Stacy Sims, exercise physiologist at the Stanford Human Performance Lab, says "monitoring his heart responses, respiratory rate, and recovery, will allow us to minimize the damage to Tim's body. From a research perspective, gathering this type of data over an extended period of time will give us insight on the impact on his bones, ligaments, tendons, and muscles. Also, we will monitor and record his heart responses in real time, something that has not been documented over this type of running and duration before."
The A-T Children's Project was founded by Brad and Vicki Margus, who have two children with A-T. The project raises awareness and funding for research and clinical trials that will benefit all children with A-T. To date, the project's research has led to the development of treatments for A-T symptoms, including feeding tubes and immune therapy, as well as gaining a deeper biological understanding of how a mutated A-T gene causes many severe problems.
"When Jarrett and Quinn were diagnosed, Vicki and I quickly realized that research on A-T was limited and really needed to be expanded, not just for our boys but for other families as desperate as we were to help their kids with A- T," Brad Margus said. "We started the A-T Children's Project to focus on a simple mission: accelerate research, provide hope, and find a cure."
|SOURCE A-T Children's Project|
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