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Ultra-Runner to Run 63 Marathons in 63 Days for Children with Incurable Disease
Date:8/31/2007

ists estimate one in 40,000 babies is born with A-T, it is not known exactly how many children out there have A-T because the disease is often misdiagnosed. Dr. Howard Lederman of the Johns Hopkins Children's Center believes learning more about A-T could lead to advances in other more common diseases as well. "A-T's shared traits with Alzheimer's, Parkinson's and many forms of cancer suggests that better understanding about A-T could reveal more about those diseases as well."

For Brad and Vicki Margus, nothing less than finding a cure will be a success. "Kids and families are counting on us and we won't give up until we do."

To view a complete list of A-T CureTour stops, visit http://www.ATCureTour.org.

About the A-T Children's Project

The A-T Children's Project is a nonprofit organization formed to raise funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life- improving therapies for ataxia-telangiectasia. To learn more about the A-T Children's Project, visit http://www.atcp.org.

About ataxia-telangiectasia (A-T)

A-T is a progressive, degenerative disease that affects a startling variety of body systems. Children with A-T appear normal at birth, but the early signs of the disease usually appear during the second year of life. A-T causes the relentless loss of muscle control, usually making children dependent on wheelchairs by age 10 and making it difficult for them to read, speak and eat. Children with A-T also have a strikingly high risk of cancer. Although considered a rare "orphan" disease, A-T may actually be much more common than we know, since many children with A-T, particularly those who die at a young age, are never properly diagnosed. There currently is no cure for A-T and no way to slow the progression of the disease. Research
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SOURCE A-T Children's Project
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