Navigation Links
Updated MD-CARE Act Receives Final Congressional Approval
Date:9/27/2008

TUCSON, Ariz., Sept. 27 /PRNewswire-USNewswire/ -- The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008 received final Congressional approval today. It now goes to President Bush, who is expected to sign it.

The approved legislation -- which reauthorizes and updates the MD-CARE Act of 2001 -- will escalate research and the development of treatments for several forms of muscular dystrophy.

Dr. R. Rodney Howell, the Muscular Dystrophy Association's chairman of the board, was pleased with the Congressional action, noting, "MDA is proud to stand with Congress and thousands of MD advocates to take this significant step toward increased clinical trials and therapies for muscular dystrophy. The MD-CARE Act's newly reauthorized commitment to funding research and clinical excellence ensures continued progress towards a cure."

Howell gratefully acknowledged the efforts and commitment of the legislators who sponsored the amended MD-CARE Act: Congressmen Eliot Engel (D-NY) and Michael Burgess (R-TX) [H.R. 5265] and Senators Amy Klobuchar (D-MN) and Johnny Isakson (R-GA) [S. 2618].

The MD-CARE Act of 2001 required that the National Institutes of Health (NIH) designate muscular dystrophy Research Centers of Excellence to work independently and collaboratively on clinical research projects dealing with muscular dystrophy.

MDA aided creation of the centers by contributing $1.5 million to each of the first three.

The original MD-CARE Act also mandated creation of a Muscular Dystrophy Coordinating Committee to expand and intensify research efforts, established an epidemiological data collection system under the auspices of the federal Centers for Disease Control, and piloted a national care considerations project for the treatment of Duchenne and Becker muscular dystrophies.

The newly passed MD-CARE Amendments include several new provisions:

-- Expand the NIH Institutes involved to include the National Heart, Lung and Blood Institute.

-- Officially name the centers of excellence, the Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers, after the late Senator who served as a champion for the MD community.

-- The epidemiological data system may be expanded to include health outcomes and reflect patients' changing conditions over time.

-- The development and broad dissemination of care considerations for the muscular dystrophies.

-- As promising therapies for muscular dystrophies are identified, they are eligible to be processed through an enhanced clinical infrastructure that "fast tracks" research findings into viable therapies for patients.

MDA is a voluntary health agency supporting programs of worldwide research, comprehensive services and far-reaching professional and public health education for muscular dystrophy and related diseases. The Association's programs are funded almost entirely by individual private contributors.


'/>"/>
SOURCE Muscular Dystrophy Association
Copyright©2008 PR Newswire.
All rights reserved

Related medicine news :

1. Updated GOLD report presents new understandings in diagnosis, treatment and prevention of COPD
2. Updated Brochure on Gynecologic Cancer Treatments Now Available
3. Medifast Announces Updated Full Year 2007 Guidance
4. Updated: National Infertility Awareness Week Nov. 4-10; Infertility Affects Significant Number of Couples
5. Long-term pharmacotherapy for obesity and overweight: updated meta-analysis
6. inVentiv Health Provides Updated Information on December 11th Investor Day
7. UPDATED: Evalve(R) Completes $60 Million Series D Financing
8. Updated Analysis of 2001 Epoetin Alfa Study Posted
9. American College of Gastroenterology Offers Updated Clinical Guidance for Managing Pregnant Patients
10. Adult stem cell heart attack study updated at American Society for Hematology Meeting
11. CAHI Releases Updated Health Insurance Mandates in the States
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/27/2016)... , ... June 27, 2016 , ... "FCPX editors can ... inside of Final Cut Pro X," said Christina Austin - CEO of Pixel Film ... Final Cut Pro X users can now reveal the media of their ...
(Date:6/27/2016)... ... June 27, 2016 , ... TopConsumerReviews.com recently awarded their highest five-star rating to ... of individuals in the United States and Canada wear eyeglasses. Once considered to be ... vision and make a fashion statement. Even celebrities use glasses as a way of ...
(Date:6/26/2016)... ... June 26, 2016 , ... PawPaws brand pet supplements ... that was developed to enhance the health of felines. The formula is all-natural and ... main herbs in the PawPaws Cat Kidney Support Supplement Soft Chews are ...
(Date:6/25/2016)... ... ... Austin residents seeking Mohs surgery services, can now turn to Dr. Jessica ... Peckham for medical and surgical dermatology. , Dr. Dorsey brings specialization to include Mohs ... Mohs Micrographic Surgery completed by Dr. Dorsey was under the direction of Glenn Goldstein, ...
(Date:6/25/2016)... ... June 25, 2016 , ... As a lifelong Southern Californian, Dr. Omkar ... M.D from the David Geffen School of Medicine at UCLA. He trained in Internal ... complete his fellowship in hematology/oncology at the UCLA-Olive View-Cedars Sinai program where he had ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... June 24, 2016  Consumers have taken a ... have placed more emphasis on patient outcomes. ... programs in the pharmaceutical industry have evolved beyond ... pharmaceutical companies are focusing on becoming more patient-oriented ... products and services that improve health. ...
(Date:6/24/2016)... 2016 Dublin ... addition of the " Global Markets for Spectroscopy ... This report focuses on the ... review, including its applications in various applications. The report ... includes three main industries: pharmaceutical and biotechnology, food and ...
(Date:6/24/2016)... SAN CLEMENTE, Calif. , June 24, 2016  American Respiratory ... testing company, is now able to perform sophisticated lung assessments in ... Medical Technologies , Inc. Patients are no longer ... to ndd,s EasyOne PRO ® , ARL patients like Jeanne R. ... testing done in the comfort of her own home. ...
Breaking Medicine Technology: