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VIDEO from Medialink and Shire plc: Rare Diseases Must Be Top of the Health Agenda
Date:2/28/2008

iseases to improve the lives of those affected by them.

The next milestone for the organisation is a public hearing at the European Parliament in Brussels on 4th March. EURORDIS and MEPs Frederique Ries and Jules Maaten will present the issue of rare diseases as a public health priority, and examine the outcome of a consultation report and national plans for rare diseases.

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