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University of Massachusetts Medical School Opens New Center for FSHD Research and Training
Date:11/15/2013

g from foundations and individuals. These centers engage in translational research with patients and industry to develop novel therapies for muscular dystrophies – genetic diseases resulting in the degeneration of muscle or muscle function. A 2001 federal law, called the MD CARE Act, directed the NIH to establish centers of excellence for research on muscular dystrophy; the program was subsequently named in honor of the late Senator Paul D. Wellstone of Minnesota, a champion of the NIH and muscular dystrophy research.

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About the FSH Society
The FSH Society, founded in 1991 by two FSHD patients, is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. For five consecutive years, the Society has received the Charity Navigator’s four-star rating, the highest distinction held by less than four percent of non-profit organizations in the country. The FSH Society offers a community of support, news and information for FSHD patients and families through its website at http://www.fshsociety.org. For more information about FSHD, please contact the Society at 781-301-6649.

Read the full story at http://www.prweb.com/releases/2013/11/prweb11338086.htm.


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