Navigation Links
Ultra-Runner to Run 63 Marathons in 63 Days for Children with Incurable Disease

Stanford Scientists Will Monitor His Health to Help Ensure Success

ANAHEIM, Calif., Aug. 31 /PRNewswire-USNewswire/ -- Starting Monday September 3rd at Disneyland, ultra-runner and endurance coach Tim Borland will run a full marathon each day for 63 consecutive days in 63 communities to bring attention to a deadly children's disease. His "A-T CureTour" -- a partnership with the non-profit A-T Children's Project -- will take him across the country, ending on Nov. 4 with the New York City marathon.

Borland's goal is to raise awareness and money for research that will benefit children with ataxia-telangiectasia (A-T), a rare genetic disease that has no cure. A-T causes the relentless loss of muscle control due to brain cell death; like four diseases in one, A-T combines symptoms of cerebral palsy, muscular dystrophy, cystic fibrosis and cancer. Children with A-T have vibrant minds trapped inside of deteriorating bodies.

Borland says he was inspired to do the A-T CureTour by the children he's met with A-T, in particular his friend Cathryn Achilles, a 16-year-old with A- T from Hollister, Calif., whose spirit has been undaunted despite the debilitating and incurable disease she struggles with each day.

"When I first met Cathryn, I thought to myself, here is a teenage girl living with this terrible disease that has no cure," said Borland. "Her peers are out driving, playing sports, and dating, yet Cathryn is as happy a human being as you will find. That inspired me to do something."

Borland first began running in 1998 to lose the weight he had gained working in the food-service industry. Since then, he has completed 25 high- endurance racing events including marathons, a full Ironman triathlon, a 24- hour race and an ultra-marathon.

"The challenges I will face in running these marathons pale in comparison to those faced by the families who run the daily 'marathon' against A-T," Borland said.

Those challenges will be studied by scientists from the Human Performance Lab at Stanford University throughout the Tour. They will monitor him throughout the tour through a Zephyr BioHarness strap he will wear on his chest, which will record the electrical responses of his heart (ECG) and heart rate, breathing rate, skin temperature and movement-acceleration patterns of each marathon day. He will upload the information electronically so that the researchers can evaluate the physical stressors of each marathon and provide feedback on his pace, food intake and other components that will help him maintain optimal performance and health.

Stacy Sims, exercise physiologist at the Stanford Human Performance Lab, says "monitoring his heart responses, respiratory rate, and recovery, will allow us to minimize the damage to Tim's body. From a research perspective, gathering this type of data over an extended period of time will give us insight on the impact on his bones, ligaments, tendons, and muscles. Also, we will monitor and record his heart responses in real time, something that has not been documented over this type of running and duration before."

The A-T Children's Project was founded by Brad and Vicki Margus, who have two children with A-T. The project raises awareness and funding for research and clinical trials that will benefit all children with A-T. To date, the project's research has led to the development of treatments for A-T symptoms, including feeding tubes and immune therapy, as well as gaining a deeper biological understanding of how a mutated A-T gene causes many severe problems.

"When Jarrett and Quinn were diagnosed, Vicki and I quickly realized that research on A-T was limited and really needed to be expanded, not just for our boys but for other families as desperate as we were to help their kids with A- T," Brad Margus said. "We started the A-T Children's Project to focus on a simple mission: accelerate research, provide hope, and find a cure."

While scientists estimate one in 40,000 babies is born with A-T, it is not known exactly how many children out there have A-T because the disease is often misdiagnosed. Dr. Howard Lederman of the Johns Hopkins Children's Center believes learning more about A-T could lead to advances in other more common diseases as well. "A-T's shared traits with Alzheimer's, Parkinson's and many forms of cancer suggests that better understanding about A-T could reveal more about those diseases as well."

For Brad and Vicki Margus, nothing less than finding a cure will be a success. "Kids and families are counting on us and we won't give up until we do."

To view a complete list of A-T CureTour stops, visit

About the A-T Children's Project

The A-T Children's Project is a nonprofit organization formed to raise funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life- improving therapies for ataxia-telangiectasia. To learn more about the A-T Children's Project, visit

About ataxia-telangiectasia (A-T)

A-T is a progressive, degenerative disease that affects a startling variety of body systems. Children with A-T appear normal at birth, but the early signs of the disease usually appear during the second year of life. A-T causes the relentless loss of muscle control, usually making children dependent on wheelchairs by age 10 and making it difficult for them to read, speak and eat. Children with A-T also have a strikingly high risk of cancer. Although considered a rare "orphan" disease, A-T may actually be much more common than we know, since many children with A-T, particularly those who die at a young age, are never properly diagnosed. There currently is no cure for A-T and no way to slow the progression of the disease. Research on A-T may help many more common diseases, such as cancer, Alzheimer's disease and Parkinson's disease. To learn more about A-T, visit

SOURCE A-T Children's Project
Copyright©2007 PR Newswire.
All rights reserved

Related medicine news :

1. Antibiotics Dangerous for Diarrhoea in Children Caused by E.Coli
2. Inhaled Steroids Safe & Effective for Children with Asthma
3. General Anesthesia Safe For Children On Ketogenic Diet Suffering From Epilepsy
4. Starvation in pregnant women can cause heart disease to their children
5. Fireworks can spell death for asthmatic children
6. Cut down TV and video games and you have less aggressive children.
7. Children suffer the most when parents divorce
8. Half of worlds children are passive smokers - damning disclosure from WHO
9. Antibiotic induces liver damage in children with E.COLI infections.
10. Analgesic abuse - cause for chronic headache in children
11. Cats to protect children from asthma
Post Your Comments:
(Date:11/30/2015)... DC (PRWEB) , ... November ... ... Inc. (AIS) is pleased to announce the speakers for “Value-Based Payer-Provider Partnerships: ... lessons learned from three innovative value-based care arrangements: Essentia Health and UCare, ...
(Date:11/30/2015)... ... November 30, 2015 , ... ... around Novus’ TIGR® Matrix Surgical Mesh technology for soft tissue repair in the ... Matrix is a long-term resorbable surgical mesh intended to support and reinforce soft ...
(Date:11/30/2015)... Puerto Rico (PRWEB) , ... November 30, 2015 , ... ... active part of the San Juan Beauty Show held on November 8th and 9th ... was attended by media personalities, hair artists, renowned beauticians and top of the line ...
(Date:11/30/2015)... ... November 30, 2015 , ... ... are pleased to announce their strategic partnership at the Radiological Society of ... Service, Inc., and Winscribe, global providers of cutting-edge dictation and speech-enabled documentation ...
(Date:11/30/2015)... ... 30, 2015 , ... World Patent Marketing , a ... household invention that provides an economical and easy way of gaining customized curtains. ... at 2.6%," says Scott Cooper, CEO and Creative Director of World Patent Marketing. ...
Breaking Medicine News(10 mins):
(Date:11/30/2015)... Cumberland Pharmaceuticals (CPIX), today announced that A.J. Kazimi ... December 3, 2015. TIME: 3:15p.m. ET LINK: ... --> DATE: Thursday, December ... --> --> This will ... to ask the company questions in real-time - both in ...
(Date:11/30/2015)... Nov. 30, 2015 Varian Medical Systems (NYSE: VAR ... educational partnership with Apollo Hospitals Group, the largest hospital chain in ... help train radiation technologists in the country. The MoU was signed ... Knowledge, and Ashok Kakkar , Varian,s India ... India , Varian intends to deploy its Access ...
(Date:11/30/2015)... , November 30, 2015 PFE ... at up to 10 G protein-coupled receptor (GPCR) targets ... to research and develop potential new medicines directed at ... multiple therapeutic areas. --> Heptares Therapeutics ("Heptares"), ... and wholly-owned subsidiary of Sosei Group Corporation ("Sosei"; TSE ...
Breaking Medicine Technology: