Navigation Links
Website launched to help patients prepare for complex medical decisions
Date:1/4/2013

A new patient-friendly online resource called PREPARE has been developed to help people make complex medical decisions. The website was developed by researchers from the San Francisco VA Medical Center, UCSF, and NCIRE - The Veterans Health Research Institute.

The PREPARE website incorporates content identified in new research to address key patient- and surrogate-identified aspects of preparing for advance care planning and decision making. The site provides concrete examples through videos and other mechanisms on how to identify what is most important in life, how to communicate that with family and friends and doctors, and how to make informed medical decisions.

The resource is being launched by researchers who recently published a study on advance care planning in the Journal of Pain and Symptom Management (Nov. 27, 2012). The paper, entitled Advance Care Planning Beyond Advance Directives: Perspectives from Patients and Surrogates, identified gaps in planning for decisions about serious illness among a culturally diverse group of patients and surrogate decision makers, or individuals who have made medical decisions for others.

"There are few resources which can adequately prepare patients and their families to face serious illness or a medical crisis situations which often involve complex decisions over time," said lead study author Rebecca Sudore, MD, SFVAMC geriatrician and palliative medicine physician and associate professor medicine at the UCSF School of Medicine.

"Advance directives are important, but they are just one piece of the puzzle," she said. "We wanted to develop a value-driven, easy-to-use tool to prepare people to make medical decisions that reflect their values and needs while preparing them to effectively communicate these wishes with others."

This study identified key themes critical to successful advance care planning that go beyond completing an advance directive form. These include successful surrogate selection and communication with the surrogate, determination of the surrogate's role, and communication with family and doctors.

The website's audio-visual interface is tailored to typically underserved populations (including users with low health or computer literacy and/or visual or hearing impairment) and aims to incorporate a patient-centered, comprehensive and manageable approach.

The PREPARE website is written at a fifth-grade reading level, and includes voice-overs of all text, closed-captioning for the hearing impaired, and large font for the visually impaired. In preliminary pilot testing, older adults from diverse backgrounds rated PREPARE a nine out of a 10- point-scale for ease of use, according to Sudore.

"We wanted to make the website free and easy-to-use by everyone," she said. "We made sure to take advice given to us by patients and surrogates. The site doesn't merely ask people to do advance care planning, but actually shows people, through videos and a step-by-step process, how to actually have the conversation and make informed medical decisions."

The study included 69 English and Spanish-speaking patients and surrogate decision makers who reported having to make serious medical decisions for themselves or loved ones. The mean age of patients was 78 years and 61 percent were non-white. The mean age of the surrogate decision makers was 57 years, and 91 percent were non-white.

Qualitative analysis revealed that advance directives were not enough to prepare patients and surrogates for medical decision making. Many participants stated that solely focusing on treatments, such as mechanical ventilation, was not sufficient to help with the "many decisions" with which they were facing.


'/>"/>

Contact: Leland Kim
leland.kim@ucsf.edu
415-502-6397
University of California - San Francisco
Source:Eurekalert  

Related medicine news :

1. CoachingWebsites (Websites for Coaches) Announces a New Scheduling Calendar Feature for Coaches in 2013
2. Physician review websites rely on few patient reviews
3. PsychiatristSites (Websites for Psychiatrists) Announces a New Scheduling Calendar Feature for Psychiatrists in 2013
4. Miami Adventures Would Like to Announce the Launch of Their New Website GreatMiamiTours.com
5. Viagrahapi.com Announced its New Website
6. Facility Builders and Erectors Launches New Website for Clients
7. Caribbean Hideaways / Go Classy Tours Announces the Launch of Their Second N-Resort Jamaica Website - 2013 Group Dates to Hedonism II and Desire Resorts & Spa
8. Web Entrepreneur Launches HealthYouDecide.com, a Website for a Healthier Lifestyle
9. Atlanta Surgeon for LASIK Eye Surgery Publishes Study on Website About Car Technology to Monitor Drowsiness
10. Green-npower.com Announces its New Website
11. Physicians Indemnity Risk Retention Group Unveils New Website
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Website launched to help patients prepare for complex medical decisions
(Date:10/13/2017)... WI (PRWEB) , ... October 13, 2017 , ... As ... in medicine known as “patient engagement.” The patient is doing more than filling out ... partners. , “There is an increasing emphasis in health care and research on ...
(Date:10/13/2017)... ... October 13, 2017 , ... ... process to promote standards of excellence for the field of eating disorders, announces ... 22 – 25, 2018 in Orlando, Florida at the Omni Resort at ChampionsGate. ...
(Date:10/13/2017)... (PRWEB) , ... October 13, 2017 , ... Lori R. ... a member of ElderCounsel, a national organization of elder law and special needs planning ... laws and rules. It also provides a forum to network with elder law attorneys ...
(Date:10/13/2017)... BASKING RIDGE, N.J. (PRWEB) , ... October 13, 2017 , ... ... second annual Holly Day Market. Featuring a collection of specialty vendors and unique items ... myriad of personalized and quality-focused health and wellness services offered by the VNA. ...
(Date:10/13/2017)... ... , ... Yisrayl Hawkins, Pastor and Overseer at The House of Yahweh, has ... least understood books in the Holy Scriptures, Revelation. The Book of Revelation paints a ... centuries. Many have tossed it off as mere rubbish, but Yisrayl Hawkins says that ...
Breaking Medicine News(10 mins):
(Date:10/2/2017)... , Oct. 2, 2017  AllianceRx Walgreens Prime, ... formed by Walgreens and pharmacy benefit manager Prime Therapeutics ... new brand, which included the unveiling of new signage ... , as well as at a few other company-owned ... new brand to patients, some of whom will begin ...
(Date:9/27/2017)... 2017  Commended for their devotion to personalized service, SMP ... number one in the South Florida Business Journal,s 50 Fastest-Growing ... yearly list, the national specialty pharmacy has found its niche.  ... will soon be honored by SFBJ as the 2017 Power ... Set to receive his award in October, Bardisa said of ...
(Date:9/22/2017)... ROCKVILLE, Md. , Sept. 22, 2017  As ... by Republican Senators Bill Cassidy (R-LA) and ... Kalorama Information notes that the medical device industry is ... the medical device tax, the 2.3% excise tax on ... Act.  But they also want covered patients, increased visits ...
Breaking Medicine Technology: