Navigation Links
Website launched to help patients prepare for complex medical decisions
Date:1/4/2013

A new patient-friendly online resource called PREPARE has been developed to help people make complex medical decisions. The website was developed by researchers from the San Francisco VA Medical Center, UCSF, and NCIRE - The Veterans Health Research Institute.

The PREPARE website incorporates content identified in new research to address key patient- and surrogate-identified aspects of preparing for advance care planning and decision making. The site provides concrete examples through videos and other mechanisms on how to identify what is most important in life, how to communicate that with family and friends and doctors, and how to make informed medical decisions.

The resource is being launched by researchers who recently published a study on advance care planning in the Journal of Pain and Symptom Management (Nov. 27, 2012). The paper, entitled Advance Care Planning Beyond Advance Directives: Perspectives from Patients and Surrogates, identified gaps in planning for decisions about serious illness among a culturally diverse group of patients and surrogate decision makers, or individuals who have made medical decisions for others.

"There are few resources which can adequately prepare patients and their families to face serious illness or a medical crisis situations which often involve complex decisions over time," said lead study author Rebecca Sudore, MD, SFVAMC geriatrician and palliative medicine physician and associate professor medicine at the UCSF School of Medicine.

"Advance directives are important, but they are just one piece of the puzzle," she said. "We wanted to develop a value-driven, easy-to-use tool to prepare people to make medical decisions that reflect their values and needs while preparing them to effectively communicate these wishes with others."

This study identified key themes critical to successful advance care planning that go beyond completing an advance directive form. These include successful surrogate selection and communication with the surrogate, determination of the surrogate's role, and communication with family and doctors.

The website's audio-visual interface is tailored to typically underserved populations (including users with low health or computer literacy and/or visual or hearing impairment) and aims to incorporate a patient-centered, comprehensive and manageable approach.

The PREPARE website is written at a fifth-grade reading level, and includes voice-overs of all text, closed-captioning for the hearing impaired, and large font for the visually impaired. In preliminary pilot testing, older adults from diverse backgrounds rated PREPARE a nine out of a 10- point-scale for ease of use, according to Sudore.

"We wanted to make the website free and easy-to-use by everyone," she said. "We made sure to take advice given to us by patients and surrogates. The site doesn't merely ask people to do advance care planning, but actually shows people, through videos and a step-by-step process, how to actually have the conversation and make informed medical decisions."

The study included 69 English and Spanish-speaking patients and surrogate decision makers who reported having to make serious medical decisions for themselves or loved ones. The mean age of patients was 78 years and 61 percent were non-white. The mean age of the surrogate decision makers was 57 years, and 91 percent were non-white.

Qualitative analysis revealed that advance directives were not enough to prepare patients and surrogates for medical decision making. Many participants stated that solely focusing on treatments, such as mechanical ventilation, was not sufficient to help with the "many decisions" with which they were facing.


'/>"/>

Contact: Leland Kim
leland.kim@ucsf.edu
415-502-6397
University of California - San Francisco
Source:Eurekalert  

Related medicine news :

1. CoachingWebsites (Websites for Coaches) Announces a New Scheduling Calendar Feature for Coaches in 2013
2. Physician review websites rely on few patient reviews
3. PsychiatristSites (Websites for Psychiatrists) Announces a New Scheduling Calendar Feature for Psychiatrists in 2013
4. Miami Adventures Would Like to Announce the Launch of Their New Website GreatMiamiTours.com
5. Viagrahapi.com Announced its New Website
6. Facility Builders and Erectors Launches New Website for Clients
7. Caribbean Hideaways / Go Classy Tours Announces the Launch of Their Second N-Resort Jamaica Website - 2013 Group Dates to Hedonism II and Desire Resorts & Spa
8. Web Entrepreneur Launches HealthYouDecide.com, a Website for a Healthier Lifestyle
9. Atlanta Surgeon for LASIK Eye Surgery Publishes Study on Website About Car Technology to Monitor Drowsiness
10. Green-npower.com Announces its New Website
11. Physicians Indemnity Risk Retention Group Unveils New Website
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Website launched to help patients prepare for complex medical decisions
(Date:8/24/2017)... ... , ... There is no doubt in anyone’s mind that NoSQL databases scale out to large ... the ability to scale to a 1000 nodes, Gensonix can scale to 100,000 nodes without ... Big Data loads. , First of all, Gensonix stands as the only DB (SQL or ...
(Date:8/24/2017)... Fredericton, NB (PRWEB) , ... August 24, 2017 , ... ... culmination of 18 years of contact center application development experience. It represents ... modern contact center. , Indosoft designed Q-Suite NG for simple integration. A full ...
(Date:8/23/2017)... , ... August 23, 2017 , ... The Arc Mercer, ... disabilities (I/DD), has launched a groundbreaking LGBTQ community organization for people with special needs. ... organization of its kind in the state of New Jersey – but the first ...
(Date:8/23/2017)... , ... August 23, 2017 , ... ... Vice President Business Development and Sector Growth. Mr. Smith joins other recent high-profile ... , Mr. Smith’s healthcare career began in 1993, helping physician practices and ...
(Date:8/23/2017)... ... August 23, 2017 , ... Based on worldwide research and ... of HBOT in treating and helping to heal addictions and substance abuse disorders. ... similarities of the wounds to the brain from traumatic brain injuries, and the ...
Breaking Medicine News(10 mins):
(Date:8/2/2017)... , Aug. 2, 2017  Life Flight Network and PeaceHealth ... agreement improves patient care and operational efficiency for patients at ... , Cottage Grove , and ... transportation. PeaceHealth and Life Flight Network work collaboratively to move ... transport, or when a time sensitive emergency exists. ...
(Date:8/1/2017)... 1, 2017   CerSci Therapeutics , a non-opioid ... , has received notice from the National Institute ... Health (NIH) that it has been awarded a Direct-to-Phase ... $650,000 in 2017 with an additional $1,000,000 to follow ... Drug application of their lead non-opioid drug candidate CT-044 ...
(Date:7/31/2017)... Tru-D SmartUVC robots have arrived at Brian Allgood Army Community ... for "Total Room Ultraviolet Disinfection," is a 5-foot-5 germ-killing robot that is ... cleans the area with traditional cleaning protocols. ... Tru-D fights germs at Army hospitals ... "Although the BAACH has a very low infection rate, below national ...
Breaking Medicine Technology: