Navigation Links
Video: Liberate The Breast Cancer Genes
Date:5/13/2009

ACLU Releases Video Showing How Restrictive Gene Patents Hurt Women

NEW YORK, May 13 /PRNewswire/ -- Breast cancer survivor Genae Girard underwent genetic testing to determine whether she's also at risk for ovarian cancer and should have her ovaries removed. But the test didn't come with a second opinion -- a problem for any woman facing a decision that will impact her ability to have children. That's because only one company holds the patents on the genes associated with breast and ovarian cancer and no one else can offer this kind of testing without its permission.

To view the Multimedia News Release, go to: http://www.prnewswire.com/mnr/aclu/38183/

Lisbeth Ceriani, a single mom, simply can't afford the more than $3,000 test. Getting the test paid for by insurance can be difficult.

"I'd like to see my 8-year-old daughter go to college," Ceriani says. "But if I have the mutation, there's a huge chance I'll end up with ovarian cancer in the immediate future. I need to have that test so I can get my ovaries out if I need to before anything happens. I don't like those odds."

The American Civil Liberties Union filed a lawsuit Tuesday charging that human genes by law cannot be patented and that such patents violate the First Amendment. The gene patents impede clinical testing and research. An ACLU-produced video released today lays out the case by telling the stories of researchers, clinicians and individual women negatively affected by the patents. The ACLU has launched the video, "Liberate the Breast Cancer Genes," on its Web site and YouTube channel to help people understand how this lawsuit directly touches people's lives. The stories of Girard and Ceriani, who are plaintiffs in the case, are featured in the video.

"How can it be that a company controls genes? How is that possible?" asks Barbara Brenner, Director of Breast Cancer Action, one of the plaintiffs in the lawsuit.

The video outlines the problems experienced as a result of the U.S Patent and Trademark Office granting Myriad Genetics patents on the BRCA1 and BRCA2 genes.

Dr. Wendy Chung, Director of Clinical Genetics at Columbia University and a plaintiff in the case, says she too often sees women like Girard and Runi Limary who can't seek second opinions and are given little data to understand what their tests results mean because of the patents.

Limary had breast cancer at 28 and took Myriad's test to find out if it was likely to return and if ovarian cancer is a concern. The result was puzzling: Limary was told she had a genetic variant of "uncertain significance." It turns out other Asian-American women like Limary had also received these results. But because patent-holder Myriad has not determined their significance and others are excluded from doing the testing, these women are left to guess whether their variants warrant removal of their ovaries along with their ability to have children.

Tania Simoncelli, ACLU science advisor, says a lot is at stake if companies like Myriad are allowed to own genes and have a monopoly on everything associated with those genes.

"They own not only the gene, they own any future tests, any future drug, any future therapy, so we are putting our trust in one single company," says Simoncelli. "There are places where the patent system has gone too far. Too much patent protection can in fact trample our civil liberties."

The ACLU expects these gene patents will be declared invalid as a result of this lawsuit.

The video "Liberate the Breast Cancer Genes" can be found at the following links:

YouTube

www.youtube.com/watch?v=6h6X46-qz14

ACLU blog

http://blog.aclu.org/2009/05/13/liberate-the-breast-cancer-genes

More information about the ACLU's lawsuit can be found online at: www.aclu.org/brca

http://blog.aclu.org/2009/05/13/liberate-the-breast-cancer-genes


'/>"/>
SOURCE American Civil Liberties Union
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Video: Nutrition Comes to NASCAR
2. Video: Circulatory Care of New Jersey
3. Video: GEN Video Hits Home with Web Audience
4. Video: Beyond the Red Door: Gildas Club Worldwide and DKNY Host Successful Benefit Event
5. Video: Food Expert B. Smith to Provide Healthy Menu Makeovers
6. Video: New FDA-Approved Sun Protectant Saves Skin All Year Round
7. Video: Kyphon Supports World Osteoporosis Day on October 20, 2007 to Raise Awareness of Osteoporosis and Spinal Fracture Risk
8. Video: Trinity Mother Frances Neurosurgeon First in Region to Remove Brain Tumor Using Unique Surgical Procedure
9. Video: Holiday Safety Is Important
10. Video: Grin Big With an Award-Winning Smile
11. Video: BSP Pharma Inc. Announces Groundbreaking Findings from The Australian Centre for Complementary Medicine Education and Research Joint Health Clinical Study
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/24/2016)... (PRWEB) , ... June 24, 2016 , ... June 19, ... the dangers associated with chronic pain and the benefits of holistic treatments, Serenity ... who are suffering with Sickle Cell Disease. , Sickle Cell Disease (SCD) is a ...
(Date:6/24/2016)... ... 2016 , ... The Pulmonary Hypertension Association (PHA) learned during ... two significant new grants to support its work to advance research and patient ... recognizing patients, medical professionals and scientists for their work in fighting pulmonary hypertension ...
(Date:6/24/2016)... ... June 24, 2016 , ... Dr. Amanda Cheng, an ... Cheng has extensive experience with all areas of orthodontics, including robotic Suresmile technology, ... , Micro-osteoperforation is a revolutionary adjunct to orthodontic treatment. It can be ...
(Date:6/24/2016)... ... ... makers of Topricin and MyPainAway Pain Relief Products, join The ‘Business for a Fair Minimum ... by 2020 and then adjusting it yearly to increase at the same rate as the ... wage floor does not erode again, and make future increases more predictable. , The company ...
(Date:6/24/2016)... ... 24, 2016 , ... EB Medicine presented its first-ever “Issue ... conference in Ponte Vedra Beach, FL. The awards honor the outstanding work of ... and Pediatric Emergency Medicine Practice. , “With this award, we recognize the ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... , June 24, 2016 ... Markets has announced the addition of the " ... offering. This ... and provides an updated review, including its applications in ... the total market, which includes three main industries: pharmaceutical ...
(Date:6/24/2016)... BEIJING , June 24, 2016 Dehaier ... or the "Company"), which develops, markets and sells medical ... China , signed a strategic cooperation agreement with ... as "Hongyuan Supply Chain") on June 20, 2016, to ... Under the strategic cooperation agreement, Dehaier will leverage Hongyuan ...
(Date:6/24/2016)... 2016 According to a new ... Pen Needles, Safety Pen Needles), Needle Length (4mm, 5mm, ... Mode of Purchase (Retail, Non-Retail) - Trends & Global ... the market for the forecast period of 2016 to ... Billion by 2021 from USD 1.65 Billion in 2016, ...
Breaking Medicine Technology: