diseases. It often is called "Boy in the Bubble" after the movie of the same name that starred John Travolta, the true story of a boy with SCID who died at age 12 after spending his life in a plastic bubble because he was so vulnerable to infection. SCID causes a defect in the white blood cells that helps protect the body from viruses, bacteria and fungi. Doctors know that SCID is the result of a mutation in one of at least 12 genes, and bone marrow transplants are presently the best treatment.

About Jeffrey Modell Foundation

The Jeffrey Modell Foundation (JMF) was established in 1987 by Vicki and Fred Modell, in memory of their son, Jeffrey, who died from complications of Primary Immunodeficiency at the age of 15. JMF is a multi-faceted global nonprofit foundation devoted to the early and precise diagnosis, meaningful treatments, and ultimately cures of PI, and is focused on physician education, public awareness, and clinical and basic research to better understand and treat these Immunodeficiencies. To date, there are 36 Jeffrey Modell Research and Diagnostic Centers in the U.S., Canada, Europe, Middle East, South America, and Asia. For more information please visit the JMF website at http://www.info4pi.org.

About Children's Hospital of Wisconsin

Children's Hospital of Wisconsin, founded in 1894, is recognized as one of the leading pediatric health care centers in the United States. It is included on Child magazine's 10 Best Children's Hospitals list and is named
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SOURCE Children's Hospital of Wisconsin
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