Navigation Links
UCSF chancellor issues call-to-arms to patient advocates
Date:4/11/2012

In November 2011, a National Academy of Sciences committee issued a report calling for the creation of a "Google Maps"-like data network intended to revolutionize medical discovery, diagnosis and treatment. Today, the co-chair of that committee, UCSF Chancellor Susan Desmond-Hellmann, MD, MPH, is issuing a call-to-arms to patient advocates to help make that idea a reality.

In her editorial, reported in the April 11 issue of "Science Translational Medicine," Desmond-Hellmann calls on patient advocates to work with policy makers in the U.S. Congress and elsewhere to develop regulations that would more efficiently link patient information between research and clinical care settings, while continuing to protect patient privacy. The information is a key component of the proposed data network and could accelerate medical advances, she and her Academy co-authors say.

The so-called "Knowledge Network" would integrate emerging research on the molecular makeup of disease with clinical data from patients, to drive the development of a more accurate classification, or taxonomy, of disease beyond classification by organs and symptoms. The goal would be more diagnostics and treatments tailored to the individual patient which the committee called "precision medicine," meaning both "accurate" and "precise."

The opportunity to create an entirely new way to classifyand therefore understand and treathuman disease "could bring us to the tipping point at which the remarkable scientific advances in biomedicine and engineering translate to concrete therapeutic benefits for humankind," Desmond-Hellmann wrote in her editorial.

Noting the role that patient advocates undertook around the HIV/AIDS epidemic of the 1980s, she said, the vision of the Academy report "is worthy of that kind of passion and leadership."

The Knowledge network would be centered on a dynamic, interactive data repository, or "Information Commons," that, like G
'/>"/>

Contact: Jennifer O'Brien
jennifer.obrien@ucsf.edu
415-502-6397
University of California - San Francisco
Source:Eurekalert  

Page: 1 2 3

Related medicine news :

1. UCSF Chancellor inducted into Academy of Arts and Sciences
2. Snoring Tots May Develop Behavioral Issues Later
3. U.S. Soldiers Face Host of Mental Health Issues
4. Younger breast cancer patients have more adverse quality-of-life issues
5. ATS issues joint statement on key issues and recommendations for critical care research
6. CDC Issues New TB Treatment Guidelines
7. American Society of Clinical Oncology issues annual report on progress against cancer
8. AAOS issues new clinical practice guideline for treating common elbow fractures in children
9. Experts Design Toolkit to Help Spot Teens With Mental Health Issues
10. Programming cells to home to specific tissues may enable more effective cell-based therapies
11. Study highlights issues faced by friends and family of the suicidal
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
UCSF chancellor issues call-to-arms to patient advocates
(Date:10/22/2014)... 2014 For Dr. Iris Hunter, a job ... an extension of her life’s mission. Her extensive experience in ... owner of FirstLight HomeCare, make it clear that Hunter’s mission ... that my work makes a difference in the lives of ... so after much research, I felt ready to start on ...
(Date:10/22/2014)... 22, 2014 Hay House is pleased to ... and Upgrade Your Life (Paperback; $10.82) written by the highly ... Recovery. This book is meant to help readers of ... of recovery. , Recovery 2.0 is not the average ... 2.0 is a guide for what comes next. ...
(Date:10/22/2014)... (PRWEB) October 22, 2014 Losing Weight Your ... industry is staring you in the face, it certainly can ... not do your body an extra favor by doing it ... tempting crash diets. Instead, listen to your body, exercise regularly, ... Exercise is essential to losing weight; you need to exercise ...
(Date:10/22/2014)... Reinberg HealthDay Reporter , TUESDAY, ... weight and length may be showing a genetic propensity for ... certain genes have been linked to increased body fat, but ... and lean muscle, the researchers said. At 1 year, ... ages 2 and 3, however, these genes were linked to ...
(Date:10/22/2014)... TUESDAY, Oct. 21, 2014 (HealthDay News) -- Measures taken ... plantation in Ebola-ravaged Liberia may have limited the spread ... researchers report. The Firestone Natural Rubber Co. provides ... and residents of nearby densely populated communities. Between ... and suspected Ebola cases among those 80,000 people. That ...
Breaking Medicine News(10 mins):Health News:Dr. Iris Hunter to Host Grand Opening of FirstLight HomeCare Tomorrow 2Health News:Hay House Announces The Official Release of Recovery 2.0: Move Beyond Addiction and Upgrade Your Life 2Health News:Hay House Announces The Official Release of Recovery 2.0: Move Beyond Addiction and Upgrade Your Life 3Health News:ReductionGuruMD Presents Ways to Improve Your Weight Loss Results 2Health News:Tall, Heavy 1-Year-Olds May Be at Risk for Obesity Later, Study Finds 2Health News:Tire Company Sets Standard for Ebola Care in Liberia: CDC 2
... Arbor, Mich. Researchers have identified a gene mutation that causes ... according to U-M Medical School scientists. In the study ... Academy of Sciences USA, U-M,s Marci Lesperance, M.D., and ... examined the DNA of individuals from the same large family ...
... LA JOLLA, Calif., July 12, 2010 Some types ... to metastasize than others. Nearly one-third of these aggressive ... known as neuroendocrine-type cells. More rarely, some aggressive prostate ... The presence of neuroendocrine-type cancer cells is associated with ...
... Irvine, Calif., July 12, 2010 UC Irvine public ... research in impoverished reaches of China, Myanmar and Thailand, ... million of a seven-year, $14.5 million award to Pennsylvania ... Infectious Diseases. Yan will collaborate with Penn State principal ...
... A new Mayo Clinic study found that apathy and ... impairment (MCI), a disorder of the brain that affects ... Alzheimer,s disease and Lewy body dementia. The study was ... Honolulu on July 11, 2010. "An important ...
... to be much more complex than previously thought. In ... , Loyola University Health System researchers describe an example of ... be rare in bacteria. This discovery that protein acetylation ... a new age" in bacterial research, senior author Alan Wolfe, ...
... AIDS Society (IAS), conveners of the International AIDS Conference, ... Living with HIV (GNP+), the International Council of AIDS ... HIV/AIDS (ICW) and the United Nations Joint Programme on ... society and local partners for the XIX International AIDS ...
Cached Medicine News:Health News:U-M researchers identify gene mutation that causes rare form of deafness 2Health News:How prostate cancer packs a punch 2Health News:Mayo Clinic study finds apathy and depression predict progression from mild cognitive impairment 2Health News:'Dawning of a new age' in bacteria research 2Health News:Civil society and local partners for XIX International AIDS Conference (AIDS 2012) announced 2Health News:Civil society and local partners for XIX International AIDS Conference (AIDS 2012) announced 3
(Date:10/22/2014)... and SHANGHAI , Oct. 22, 2014 ... FMI ) and WuXi PharmaTech (Cayman) Inc. (NYSE: ... offer Foundation Medicine,s comprehensive genomic profiling to biopharmaceutical companies ... Under the terms of the collaboration, ... the laboratory component of Foundation Medicine,s FoundationOne® assay at ...
(Date:10/20/2014)...  Luoxis Diagnostics, Inc., a subsidiary of Ampio ... its academic collaborators will present several peer-reviewed posters ... novel RedoxSYS Diagnostic System, a first-in-class platform that ... response to injury or illness.  A poster demonstrating ... marker will be presented by Christopher V. ...
(Date:10/20/2014)... SAN DIEGO , Oct. 20, 2014 /PRNewswire/ ... development of therapeutic antibodies, today announced the appointment ... Development Officer. Dr. Londei will lead the preclinical ... "We are pleased to welcome ... Hamza Suria , President and Chief Executive ...
Breaking Medicine Technology:Foundation Medicine and WuXi PharmaTech Announce Strategic Collaboration to Offer Best-in-Class Comprehensive Genomic Profiling in China 2Foundation Medicine and WuXi PharmaTech Announce Strategic Collaboration to Offer Best-in-Class Comprehensive Genomic Profiling in China 3Foundation Medicine and WuXi PharmaTech Announce Strategic Collaboration to Offer Best-in-Class Comprehensive Genomic Profiling in China 4Foundation Medicine and WuXi PharmaTech Announce Strategic Collaboration to Offer Best-in-Class Comprehensive Genomic Profiling in China 5Luoxis to Highlight RedoxSYS at Two Upcoming Scientific Conferences 2Luoxis to Highlight RedoxSYS at Two Upcoming Scientific Conferences 3Luoxis to Highlight RedoxSYS at Two Upcoming Scientific Conferences 4Luoxis to Highlight RedoxSYS at Two Upcoming Scientific Conferences 5AnaptysBio Appoints Dr. Marco Londei to Newly Created Chief Development Officer Position Clinical Immunologist to Lead AnaptysBio's Pipeline Advancement 2
Esophageal and Anorectal Solid State Catheter Adapter Cable for Polygraf ID...
... of influenza A and B ... to the availability of effective ... influenza using Clearview Exact Influenza ... to reduced hospital stays, antimicrobial ...
... (532 nm) is the newest,addition to ... family is widely,accepted for its reliability, ... it makes,up the worlds largest installed ... OR laser was specifically,designed for the ...
...
Medicine Products: