Navigation Links
VirtualHealth Technologies, Inc., Announces That Its Associate, Private Access, Will Be Partnering with Genetic Alliance To Accelerate Medical Research While Protecting Privacy
Date:8/19/2008

Private Access and Genetic Alliance Announce Strategic Partnership to

Accelerate Medical Research While Protecting Privacy Through an innovative public/private partnership, Private Access will

launch its suite of web-based privacy management and clinical trials

recruitment tools with Genetic Alliance network participants.

CAMBRIDGE, Mass., Aug. 19 /PRNewswire-FirstCall/ -- Private Access, Inc., and Genetic Alliance, a 501(c)(3) organization, announced today that they have formed a novel public-private partnership designed to simultaneously protect patients' privacy rights while creating a faster and more cost effective way for researchers to connect with patients in order to find causes and treatments for chronic illnesses and diseases. Leaders of both organizations believe that their combined efforts will help transform today's medical research environment, saving time and money, producing better outcomes, and in a manner that respects each individual patient's right to decide with whom they share their confidential health information.

The announcement was made today in conjunction with the prestigious Harvard Privacy Symposium and 16th Annual National HIPAA Summit. Private Access' founder and CEO, Robert Shelton, speaking on a panel entitled "Privacy and Technology: Giving Patients Control Over Uses of Their Health Information," previewed both the company's planned technology and the strategic partnership struck with Genetic Alliance. In his comments, Shelton observed that, "this is a game-changing moment where the proponents of an extremely well-conceived technology focusing on privacy and controlling access rights to highly confidential health records and a patient population that has an uncommonly high need for these tools come together to solve a problem that has historically been a major impediment to health data exchange."

Shelton, who also serves as chairman of a national non-profit disease advocacy organization that is a Genetic Alliance network participant, explained that the partnership between Private Access and Genetic Alliance will address the current problem that maintaining patient privacy and providing access to medical records are inherently at odds. "Getting a proper resolution to this complex issue accelerates the translation of research into diagnostics and treatments," said Sharon F. Terry, President and CEO of Genetic Alliance.

"Our vision for harmonizing privacy and access through a suite of web-based software applications is ideally suited to the needs of those who suffer from chronic illness and genetic diseases," said Shelton. Explaining the unusual step of forming a partnership between a for-profit company and a not-for-profit, Terry added, "Genetic Alliance's mission is to transform health through genetics and to do so in part through novel partnerships in advocacy. Robert has run one of the disease support organizations in our network and understands the needs and issues of these organizations. Private Access has the right technology, at the right time to serve individuals, families, providers, researchers and all healthcare stakeholders dealing with genetic conditions and chronic disease. By working together, I'm convinced we can create an essential environment of trust that empowers people to be the solution."

"Our approach is to empower individuals to protect the privacy of their personal health information while simultaneously authorizing stakeholders to access to that information to find treatments to diseases quicker," said Marc D. Kirshbaum, president of Private Access. Kirshbaum further commented, "Genetic Alliance has been very successful convening diverse stakeholders - including disease-specific advocacy organizations, universities, companies, government agencies, and policy organizations - to explore and create novel partnerships to overcome the historical barriers required to reduce medical research costs and speed the process of finding treatments. Earlier this year, we saw this in Genetic Alliance's role in advocating for the Genetic Information Non-Discrimination Act (GINA) which was passed by the US Congress and signed into law by the President."

Adds Kirshbaum, "Private Access is honored to be working with Genetic Alliance in this transformative initiative. Our privacy management, clinical trials recruitment and records sharing tools complement Genetic Alliance's network to accelerate medical research."

Private Access is building a technology platform that will give individuals a chance to be as explicit as they wish relative to who, when and under what circumstances others can access and use their personal medical information and to easily apply these explicit privacy rules to all conceivable uses of that information. In its first generation, the Private Access technology will be embodied in several user-centric applications that employ these individual directives to overcome the regulatory hurdles surrounding privacy in the recruitment of study subjects for medical research.

About Genetic Alliance

Genetic Alliance transforms health through genetics, using an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance brings together diverse stakeholders that create novel partnerships in advocacy; integrates individual, family, and community perspectives to improve health systems; and revolutionizes access to information to enable translation of research into services and individualized decision making. For more information about Genetic Alliance, visit http://www.geneticalliance.org.

About Private Access

Private Access, Inc. develops web-based applications that solve the significant privacy hurdle that the medical community faces when attempting to recruit subjects for clinical trials and to share confidential records in pursuit of faster diagnoses and better treatments for diseases and chronic illnesses. The company's vision is to leverage its method for individuals to establish and manage their dynamic electronic consent and its suite of solutions to transform the healthcare industry - creating a unique environment of trust for consumers and accelerating research at a considerably lower cost. Founded in 2006, Private Access is headquartered in Aliso Viejo, California and holds several patents covering its proprietary technology. For more information, visit http://www.PrivateAccess.info.

Contact: Geri L. Schanz, APR, 949-499-1869

or Contact: Shareholder Relations

VirtualHealth Technologies, Inc.

325 West Main Street, Suite 240

Lexington, KY 40507

(859) 455-9255

Email: Shareholder.Relations@virtualhealthtechnologies.com

Website: http://www.virtualhealthtechnologies.com


'/>"/>
SOURCE VirtualHealth Technologies, Inc.
Copyright©2008 PR Newswire.
All rights reserved

Related medicine news :

1. VirtualHealth Technologies, Inc., Announces Its Associate, Private Access, Appoints Marc Kirshbaum as President & COO
2. VirtualHealth Technologies, Inc. Announces Management Appointment
3. Wound Management Technologies, Inc. Announces Clarification of Eprint Viewing of Case Report in Advances in Skin and Wound Journal
4. Wound Management Technologies, Inc. Announces Products to Be Registered in Taiwan
5. SeQual Technologies, American Lung Association of California and Seton Medical Center Partner to Support Survivor & Cyclist in 500-Mile California Ride
6. Wound Management Technologies, Inc. Announces Filing of a 510K
7. VNUS Medical Technologies, Inc. Announces Board of Director Resignation
8. VNUS Medical Technologies, Inc. Files Patent Infringement Lawsuits Against Biolitec, Dornier and CoolTouch
9. Accenx Technologies, a Premier Sponsor as the Educational Underwriters of the 3rd Annual World Congress Leadership Summit on The Road to Interoperability
10. Wound Management Technologies, Inc. Announces Sales Agreement with EWA Government Systems, Inc.
11. Hologic, Inc. Announces Grant of Early Termination of Antitrust Waiting Period for Third Wave Technologies, Inc. Tender Offer
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... ... June 25, 2016 , ... ... issues and applications at AcademyHealth’s Annual Research Meeting June 26-28, 2016, at the ... several important health care topics including advance care planning, healthcare costs and patient ...
(Date:6/25/2016)... ... June 25, 2016 , ... The temporary closing of Bruton Memorial Library on June ... , brings up a new, often overlooked aspect of head lice: the parasite’s ability to ... is not a common occurrence, but a necessary one in the event that lice have ...
(Date:6/25/2016)... ... June 25, 2016 , ... First Choice Emergency Room , the largest ... as the Medical Director of its new Mesquite-Samuell Farm facility. , “We are ... Mesquite location,” said Dr. James M. Muzzarelli, Executive Medical Director of First Choice Emergency ...
(Date:6/25/2016)... , ... June 25, 2016 , ... ... and non-athletes recover from injury. Recently, he has implemented orthobiologic procedures as a ... area —Johnson is one of the first doctors to perform the treatment. Orthobiologics ...
(Date:6/25/2016)... ... ... Conventional wisdom preaches the benefits of moderation, whether it’s a matter of indulgence ... high can result in disappointment, perhaps even self-loathing. However, those who set the bar ... from PsychTests.com reveals that behind the tendency to set low expectations is ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... 24, 2016 Research and Markets has ... Companion Diagnostic Tests" report to their offering. ... Diagnostics The World Market for Companion Diagnostics ... diagnostics. Market analysis in the report includes the following: ... Vitro Diagnostic Kits) by Region (N. America, EU, ROW), 2015-2020 ...
(Date:6/23/2016)... June 23, 2016  MedSource announced today that ... e-clinical software solution of choice.  This latest decision ... value to their clients by offering a state-of-the-art ... relationship establishes nowEDC as the EDC platform of ... full-service clients.  "nowEDC has long been a preferred ...
(Date:6/23/2016)... , June 23, 2016 Roche (SIX: ... 510(k) clearance for its Elecsys BRAHMS PCT (procalcitonin) assay ... sepsis or septic shock. With this clearance, Roche is ... a fully integrated solution for sepsis risk assessment and ... with bacterial infection and PCT levels in blood can ...
Breaking Medicine Technology: