Navigation Links
Website launched to help patients prepare for complex medical decisions
Date:1/4/2013

A new patient-friendly online resource called PREPARE has been developed to help people make complex medical decisions. The website was developed by researchers from the San Francisco VA Medical Center, UCSF, and NCIRE - The Veterans Health Research Institute.

The PREPARE website incorporates content identified in new research to address key patient- and surrogate-identified aspects of preparing for advance care planning and decision making. The site provides concrete examples through videos and other mechanisms on how to identify what is most important in life, how to communicate that with family and friends and doctors, and how to make informed medical decisions.

The resource is being launched by researchers who recently published a study on advance care planning in the Journal of Pain and Symptom Management (Nov. 27, 2012). The paper, entitled Advance Care Planning Beyond Advance Directives: Perspectives from Patients and Surrogates, identified gaps in planning for decisions about serious illness among a culturally diverse group of patients and surrogate decision makers, or individuals who have made medical decisions for others.

"There are few resources which can adequately prepare patients and their families to face serious illness or a medical crisis situations which often involve complex decisions over time," said lead study author Rebecca Sudore, MD, SFVAMC geriatrician and palliative medicine physician and associate professor medicine at the UCSF School of Medicine.

"Advance directives are important, but they are just one piece of the puzzle," she said. "We wanted to develop a value-driven, easy-to-use tool to prepare people to make medical decisions that reflect their values and needs while preparing them to effectively communicate these wishes with others."

This study identified key themes critical to successful advance care planning that go beyond completing an advance directive form. These include successful surrogate selection and communication with the surrogate, determination of the surrogate's role, and communication with family and doctors.

The website's audio-visual interface is tailored to typically underserved populations (including users with low health or computer literacy and/or visual or hearing impairment) and aims to incorporate a patient-centered, comprehensive and manageable approach.

The PREPARE website is written at a fifth-grade reading level, and includes voice-overs of all text, closed-captioning for the hearing impaired, and large font for the visually impaired. In preliminary pilot testing, older adults from diverse backgrounds rated PREPARE a nine out of a 10- point-scale for ease of use, according to Sudore.

"We wanted to make the website free and easy-to-use by everyone," she said. "We made sure to take advice given to us by patients and surrogates. The site doesn't merely ask people to do advance care planning, but actually shows people, through videos and a step-by-step process, how to actually have the conversation and make informed medical decisions."

The study included 69 English and Spanish-speaking patients and surrogate decision makers who reported having to make serious medical decisions for themselves or loved ones. The mean age of patients was 78 years and 61 percent were non-white. The mean age of the surrogate decision makers was 57 years, and 91 percent were non-white.

Qualitative analysis revealed that advance directives were not enough to prepare patients and surrogates for medical decision making. Many participants stated that solely focusing on treatments, such as mechanical ventilation, was not sufficient to help with the "many decisions" with which they were facing.


'/>"/>

Contact: Leland Kim
leland.kim@ucsf.edu
415-502-6397
University of California - San Francisco
Source:Eurekalert  

Related medicine news :

1. CoachingWebsites (Websites for Coaches) Announces a New Scheduling Calendar Feature for Coaches in 2013
2. Physician review websites rely on few patient reviews
3. PsychiatristSites (Websites for Psychiatrists) Announces a New Scheduling Calendar Feature for Psychiatrists in 2013
4. Miami Adventures Would Like to Announce the Launch of Their New Website GreatMiamiTours.com
5. Viagrahapi.com Announced its New Website
6. Facility Builders and Erectors Launches New Website for Clients
7. Caribbean Hideaways / Go Classy Tours Announces the Launch of Their Second N-Resort Jamaica Website - 2013 Group Dates to Hedonism II and Desire Resorts & Spa
8. Web Entrepreneur Launches HealthYouDecide.com, a Website for a Healthier Lifestyle
9. Atlanta Surgeon for LASIK Eye Surgery Publishes Study on Website About Car Technology to Monitor Drowsiness
10. Green-npower.com Announces its New Website
11. Physicians Indemnity Risk Retention Group Unveils New Website
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Website launched to help patients prepare for complex medical decisions
(Date:6/27/2016)... ... June 27, 2016 , ... TopConsumerReviews.com recently awarded their highest five-star ... , Millions of individuals in the United States and Canada wear eyeglasses. Once considered ... both correct vision and make a fashion statement. Even celebrities use glasses as a ...
(Date:6/26/2016)... ... ... Brent Kasmer, a legally blind and certified personal trainer is helping to develop a weight ... app plans to fix the two major problems leading the fitness industry today:, ... program , They don’t eliminate all the reasons people quit their exercise program ...
(Date:6/25/2016)... , ... June 25, 2016 , ... "With 30 hand-drawn ... specific project," said Christina Austin - CEO of Pixel Film Studios. , ProHand ... all within Final Cut Pro X . Simply select a ProHand generator and ...
(Date:6/25/2016)... ... June 25, 2016 , ... Conventional wisdom preaches the ... In terms of the latter, setting the bar too high can result in disappointment, ... just slow progress toward their goal. , Research from PsychTests.com reveals ...
(Date:6/24/2016)... (PRWEB) , ... June 24, 2016 , ... ... Conference and Scientific Sessions in Dallas that it will receive two significant new ... the grants came as PHA marked its 25th anniversary by recognizing patients, medical ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... startling report released today, National Safety Council research shows ... plan to eliminate prescription opioid overdoses. Prescription Nation ... the worst drug crisis in recorded U.S. history, assigned a "Making ... , New Mexico , Tennessee ... states, three – Michigan , Missouri ...
(Date:6/23/2016)... Pa. , June 23, 2016 Bracket ... will launch its next generation clinical outcomes platform, Bracket eCOA ... Meeting held on June 26 – 30, 2016 in ... the first electronic Clinical Outcome Assessment product of its kind ... Booth #715. Bracket eCOA 6.0 is a flexible ...
(Date:6/23/2016)... June 23, 2016  Guerbet announced today that it ... Supplier Horizon Award . One of 12 ... recognized for its support of Premier members through exceptional ... excellence, and commitment to lower costs. ... recognition of our outstanding customer service from Premier," says ...
Breaking Medicine Technology: